Neuroendocrine Tumors (NETs): Discussions | Page 73

@rww1979, Joe Tippens protocol appears again and again in forums and social media. It is important...

https://connect.mayoclinic.org/comment/1295985/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 3 6:27pm

My NET started in the pancreas (though I don't have pancreatic cancer) and migrated to the...

https://connect.mayoclinic.org/comment/1150696/

Discussion: Straight to the liver: Anyone have NETs originating in strange areas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 2, 2024

Dr. Sonbol and his team saved my life. So, I am biased. By the time that...

https://connect.mayoclinic.org/comment/981090/

Discussion: NET symptoms despite follow-up lab work ok

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 15, 2023

Lenora, Thank you so much! My husband is actually PNET I guess? It started in his...

https://connect.mayoclinic.org/comment/669949/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 11, 2022

Welcome to Connect, @worriedlovingwife I am sorry that you found us under such stressful circumstances. I...

https://connect.mayoclinic.org/comment/292369/

Discussion: Multiple Endocrine Neoplasia 1 (MEN1): What treatments have you had?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 11, 2020

Hi all, hoping spring is good and well for you. I’m circling back to my post...

https://connect.mayoclinic.org/comment/1275884/

Discussion: Cu-64 Dotatate PET results show no malignancy. What’s next?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 6 5:38pm

I to had my first Lanreotide injection on July 6th after having pancreatic cancer surgery in...

https://connect.mayoclinic.org/comment/898534/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 19, 2023

@pokeymama: a 24hour urine test is beneficial in NET diagnosis. Gallium or Copper Dotatate PET scan...

https://connect.mayoclinic.org/comment/1265205/

Discussion: Diagnosis Frustrated: How you were diagnosed with NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 23 6:53pm

Thank you for your reply. Up until Wednesday’s Pet Scan I had approximately 6 liver lesions...

https://connect.mayoclinic.org/comment/1332359/

Discussion: Stage 4 grade2 Pancreatic Neuroendocrine ki67 20% Lanreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 21 11:33pm

I did have a good experience in NC. Duke is where my initial diagnosis and was...

https://connect.mayoclinic.org/comment/1037088/

Discussion: Does Mayo Clinic do insulinoma testing?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 20, 2024

I was diagnosed in Jan 2019 with a well-differentiated, functioning Net with a Ki-67 index of...

https://connect.mayoclinic.org/comment/1028134/

Discussion: Prognosis for Metastasized NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 5, 2024

Hello Theresa. Thank you for your interest in my daughter. I forgot to mention that my...

https://connect.mayoclinic.org/comment/793404/

Discussion: Newly diagnosed - neuroendocrine tumor in intestines

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 7, 2023

I am 48, well-diff, grade 3 (ki67 17-29), unknown primary with tumors in liver (innumerable), pancreas,...

https://connect.mayoclinic.org/comment/1117054/

Discussion: Everolimus for multiple Neuroendocrine tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 3, 2024

Hi Teresa, Hubs is currently stable. His treatment is the Sandostatin/Octreotide. It appears that when his...

https://connect.mayoclinic.org/comment/1270087/

Discussion: New Diagnosis: husband's labs are all indicating NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 30 11:31am

Hi there, I'll quote a doctor, any doctor... lol "everything in moderation". My hubs has stage...

https://connect.mayoclinic.org/comment/1231190/

Discussion: How does Alcohol use affect Liver NET?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 7 1:22am

Yes it was incidental, just like my original diagnosis. In April of 2017 we were in...

https://connect.mayoclinic.org/comment/877828/

Discussion: Anyone have a neuroendocrine tumor (NET) in the spine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 13, 2023

Hi Linda How did your scan go? Lots has happened since my last post. I had...

https://connect.mayoclinic.org/comment/837244/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 4, 2023

Hi @kt348 I had a similar experience during a endoscopic ultrasound of a liver biopsy. My...

https://connect.mayoclinic.org/comment/762551/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 18, 2022

I had surgery in 2016 (8-years ago) to remove tumor / mass at appendix and five...

https://connect.mayoclinic.org/comment/1142526/

Discussion: Diet restrictions with Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 16, 2024

Welcome to the group! To say the least insulinomas can be challenging! Every case is a...

https://connect.mayoclinic.org/comment/1113245/

Discussion: Pancreatic NETs: Looking to connect with anyone with insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 28, 2024

Neuroendocrine Tumors (NETs) Support Group