Neuroendocrine Tumors (NETs): Discussions | Page 70

Big delay in answering your questions...I believe both surgeries were modified whipples. In my case the...

https://connect.mayoclinic.org/comment/254911/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 5, 2019

@merpreb Found yesterday in the whole night that I was really feeling worried, apprehensive, and flat...

https://connect.mayoclinic.org/comment/232926/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Mar 30, 2019

Hope definitely is it, when I first was diagnosed with the thyroid cancer I met this...

https://connect.mayoclinic.org/comment/284792/

Discussion: I've had 3 cancers: Thyroid cancer, Lung Cancer and Breast Cancer

Support Group: Cancer

Posted: Dec 23, 2019

I do live in FL now. Just a few miles from Mayo. Hoping to get in...

https://connect.mayoclinic.org/comment/284202/

Discussion: Seeings your NETs tumors on Scans

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 24, 2019

Thanks so much! It was a really great experience and I loved meeting Dr. THor- he...

https://connect.mayoclinic.org/comment/271261/

Discussion: Possible NET with No Evidence of Tumor: Mediastinal Mass

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 30, 2019

@cctoo- Good morning- I'm so sorry that you are feeling lost. I have felt that way...

https://connect.mayoclinic.org/comment/232875/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Feb 22, 2019

I live in Louisville,KY. Just diagnosed with net on pancreas, following endoscopy with ultrasound. Pathology says...

https://connect.mayoclinic.org/comment/984672/

Discussion: Should I see a NET specialist?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 21, 2023

My chemotherapy was difficult to deal with, it wasn’t immediate but accumulative effects were challenging. Fatigue,...

https://connect.mayoclinic.org/comment/1025991/

Discussion: Atypical pulmonary carcinoid

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 2 9:41am

From reading through the postings you may want to visit Ronny Allen’s website. He lives in...

https://connect.mayoclinic.org/comment/1046292/

Discussion: Atypical carcinoid tumour of the lung

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 6 11:39am

That sounds like a tough recovery. I live about 1 1/2 to 2 hours from Mayo...

https://connect.mayoclinic.org/comment/990195/

Discussion: Questions I should ask before surgery for Lung NETs?

Support Group: Lung Cancer

Posted: Jan 2 10:03am

Thank you. So you live in the Bay Area? I am having a consult with Natalie...

https://connect.mayoclinic.org/comment/992623/

Discussion: Anyone have neuroendocrine tumor (NETs) of the breast?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 6 3:30pm

Hello, I have a stage 3 lung NET. I found a lot of good information on...

https://connect.mayoclinic.org/comment/998253/

Discussion: Statistics on progression free survival while on SSA / Lanreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 16 9:20am

After rangaling for a year between removing my left and living with tumors(3, 1 calcified), I've...

https://connect.mayoclinic.org/comment/1003342/

Discussion: Atypical Lung NET treated with radiation: What was your outcome?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25 7:01am

I have the same problem as you and always have low blood sugar syndrome. I tried...

https://connect.mayoclinic.org/comment/1088375/

Discussion: Pancreatic neuroendocrine insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 17 8:17am

Hi @dipnech67 I would be happy to speak with you. I just sent you a private...

https://connect.mayoclinic.org/comment/1055386/

Discussion: New DIPNECH diagnosis, need advice on doctors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 22 1:41pm

Thank you for getting back to me. UMASS. Net specialist are not helpful. 74 yrs old,...

https://connect.mayoclinic.org/comment/1054704/

Discussion: NET not found on PET/CT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 21 10:28am

Gig666, I am somewhat appalled that your docs didn't give you more options rather than just...

https://connect.mayoclinic.org/comment/1054944/

Discussion: NET not found on PET/CT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 21 7:44pm

Hello All: For those of you who have had surgery for NETs in the thoracic area...

https://connect.mayoclinic.org/comment/631580/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 31, 2021

I’m so sorry you’re going through this. I know it’s scary and there’s so much to...

https://connect.mayoclinic.org/comment/1112706/

Discussion: GI Net stage 4 advanced: Is it incurable?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 27 10:57am

Hello @lynn99 and welcome to Mayo Connect. When you say, "It's pretty scary" most of us...

https://connect.mayoclinic.org/comment/998813/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 17 8:11am

Neuroendocrine Tumors (NETs) Support Group