Neuroendocrine Tumors (NETs) Support Group

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Hi vtn So I didn’t have the gallium first. So when they did the first recheck...

https://connect.mayoclinic.org/comment/858909/

Discussion: Just diagnosed with PNET: Any thoughts on watch & wait approach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 12, 2023

Hi Teresa, Thank you for sharing your story and suggestions. I'm assuming your surgeries were from...

https://connect.mayoclinic.org/comment/762620/

Discussion: Prognosis for Metastasized NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 18, 2022

It really, really, really, really sux. Welcome to your new "normal". For me, I had to...

https://connect.mayoclinic.org/comment/1190944/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 15, 2024

Here’s a brief summary prior to starting treatment with Dr Wolin. 59 year old male presents...

https://connect.mayoclinic.org/comment/1238487/

Discussion: Diagnosed with NET si-NET Stage 1 Grade 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 16 4:10pm

@colleenyoung Maybe you will want to cross post this to other groups. My husband has fought...

https://connect.mayoclinic.org/comment/196569/

Discussion: Overmedication with cancer and other conditions

Support Group: Head & Neck Cancer

Posted: Apr 19, 2018

Hi Eileen; I’m sure you’re in complete shock with your diagnosis. Your case sounds a lot...

https://connect.mayoclinic.org/comment/1284362/

Discussion: New To NETS - Stage 4 / Grade 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 18 12:27am

Hello, My dad was recently diagnosed with a GI NET. We live in the US ....

https://connect.mayoclinic.org/comment/1010196/

Discussion: GI NET attached to pancreas supposedly non-producing

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 5, 2024

This is my opinion with the facts for myself. I started octreotide twelve and a half...

https://connect.mayoclinic.org/comment/1162233/

Discussion: NET on liver: Question about treatments when no symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 24, 2024

I got a second opinion from MD Anderson's Neuroendocrine research doctors who also recommended Everolimus. My...

https://connect.mayoclinic.org/comment/1118230/

Discussion: Everolimus for multiple Neuroendocrine tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 5, 2024

I just had my what has become a yearly as opposed to every three to six...

https://connect.mayoclinic.org/comment/854136/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 4, 2023

Hello @lovemyfamtopieces72 and welcome to the NETs Support Group on Mayo Connect. I see that two...

https://connect.mayoclinic.org/comment/1112748/

Discussion: GI Net stage 4 advanced: Is it incurable?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 27, 2024

Welcome to the group! Insulinoma diagnosis can be tricky. In brief, I was diagnosed in 2015...

https://connect.mayoclinic.org/comment/889522/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 3, 2023

I was diagnosed almost 2 years ago with NET primary pancreas that metastasized to liver(over 100)...

https://connect.mayoclinic.org/comment/859321/

Discussion: TACE Procedure: What is it like?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 13, 2023

Hello Audra, Let me introduce myself....I am Mary, and was diagnosed with Carcinoid Syndrome (with liver...

https://connect.mayoclinic.org/comment/184521/

Discussion: Carcinoid Cancer and working

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14, 2018

Hello @jatx25 and welcome to Connect and the "NET world" as you so aptly describe it....

https://connect.mayoclinic.org/comment/753020/

Discussion: Questions on Recurrence & Likelihood of Multiple NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 23, 2022

I have LiverNET and receive a CT and PET scan every 90 days. Here is some...

https://connect.mayoclinic.org/comment/1218736/

Discussion: MRI or CatScan as follow up imaging for metastatic liver tumor?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 22 8:27am

Yes I have had one discovered about two years ago with a heart MRI. It was...

https://connect.mayoclinic.org/comment/907604/

Discussion: Has anyone had NETs metastasized to heart?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 4, 2023

Hello @gtassithomas I see that this is your first post in the NET discussion group. I...

https://connect.mayoclinic.org/comment/260957/

Discussion: Carcinoid syndrome symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 2, 2019

Hello! My name is Karla and I live in SW MO near Branson. I’m 52 years...

https://connect.mayoclinic.org/comment/787752/

Discussion: Anyone out there have PNET experiences and outcomes to share?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 22, 2022

Thats exactly what I was saying. I tried it after being given 12 weeks and being...

https://connect.mayoclinic.org/comment/1290468/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 26 12:34pm

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