Neuroendocrine Tumors (NETs) Support Group

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Comments (1,498)

We live in Greece where there are no NET specialists unfortunately. Oncologists give treatment according to...

https://connect.mayoclinic.org/comment/1025604/

Discussion: Atypical pulmonary carcinoid

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 1 3:14pm

Hi. Good to hear from you. I will try to help. What I have done has...

https://connect.mayoclinic.org/comment/776368/

Discussion: Prognosis for Metastasized NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 22, 2022

We live in Charleston, SC and he goes to a Roper Oncologist who specializes in NETS...

https://connect.mayoclinic.org/comment/998850/

Discussion: Prognosis for Metastasized NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 17 8:51am

Good tips, @kgrear. One often has to be persistent. You sound like you know the importance...

https://connect.mayoclinic.org/comment/988632/

Discussion: Laparoscopic Possible Open Surgery Resection - Small Bowel NETS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 30, 2023

I literally couldn’t change the big thick pad I had to tape onto the wound where...

https://connect.mayoclinic.org/comment/990558/

Discussion: Questions I should ask before surgery for Lung NETs?

Support Group: Lung Cancer

Posted: Jan 2 9:21pm

Hello everyone. I have bilateral Pheochromocytoma's on both my adrenal glands. I live in Oregon. This...

https://connect.mayoclinic.org/comment/764174/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 22, 2022

Patrick, were your tumors NET’s? Who is your oncologist at Barnes? I was diagnosed with a...

https://connect.mayoclinic.org/comment/1031029/

Discussion: High risk surgery. Is it worth it?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 10 11:26am

Will receive it Tuesday, post what I learn, and go from there. If this is a...

https://connect.mayoclinic.org/comment/1074541/

Discussion: What’s the best care option for live alone senior during radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25 4:04pm

My tumor was around the tail of the pancreas, so I had distal pancreatectomy and splenectomy....

https://connect.mayoclinic.org/comment/1088225/

Discussion: NET in body of pancreas: What are my treatment options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 16 9:29pm

I live within reach of Memorial Sloan Kettering so called just to get a 2nd opinion....

https://connect.mayoclinic.org/comment/1087269/

Discussion: On choosing a surgeon for pulmonary carcinoid resection…

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 15 9:34am

@htam4- I live in Syracuse, NY. We have a very good Cancer center and I had...

https://connect.mayoclinic.org/comment/1089671/

Discussion: Pancreatic neuroendocrine insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 19 8:54am

I wish you all the best with this going forward. Your post made sense to me....

https://connect.mayoclinic.org/comment/1074300/

Discussion: What’s the best care option for live alone senior during radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25 9:06am

None of this is easy... but I think you have to just go about the business...

https://connect.mayoclinic.org/comment/232796/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Jan 7, 2019

It was very helpful and encouraging to read your comments . I have not met or...

https://connect.mayoclinic.org/comment/845625/

Discussion: New DIPNECH diagnosis, need advice on doctors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 19, 2023

Thanks for your story! I had a biopsy done on a small bump on my nose...

https://connect.mayoclinic.org/comment/1074587/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25 5:44pm

Roger, glad your side effects are diminishing ! Chocolate is a great place to start tasting!...

https://connect.mayoclinic.org/comment/1012937/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 10 8:11am

@penlandtr1, I can understand that you are concerned that you have to wait until January 8....

https://connect.mayoclinic.org/comment/987119/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 27, 2023

Hi Roger, you're in the right place to connect with other members living with Merkel cell...

https://connect.mayoclinic.org/comment/956434/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 30, 2023

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