Neuroendocrine Tumors (NETs): Discussions | Page 73

Hi @helloitsme, your reaction to finding out you have NETs is normal. Even though NETs is...

https://connect.mayoclinic.org/comment/851198/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 29, 2023

Welcome @helloitsme, so glad you reached out to this group. I’m also glad to hear you’re...

https://connect.mayoclinic.org/comment/851440/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 29, 2023

A gentle reminder about the Community Guidelines https://connect.mayoclinic.org/blog/about-connect/tab/community-guidelines/#ch-tab-navigation In particular I'd like to point out guidelines...

https://connect.mayoclinic.org/comment/838930/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 6, 2023

What a remarkable story of your journey with paraganglioma, @patriciagsr. You have certainly been proactive in...

https://connect.mayoclinic.org/comment/857217/

Discussion: Paraganglioma / Carotid Body Tumor Question

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 9, 2023

@hopeful33250 , @heidilynn4 , sure happy to explain my experience with Carcinoid Syndrome. It was actually...

https://connect.mayoclinic.org/comment/137531/

Discussion: My Husband was newly diagnosed with Carcinoid Cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14, 2017

@heidilynn4 I am in a similar situation, with only surgery so far and fearful other small...

https://connect.mayoclinic.org/comment/137529/

Discussion: My Husband was newly diagnosed with Carcinoid Cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14, 2017

@hopeful33250 Teresa, I SO agree with you! I am SO clear that my disease is just...

https://connect.mayoclinic.org/comment/134605/

Discussion: Take Your Mind Off of Cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 1, 2017

@lucci50 Hello Ralph: I was thinking about you as you mentioned you lived in Michigan as...

https://connect.mayoclinic.org/comment/134521/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 23, 2017

@tresjur Thanks for all of the good information about the retreat, etc. I just attended the...

https://connect.mayoclinic.org/comment/102002/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 21, 2016

A support group would be helpful, I think. Just to compare treatments others are receiving. I...

https://connect.mayoclinic.org/comment/101984/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 11, 2016

@collielady Hello Faith, I'm sorry to hear that your family could not take advantage of the...

https://connect.mayoclinic.org/comment/275695/

Discussion: What topics do you want for the Neuroendocrine Support Group?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 9, 2019

This issue of learning to live with a possible cancer recurrence is a very difficult one...

https://connect.mayoclinic.org/comment/233059/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Sep 17, 2019

Hi @nenners Several people have talked about Opdivo for melanoma, lung cancer, kidney cancer, colorectal cancer...

https://connect.mayoclinic.org/comment/233466/

Discussion: Thymoma Cancer B3 stage 4: starting immunotherapy

Support Group: Cancer

Posted: Dec 9, 2018

The reason I am sharing this with you is because many of you have decided that...

https://connect.mayoclinic.org/comment/232754/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Dec 9, 2018

I had just recovered from my mastectomies and was pulling myself back together when my husband...

https://connect.mayoclinic.org/comment/232724/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Dec 8, 2018

@mollie59 Hello Mollie and welcome to Mayo Connect. We have several members in our NET group,...

https://connect.mayoclinic.org/comment/160161/

Discussion: Carcinoid Cancer of the Liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 15, 2017

Hi. My son has well differentiated, grade 2 NETs. He is currently only receiving monthly Lanreotide...

https://connect.mayoclinic.org/comment/163153/

Discussion: How to get a second opinion for an international patient??

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 16, 2017

Hello @tomewilson, As you can imagine the Plummer Project is a massive undertaking. Mayo Clinic has...

https://connect.mayoclinic.org/comment/178242/

Discussion: Plummer Project

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 13, 2017

Your positivity in the face of such adversity is in the SUPERHERO range. You have my...

https://connect.mayoclinic.org/comment/182058/

Discussion: Mayo Presentation at the Northwoods NETs group - 1/14/18

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25, 2018

I’m well. Thank you for checking. I just had a scan in Rochester that they said...

https://connect.mayoclinic.org/comment/879762/

Discussion: Should I see a NET specialist?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 16, 2023

Neuroendocrine Tumors (NETs) Support Group