2,247 total results
Comments (2,056)
Wow! To all in this discussion. My husband is due to have his first liver debulking...
https://connect.mayoclinic.org/comment/771459/
Hi I’ve been living with carcinoid tumor now since 2011 when I first learned I had...
https://connect.mayoclinic.org/comment/747582/
My first MRI was Dec 2022 when I was diagnosed. PET Scan was January 2023 to...
https://connect.mayoclinic.org/comment/1165530/
I did lanreotide injections for about 3 years until it appeared that it was not as...
https://connect.mayoclinic.org/comment/1324845/
I started on Eberolimus 10mg daily March 2023. I developed mouth sores which bece more manageable...
https://connect.mayoclinic.org/comment/1117855/
Kim1965, I was very interesting to read about your wife’s case. Sounds very similar to mine...
https://connect.mayoclinic.org/comment/932191/
Hi, you have been through a lot, hoping you can find the answers you need. The...
https://connect.mayoclinic.org/comment/918714/
I’m so sorry you’re having all these problems! My NET was found in my cecum during...
https://connect.mayoclinic.org/comment/898113/
Hello, I had surgery in June to remove a tumor and then found out it spread...
https://connect.mayoclinic.org/comment/940026/
Hello I have had about 16 rounds of chemo..happening every two weeks. The primary tumor is...
https://connect.mayoclinic.org/comment/807274/
@keeper3102 Hi Lucy! I’m sorry I just saw your message now. Yes I’ll add you to...
https://connect.mayoclinic.org/comment/765123/
I was diagnosed with Carcinoid Cancer w/an unknown primary in 2003. For 3 years I was...
https://connect.mayoclinic.org/comment/746044/
Absolutely open to sharing. I was diagnosed originally in 2020 after a 30 day bout with...
https://connect.mayoclinic.org/comment/1292381/
Bob, To provide some additional information. . . I have had 2 surgeries - a modified...
https://connect.mayoclinic.org/comment/806975/
I have had three cycles, so far, of Lutathera, starting in December 2022. and have my...
https://connect.mayoclinic.org/comment/859738/
Hi Marlene [and all], I also live in Massachusetts and am going to Dana Farber. As...
https://connect.mayoclinic.org/comment/806596/
My sister was diagnosed with PNET. They went in to do the surgery to remove half...
https://connect.mayoclinic.org/comment/780856/
Hello @bubbledalmia and welcome to the NETs discussion on Mayo Connect. I can understand why you...
https://connect.mayoclinic.org/comment/1179413/
Digestion issues are different for everyone. I had about a yard of small intestine removed and...
https://connect.mayoclinic.org/comment/879118/
I haven’t had any problems with pain. My biggest problem is with Neuropathy in my hands...
https://connect.mayoclinic.org/comment/834575/
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