Neuroendocrine Tumors (NETs): Discussions | Page 68

@bnjncrew - welcome to the NET insulinoma group. There are several on or around this page...

https://connect.mayoclinic.org/comment/831029/

Discussion: Neuroendocrine Insulinoma: Is treatment different for this type?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 24, 2023

I had liver scans & surgery as a first step since I had been undiagnosed to...

https://connect.mayoclinic.org/comment/789953/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 29, 2022

Three tests were done - Sept 2015, April 2016 and Oct 2016. The Sept 2015 showed...

https://connect.mayoclinic.org/comment/283430/

Discussion: NETest from WREN Labs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 23, 2020

Hi Anita, Thanks for your story. And sorry, but welcome to the “club”. Sounds like you...

https://connect.mayoclinic.org/comment/1355169/

Discussion: My journey to here...

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 24 8:11am

He was diagnosed in December 2019, had surgery in March 2020, I think the first six...

https://connect.mayoclinic.org/comment/899229/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 20, 2023

My condition is similar stage 4 due to it metastasizing to the liver, origin is the...

https://connect.mayoclinic.org/comment/1106025/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 15, 2024

It took me years to come across my own course of action. And my doctors were...

https://connect.mayoclinic.org/comment/1011819/

Discussion: Prognosis for Metastasized NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 8, 2024

They map your liver about 30 days before the treatment I have tumors on both sides...

https://connect.mayoclinic.org/comment/1039825/

Discussion: Anyone have experience with "functioning" Pancreatic NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25, 2024

The same week I met with the Dr at Dana Farber the first of September 2022...

https://connect.mayoclinic.org/comment/885611/

Discussion: Feeling discouraged and too many specialists

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 26, 2023

Thank you for reaching out. I am a patient of Dr. Jason Starr at Mayo in...

https://connect.mayoclinic.org/comment/831954/

Discussion: Anyone treated for NETs at Mayo Clinic in Jacksonville, FL

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25, 2023

Hello @wdd18054 I appreciate your post. I am Teresa and a volunteer mentor with Connect. I...

https://connect.mayoclinic.org/comment/186230/

Discussion: Multiple abnormal hormone levels - Could it be autoimmune related?

Support Group: Autoimmune Diseases

Posted: Feb 23, 2018

Was it a PET Dotatate scan he had? That's the one my Doc uses to find...

https://connect.mayoclinic.org/comment/1248357/

Discussion: New Diagnosis: husband's labs are all indicating NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 1 10:54pm

Thanks for the reminder to fill you in. I did ask my IR who did my...

https://connect.mayoclinic.org/comment/957412/

Discussion: Anyone heard about Histotripsy for liver NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 1, 2023

Finding out you may have a net is a hard thing to deal with! Stay positive...

https://connect.mayoclinic.org/comment/1226616/

Discussion: New Diagnosis: husband's labs are all indicating NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 1 3:30am

Have you had a PET scan? 60% of the time NETs have spread before they find...

https://connect.mayoclinic.org/comment/1204646/

Discussion: Can anyone share information about NET in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 5 1:39pm

Hi, I found it during colonoscopy. It showed up as 2cm polyp so close to my...

https://connect.mayoclinic.org/comment/1054489/

Discussion: Large Appendiceal NET, well-differentiated

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 20, 2024

Hi vtn. I agree with what has been previously said. You have some people in here...

https://connect.mayoclinic.org/comment/859271/

Discussion: Just diagnosed with PNET: Any thoughts on watch & wait approach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 13, 2023

I was diagnosed with nets in April of 2020. The nets were in my right lung....

https://connect.mayoclinic.org/comment/1269123/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 29 7:04am

Hi, @matt2024 ! Thank you for reaching out! I am "almost"vegetarian- very little meat and ear...

https://connect.mayoclinic.org/comment/1084252/

Discussion: Grade 1 Non-functioning (NF) NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 10, 2024

In partial response to one of your latter questions. I am on Octreotide or Sandostatin as...

https://connect.mayoclinic.org/comment/896094/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 15, 2023

Neuroendocrine Tumors (NETs) Support Group