Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

1,626 total results

Comments (1,498)

Thank you for your comforting words. It has been a discouraging journey and over the years...

https://connect.mayoclinic.org/comment/791937/

Discussion: Frustrated with the medical establishment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 3, 2023

When I had my tumor removed, there was no talk about any other surgery than open....

https://connect.mayoclinic.org/comment/134718/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 10, 2021

Hello @ahtaylor Thank you for your response to both my question as well as responding to...

https://connect.mayoclinic.org/comment/607498/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 7, 2021

I live in Southern California and cannot find a specialist who Is experienced as the condition...

https://connect.mayoclinic.org/comment/607402/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 6, 2021

UPDATE On January 6 we met with the oncologist. They feel that it is likely that...

https://connect.mayoclinic.org/comment/329144/

Discussion: Small bowel NET and colon cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 8, 2021

Thank you for your response. Without going into a lot of detail right now this is...

https://connect.mayoclinic.org/comment/334984/

Discussion: Metanephrines and the beginning stages (in a way) of a tumor search

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14, 2021

@margaret2 I appreciate your update and I am sorry to hear of this recurrence of breast...

https://connect.mayoclinic.org/comment/246134/

Discussion: Gynecological neuroendocrine cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 25, 2019

@karendb- Start with the arm exercises, which are a the bottom of this list. Star with...

https://connect.mayoclinic.org/comment/232822/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Jan 12, 2019

Hi Cindy- I have heard from some other people their frustrations with the oncology departments when...

https://connect.mayoclinic.org/comment/232725/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Dec 8, 2018

@eewtao- You have been through a lot. And you are absolutely correct. Recurrence is a different...

https://connect.mayoclinic.org/comment/232713/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Dec 8, 2018

My dogs are my very dearest friends and companions. Wouldn’t have made it as well as...

https://connect.mayoclinic.org/comment/233079/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Sep 20, 2019

I found I had less tolerance for meaningless small talk. I never did the why me...

https://connect.mayoclinic.org/comment/233075/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Sep 19, 2019

Welcome to the NETs group on Mayo Clinic Connect, @amandafl. This is so exciting to have...

https://connect.mayoclinic.org/comment/134541/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 19, 2019

I am 77 ......energy comes in waves....some times more spoons, other times its an effort to...

https://connect.mayoclinic.org/comment/176723/

Discussion: Anyone treated for NETs at Mayo Clinic in Jacksonville, FL

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 9, 2019

I have a Neuro Endocrine Tumor of the Pancreas. 9-6-2019 second CT Scan SHOWED NEGATIVE GROWTH...

https://connect.mayoclinic.org/comment/275675/

Discussion: What topics do you want for the Neuroendocrine Support Group?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 8, 2019

@susandc- I absolutely agree. There is absolutely no reason to supress any of these emotions, for...

https://connect.mayoclinic.org/comment/233007/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Aug 29, 2019

You are beautiful. I guess in answer to your question, I live with my “new normal”....

https://connect.mayoclinic.org/comment/232961/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Jul 8, 2019

Thank you. Yes, I get them all the time, from that day to this. I have...

https://connect.mayoclinic.org/comment/265606/

Discussion: Have you ever had hiccups with or after chemotherapy?

Support Group: Cancer: Managing Symptoms

Posted: Jun 14, 2019

Hello @amilucky, Yes knowing that others care and are concerned is important when you are faced...

https://connect.mayoclinic.org/comment/264633/

Discussion: Help: What is a cancer symptom or not? Who to see?

Support Group: Cancer: Managing Symptoms

Posted: Jun 5, 2019

@alamogal635- I'd like to say stop this but I know your history about trust. How about...

https://connect.mayoclinic.org/comment/232940/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Apr 10, 2019

Pancreatic Cancer

Follow

2233

4 hours ago

Follow

1228

4 hours ago

Follow

6927

6 hours ago

Follow

5510

7 hours ago

Digestive Health

Follow

12621

8 hours ago