Neuroendocrine Tumors (NETs): Discussions | Page 1

Hi Teresa The NET was an incidental finding when I was in the hospital in January...

https://connect.mayoclinic.org/comment/884349/

Discussion: Recently diagnosed with a NET in my middle lobe of my right lung.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 24, 2023

While NETs is a complicated cancer it was an easy diagnosis. A CgA blood test followed...

https://connect.mayoclinic.org/comment/884142/

Discussion: Recently diagnosed with a NET in my middle lobe of my right lung.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 24, 2023

Dear Mike I was diagnosed with PNET on my pancreas on March 21, 2023. My PNET...

https://connect.mayoclinic.org/comment/880451/

Discussion: NET found by colonoscopy. What to expect and how should I approach

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 17, 2023

Hello. I understand your plight to find the right care. My wife has a grade 2,...

https://connect.mayoclinic.org/comment/877019/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 12, 2023

Very interesting , let’s hope they are are able to make excellent progress to help us...

https://connect.mayoclinic.org/comment/871585/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 3, 2023

Wow @lastround that's terrible what the first two doctors told you. Glad you saw a third!...

https://connect.mayoclinic.org/comment/861458/

Discussion: Dying from car accident can cause death more so this cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 17, 2023

Hi there! Your diet doesn't sound dull to me at all! I believe this diet or...

https://connect.mayoclinic.org/comment/856433/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 8, 2023

You have really found a way to successfully live with NETs, @patrick031621. I appreciate you sharing...

https://connect.mayoclinic.org/comment/856330/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 8, 2023

I am in Florida and my adrenal mass grew from 3cm to 4cm in 8 months....

https://connect.mayoclinic.org/comment/850289/

Discussion: Pheochromocytoma: Anyone being treated for an adrenal mass?

Support Group: Diabetes & Endocrine System

Posted: Apr 27, 2023

Hello @deloris and welcome to the NETs discussion on Mayo Clinic Connect. I see that you...

https://connect.mayoclinic.org/comment/842366/

Discussion: What do I need to know about NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 12, 2023

I feel for you with the difficult to control blood sugars. For a time I was...

https://connect.mayoclinic.org/comment/838750/

Discussion: Ways to control hypoglycemia caused by insulinoma in pancreas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 6, 2023

Hello @lisa812 I would like to join Colleen, @colleenyoung, in welcoming you to the NETs discussion...

https://connect.mayoclinic.org/comment/832719/

Discussion: Stage 4 Carcinoid tumor: What treatments have you had?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 27, 2023

Hello to all of my fellow Cancer patients. Having had my Radical Prostatectomy performed 5 months...

https://connect.mayoclinic.org/comment/829971/

Discussion: The Roller Coaster Ride of Cancer

Support Group: Cancer

Posted: Mar 22, 2023

Lenmon, I am sorry that you lost your husband to this terrible disease. We do need...

https://connect.mayoclinic.org/comment/826958/

Discussion: Where are they doing neuroendocrine cancer/lung research?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 16, 2023

I am so grateful for your response to my post,and the possible connection that we may...

https://connect.mayoclinic.org/comment/803945/

Discussion: Pancreatic NETs: Looking to connect with anyone with insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 30, 2023

Hello! Very naive here about where I have been and how concerned I should be. Maybe...

https://connect.mayoclinic.org/comment/758149/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 6, 2022

My 29 y.o. son was diagnosed w a 2.6 cm NET on his appendix following an...

https://connect.mayoclinic.org/comment/753126/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 23, 2022

Amen this rare disease can be very challenging but like you say we are still here...

https://connect.mayoclinic.org/comment/748499/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 12, 2022

Thank you for taking the time to respond, it is much appreciated. I will get her...

https://connect.mayoclinic.org/comment/744465/

Discussion: Support for Young Adult with carcinoid tumor on ovary

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 2, 2022

@phoebeghostwriter I'm really excited for you and others in our NET group to attend the Carcinoid...

https://connect.mayoclinic.org/comment/681226/

Discussion: What’s next: Seeking advice on how to navigate diagnosis appointments?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15, 2022

Neuroendocrine Tumors (NETs) Support Group