Neuroendocrine Tumors (NETs) Support Group

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Welcome to Mayo Connect, @glenkinman68 I am glad that you have joined our NETs discussion group....

https://connect.mayoclinic.org/comment/134547/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 21, 2019

First let me say I'm sorry you had to join this group. The good news is...

https://connect.mayoclinic.org/comment/1285920/

Discussion: Son, 48 diagnosed with PNET pancreatic cancer 8cm tail & spleen

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 20 9:19am

@vanhauen, Hello Nancy, and welcome to the NETs support group on Mayo Connect. I appreciate you...

https://connect.mayoclinic.org/comment/1200473/

Discussion: Anyone have a neuroendocrine tumor (NET) in the spine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 30, 2024

Hi Kim I posted about Histrotripsy a while ago, but more info comes out every day....

https://connect.mayoclinic.org/comment/1146088/

Discussion: PRRT side effects and results

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 23, 2024

Right now I’m being seen at Johns Hopkins. Because of a developing bowel obstruction the procedures...

https://connect.mayoclinic.org/comment/834012/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 29, 2023

Hello @marifersitacastro, I am glad that you are seeking out help for your dad as he...

https://connect.mayoclinic.org/comment/612492/

Discussion: July's Neuroendocrine Support Group

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 29, 2021

@tomewilson Hi Tom: I have not heard that this test is no longer use. I still...

https://connect.mayoclinic.org/comment/135493/

Discussion: The role of Tumor Marker Labs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 8, 2017

I would be curious to know what research you did that pointed you to Mayo? I...

https://connect.mayoclinic.org/comment/85560/

Discussion: Anyone gone to Mayo Clinic in Rochester Minnesota for carcinoid tumors?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 8, 2017

Hi Colleen, My cancer is neuroendocrine small cell carcinoma originating in the gut and metastases to...

https://connect.mayoclinic.org/comment/1071318/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 20, 2024

Hi Jlu, So how was your 1st Lutathera treatment? Any side affects? My hubs had his...

https://connect.mayoclinic.org/comment/898367/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 19, 2023

My sister returned to hospital on Tuesday with severe chest pain . They were afraid of...

https://connect.mayoclinic.org/comment/1021153/

Discussion: Atypical pulmonary carcinoid

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 23, 2024

Hi @donnarushing55 I’m sorry you’re going through this. Even if you were comfortable with a specialists...

https://connect.mayoclinic.org/comment/1000560/

Discussion: PNET on tail of pancreas with numerous bilobar hepatic metastases

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 20, 2024

It great your doctor reviewed the options you have, but the doctor wants you to choose?...

https://connect.mayoclinic.org/comment/899570/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 21, 2023

Hello everyone 6/28/22 I have been diagnosed with pancreatic cancer stage 4... My stomach kept burning...

https://connect.mayoclinic.org/comment/799155/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 20, 2023

Hi Teresa, I had a tiny NET found in my rectum on my first colonoscopy. It...

https://connect.mayoclinic.org/comment/1170587/

Discussion: NET of the Rectum: Anyone at Mayo Jacksonville? What can I expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 9, 2024

Hi Chaplain Dan, Your wife’s initial case is similar in many ways to mine… 12 years...

https://connect.mayoclinic.org/comment/1250290/

Discussion: New and concerned about my wife.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 4 11:30am

My initial biopsy said metastatic neuroendocrine carcinoma. Indicating stage 4 and the origin being somewhere else....

https://connect.mayoclinic.org/comment/1148328/

Discussion: Straight to the liver: Anyone have NETs originating in strange areas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 27, 2024

Hello @ beaglebass! My pNET is functioning, so my story may not be too close to...

https://connect.mayoclinic.org/comment/1065411/

Discussion: Grade 1 Non-functioning (NF) NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 10, 2024

Greetings! Thanks for the post. I am happy to connect with you. I have been dealing...

https://connect.mayoclinic.org/comment/799602/

Discussion: Pancreatic NETs: Looking to connect with anyone with insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 21, 2023

Hi I feel every bite of your trails I traveled almost the same road , misdiagnosed...

https://connect.mayoclinic.org/comment/792778/

Discussion: Frustrated with the medical establishment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 5, 2023

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