Neuroendocrine Tumors (NETs): Discussions | Page 1

I must say that I’m shocked! And sorry for such a disappointing visit. There are other...

https://connect.mayoclinic.org/comment/673733/

Discussion: Possible Mircoandenoma muscle wasting

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 22, 2022

Hi Phoebe! I think you are moving in the right direction, trying to get an appointment...

https://connect.mayoclinic.org/comment/669802/

Discussion: Possible Mircoandenoma muscle wasting

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 10, 2022

Hsllo @mfgw This Facebook Live event should be helpful to you. If you are comfortable sharing...

https://connect.mayoclinic.org/comment/660841/

Discussion: Learn About NETs and monthly meetings

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 8, 2021

I'm hopeful that it is the cause but it seems like that totally depends on whichever...

https://connect.mayoclinic.org/comment/610058/

Discussion: Pituitary tumor symptoms: joint, muscle and body aches

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 19, 2021

Good morning Preeti, I have had 2 surgeries to remove a total of 11 insulinomas. Like...

https://connect.mayoclinic.org/comment/134707/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 13, 2020

I had a few joint aches, but primarily I lost muscularity. I couldn't do activities I...

https://connect.mayoclinic.org/comment/289833/

Discussion: Pituitary tumor symptoms: joint, muscle and body aches

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 23, 2020

And good morning to you. It's a different feeling to get a diagnosis of recurrence. Not...

https://connect.mayoclinic.org/comment/232712/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Dec 8, 2018

Hello @gg66 I found sharing very helpful when I was first diagnosed 4 years ago. I...

https://connect.mayoclinic.org/comment/1190817/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 15, 2024

@dbamos1945 Thank you for the kind words. I was excited but had many questions when they...

https://connect.mayoclinic.org/comment/1207616/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 9 11:28am

I’m not sure if your question was to me, but I’ll answer anyway. No, I’m not...

https://connect.mayoclinic.org/comment/1209850/

Discussion: Diagnosed with DIPNECH yesterday!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 12 11:24am

@gg66: Agree with all above, unfortunately, NETS stinks! HOWEVER, if we were given a choice between...

https://connect.mayoclinic.org/comment/1191208/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 15, 2024

Hello @gaylejean Here is a website where you can find Carcinoid specialists by country and by...

https://connect.mayoclinic.org/comment/134554/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 24, 2019

My name is André. My caretaker and best friend, Stephanie (wifey) live near the Sanford/Orlando Airport....

https://connect.mayoclinic.org/comment/134542/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 19, 2019

@merpreb Haven't posted for a while, but have been reading the posts. My CT scan--first one...

https://connect.mayoclinic.org/comment/233026/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Aug 31, 2019

I have just started seeing a therapist at our Hospice Centre... the therapists at the cancer...

https://connect.mayoclinic.org/comment/233023/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Aug 31, 2019

becsbuddy.. thank you for seeing the post for the positive message... I am trying to live...

https://connect.mayoclinic.org/comment/233018/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Aug 29, 2019

I have Glioblastoma grade 4...so I also have to remind myself to live in the moment....

https://connect.mayoclinic.org/comment/233001/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Aug 28, 2019

I am experiencing all the emotions that everyone here is experiencing... I have Stage 4 inoperable...

https://connect.mayoclinic.org/comment/232999/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Aug 28, 2019

Hello, my symptoms were dizziness, tiredness and some headaches. I live in Peru so my GP...

https://connect.mayoclinic.org/comment/176701/

Discussion: Anyone treated for NETs at Mayo Clinic in Jacksonville, FL

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 18, 2019

@susu2 @odette @merpreb, thanks for sharing your experiences. Susu, technically speaking hiccups are involuntary contractions of...

https://connect.mayoclinic.org/comment/265599/

Discussion: Have you ever had hiccups with or after chemotherapy?

Support Group: Cancer: Managing Symptoms

Posted: Jun 12, 2019

Neuroendocrine Tumors (NETs) Support Group