Neuroendocrine Tumors (NETs) Support Group

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Thursday, November 18, from 12 noon until 1 p.m. EST. Dr. Chandrasekharan, an oncologist from the...

https://connect.mayoclinic.org/comment/654417/

Discussion: Learn About NETs and monthly meetings

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 15, 2021

Many of you mentioned the role of the pharmacist as part of your care team and...

https://connect.mayoclinic.org/comment/196566/

Discussion: Overmedication with cancer and other conditions

Support Group: Head & Neck Cancer

Posted: Apr 19, 2018

Tomorrow, August 10, the Carcinoid Cancer Foundation (CCF) will be hosting a Facebook Live Event. As...

https://connect.mayoclinic.org/comment/910080/

Discussion: Learn About NETs and monthly meetings

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 9, 2023

I ve had awareness of my PANCREATIC NET for a year plus. Rare, with established core...

https://connect.mayoclinic.org/comment/257018/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 22, 2020

So glad that you found this video helpful. If you go to YouTube you will find...

https://connect.mayoclinic.org/comment/902641/

Discussion: What do I need to know about NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 26, 2023

@ralvarez38 My daughter’s Endocrinologist was Dr. Mary Lee Vance at UVA in Charon, VA. Amazing. She...

https://connect.mayoclinic.org/comment/923306/

Discussion: Pituitary tumor symptoms: joint, muscle and body aches

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 3, 2023

I am also facing distal pancreatectomy with spleen removal and possible gall bladder removal. I was...

https://connect.mayoclinic.org/comment/853193/

Discussion: New diagnosis of NET: What should I know and do to plan?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 2, 2023

Hello @newnet and welcome to the NETs support group on Mayo Connect. I'm glad that you...

https://connect.mayoclinic.org/comment/941555/

Discussion: Octreoscan/Ga-68 DOTATATE PET/CT -- Where to go?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 4, 2023

I am so sorry for her pain, but it is not unusual. However, it does subside...

https://connect.mayoclinic.org/comment/934820/

Discussion: Carcinoid syndrome; NET not found

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 23, 2023

Thanks for thinking of us! Thoughtful of you, and appreciated. Right now I have no symptoms...

https://connect.mayoclinic.org/comment/910889/

Discussion: Neuroendocrine cells in Breast and Lungs DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 10, 2023

My CAPTEM treatment was the same minus the injections. The last two months have only been...

https://connect.mayoclinic.org/comment/956992/

Discussion: Is everyone with pNETs on creon?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 31, 2023

I had my pituitary surgery x2, 20 years ago, and was told there is no correlation,...

https://connect.mayoclinic.org/comment/966098/

Discussion: Pituitary tumor symptoms: joint, muscle and body aches

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 16, 2023

I can only respond with my own experience. But first off am sending both sympathy and...

https://connect.mayoclinic.org/comment/953249/

Discussion: Anyone have neuroendocrine tumor (NETs) of the breast?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 24, 2023

When reading your active surveillance that makes sense if my health and tumor are being watched....

https://connect.mayoclinic.org/comment/698101/

Discussion: Metastatic Poorly Differentiated small cell neuroendocrine Carcinoma,

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 11, 2022

Hello, i know i have posted here before. it was a while ago i believe my...

https://connect.mayoclinic.org/comment/819254/

Discussion: Linear endocrine cells hyperplasia & Autoimmune Gastritis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 1, 2023

Memorial Sloan Kettering rocks in general. Lots of great people. After my surgery, there were no...

https://connect.mayoclinic.org/comment/812183/

Discussion: Scared - Suspected NET on tail of the pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15, 2023

Good luck to your wife. I’ve had chemo too, but not the pill. Had injections every...

https://connect.mayoclinic.org/comment/810971/

Discussion: Scared - Suspected NET on tail of the pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 13, 2023

Wow, sounds like your son has had a really rough go. I’m sorry to hear that...

https://connect.mayoclinic.org/comment/810108/

Discussion: determination of primary site of NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 12, 2023

Hi Colleen, thank you for your kind words. We are currently trying to get him an...

https://connect.mayoclinic.org/comment/809793/

Discussion: determination of primary site of NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 11, 2023

Greetings....I am still standing and living a normal life at 85 with my disease in the...

https://connect.mayoclinic.org/comment/801669/

Discussion: Neuroendocrine Lung stage 4B with metastasis in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25, 2023

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