Neuroendocrine Tumors (NETs): Discussions | Page 77

Hello, @dcdcclift, and welcome. That sounds like such a tough and overwhelming few years. You’ve really...

https://connect.mayoclinic.org/comment/1396611/

Discussion: Adrenal Gland Tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: 4 days ago

Thank you for the link on eating. It was interesting. The surgery in 1995 was for...

https://connect.mayoclinic.org/comment/1397037/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: 3 days ago

Hi Brittany I am 6 years out of a modified Whipple taking the remaining pancreas and...

https://connect.mayoclinic.org/comment/1394309/

Discussion: Symptomatic after two years out from Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 16 7:08am

Hi , I have the exact same diagnosis and situation as you do. I have tumorlets...

https://connect.mayoclinic.org/comment/1397213/

Discussion: Biopsy showed DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: 3 days ago

Thank you for sharing your journey and the encouragement. I hope you are disease free now....

https://connect.mayoclinic.org/comment/1398059/

Discussion: New pNET so scared

Support Group: Neuroendocrine Tumors (NETs)

Posted: 2 days ago

I feel like he has just given up. He has constant diareaha that only slows down...

https://connect.mayoclinic.org/comment/873195/

Discussion: Diagnosed with Stage 4 pNET: What should I know?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 5, 2023

Oops I forgot to repost my thread about my journey before sending the last message to...

https://connect.mayoclinic.org/comment/1239033/

Discussion: New Diagnosis: husband's labs are all indicating NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 17 10:07am

Dear puddknocker, I had a big para in the skull base in the vagus nerve, I...

https://connect.mayoclinic.org/comment/856706/

Discussion: Paraganglioma / Carotid Body Tumor Question

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 8, 2023

I had a somewhat similar situation when I was diagnosed with my pancreatic neuroendocrine tumor. In...

https://connect.mayoclinic.org/comment/1351342/

Discussion: NET tumor of pancreas (1 cm) diagnosed

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 18 11:06pm

Hello I had very similar concerns to you. Also worried I had nets elsewhere and it...

https://connect.mayoclinic.org/comment/1351252/

Discussion: Neuroendocrine Tumor - no treatment plan method

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 18 6:03pm

I think I understand what you are saying. I simply don't believe a person that has...

https://connect.mayoclinic.org/comment/1351870/

Discussion: What's next after SiNETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 19 4:44pm

They have PRRT in Edmonton I think. I would make the trip as its only for...

https://connect.mayoclinic.org/comment/1345097/

Discussion: PRRT and lanreotide questions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 10 10:43am

Hello, I am new to this forum. I am looking for referrals for MEN1 and NETs....

https://connect.mayoclinic.org/comment/1358881/

Discussion: Recently diagnosed with MEN1

Support Group: Diabetes & Endocrine System

Posted: Jul 28 10:27pm

Yeah my surgical oncologist literally told me it’s a matter of when it comes back not...

https://connect.mayoclinic.org/comment/1348861/

Discussion: 14 CM PNET w/ one year post resection. When will I see reoccurrence?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 15 1:17pm

That’s exactly what happened to me in 2022; had every imaginable test possible & last test...

https://connect.mayoclinic.org/comment/1348205/

Discussion: What's next after SiNETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 14 3:01pm

I agree. From initial diagnosis to Whipple surgery is frightening. But living is good

https://connect.mayoclinic.org/comment/1348918/

Discussion: New PNET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 15 2:46pm

Please keep me posted. I live in Springfield IL so St Louis would be the closest...

https://connect.mayoclinic.org/comment/1349091/

Discussion: NET tumor of pancreas (1 cm) diagnosed

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 15 7:04pm

I'm like Turkey. I want to stretch it out as long as I can. My surgeon...

https://connect.mayoclinic.org/comment/1374166/

Discussion: My doctors know nothing

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 19 10:01am

Hi There is certainly an issue with the old registration link still being “live” and the...

https://connect.mayoclinic.org/comment/1367107/

Discussion: Did anyone attend the support group with Dr Starr Thursday August 7th?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 9 1:19pm

Hi! I had a 1.8cm pnet, with 6 of 8 lymph nodes positive at the time...

https://connect.mayoclinic.org/comment/1348581/

Discussion: 14 CM PNET w/ one year post resection. When will I see reoccurrence?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 15 8:10am

Neuroendocrine Tumors (NETs) Support Group