Neuroendocrine Tumors (NETs): Discussions | Page 1

Oh it is so frustrating, isn't it? Someone told me that I should feel very comfortable...

https://connect.mayoclinic.org/comment/854520/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 4, 2023

Hi tatteesmom3, are you seeing a NETS (neuroendocrine tumor) multidisiciplinary team or just a local oncologist...

https://connect.mayoclinic.org/comment/844936/

Discussion: What do I need to know about NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 18, 2023

I had some pain around my back and side, but that is about it. The chemo...

https://connect.mayoclinic.org/comment/834197/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 29, 2023

I have a rare aggressive tumor (NET in breast) and turned down chemo as I also...

https://connect.mayoclinic.org/comment/829917/

Discussion: The Roller Coaster Ride of Cancer

Support Group: Cancer

Posted: Mar 21, 2023

Thank you! It's been like a story with different points of view. The radiation oncologist has...

https://connect.mayoclinic.org/comment/819000/

Discussion: NETs: Competing Pathologies--how to sort it all out?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 28, 2023

Happy to have found this support group! I have a near 6 cm paraganglioma from my...

https://connect.mayoclinic.org/comment/810104/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 11, 2023

I take cosentyx for arthritis which I sometimes wonder if this could be causing my NET...

https://connect.mayoclinic.org/comment/805017/

Discussion: Newly diagnosed - neuroendocrine tumor in intestines

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 1, 2023

Hello, I have NET related pancreatic cancer. My mother died of pancreatic cancer which was diagnosed...

https://connect.mayoclinic.org/comment/804523/

Discussion: Gynecologic neuroendocrine metastasized to lungs: Need a specialist

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 31, 2023

We live in Orlando Florida. Mom came to the ER of Orlando Health Hospital thinking she...

https://connect.mayoclinic.org/comment/804283/

Discussion: Gynecologic neuroendocrine metastasized to lungs: Need a specialist

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 31, 2023

I would encourage you to become your best advocate. This is done by educating yourself in...

https://connect.mayoclinic.org/comment/802379/

Discussion: Neuroendocrine Lung stage 4B with metastasis in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 27, 2023

I don’t single anyone or him out. We don’t have visitors, he is the only one....

https://connect.mayoclinic.org/comment/786900/

Discussion: Visitor etiquette for NETs patient

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 20, 2022

Hello @jessie59 Here is a link to a time conversion. I hope this helps you to...

https://connect.mayoclinic.org/comment/781875/

Discussion: Learn About NETs and monthly meetings

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 7, 2022

Hello @sanjaykumar1, I can certainly understand your concern about the CGA level rising. It is hard...

https://connect.mayoclinic.org/comment/776826/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 24, 2022

I forgot to add that the youngest carcinoid patient I have met & briefly know was...

https://connect.mayoclinic.org/comment/773745/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 16, 2022

Hello @gneiss50 I appreciate you sharing your journey with NETs. Many of us with NETs share...

https://connect.mayoclinic.org/comment/758993/

Discussion: Long Time Survivor With Concerns re Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 9, 2022

Hello @smart1, I'm glad that @colleenyoung tagged me for this discussion. As I've had three surgeries...

https://connect.mayoclinic.org/comment/753806/

Discussion: Need help with diet after a hemicolectomy....

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 25, 2022

@rowlandsb, I have some options for your daughter. She is welcome to join Mayo Clinic Connect...

https://connect.mayoclinic.org/comment/744223/

Discussion: Support for Young Adult with carcinoid tumor on ovary

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 1, 2022

Hi, My oncologist has sent me to palliative care and they are helping but nothing tried...

https://connect.mayoclinic.org/comment/734944/

Discussion: Pituitary and pNET: Can't do the things I love anymore

Support Group: Brain Tumor

Posted: Aug 7, 2022

I live in Long Island

https://connect.mayoclinic.org/comment/718870/

Discussion: Any NET patients from NYC

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 19, 2022

Just a note: I like the approach my oncologists has... 1. get things in order 2....

https://connect.mayoclinic.org/comment/706933/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: May 10, 2022

Neuroendocrine Tumors (NETs) Support Group