Neuroendocrine Tumors (NETs): Discussions | Page 67

Thanks so much! I’m going to look at one respite care/assisted living facility this weekend -...

https://connect.mayoclinic.org/comment/1074103/

Discussion: What’s the best care option for live alone senior during radiation?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 24 10:55pm

Hi. In December 2019 I had a biopsy that showed I had a 2cm non-functioning malignant...

https://connect.mayoclinic.org/comment/1067425/

Discussion: Grade 1 Non-functioning (NF) NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 13 6:43pm

Most people have replied about CgA. I live in Uk and have grade 1, small bowel...

https://connect.mayoclinic.org/comment/1091150/

Discussion: What is a normal range for Chromogranin A test? Mine was 99 in 2021.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 21 12:14pm

The Whipple procedure involves the resection of the head of the pancreas. This section is where...

https://connect.mayoclinic.org/comment/985469/

Discussion: Weight Loss after Whipple: What strategies helped you?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 23, 2023

Welcome, @mrsdit. Indeed. To help you meet other members living with merkel cell carcinoma, I moved...

https://connect.mayoclinic.org/comment/1073748/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 24 9:44am

@rogo, I believe you are referring to lung carcinoid tumors with Diffuse Idiopathic Pulmonary NeuroEndocrine Cell...

https://connect.mayoclinic.org/comment/1070380/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 18 2:04pm

Just going to say that I just finished my first week at Mayo and was SO...

https://connect.mayoclinic.org/comment/837793/

Discussion: Anyone gone to Mayo Clinic in Rochester Minnesota for carcinoid tumors?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 4, 2023

I live in Kissimmee I had made multiple trips and tomorrow need to stay at Jacksonville...

https://connect.mayoclinic.org/comment/772860/

Discussion: Might we have to Travel Twice to Mayo?

Support Group: Visiting Mayo Clinic

Posted: Nov 14, 2022

I had a lobectomy. They did not crack my ribs to do it. They did it...

https://connect.mayoclinic.org/comment/775975/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 21, 2022

@outlawcancer, It sounds like you have been working on this diagnosis for a while, now. This...

https://connect.mayoclinic.org/comment/782731/

Discussion: Anyone out there have PNET experiences and outcomes to share?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 9, 2022

@netpatient Hello Shakirat and to all members. I missed this live presentation as well, so I'm...

https://connect.mayoclinic.org/comment/682973/

Discussion: What’s next: Seeking advice on how to navigate diagnosis appointments?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 21, 2022

Hello All: I'm really excited for you all to attend the Carcinoid Cancer Foundation's Meet the...

https://connect.mayoclinic.org/comment/681092/

Discussion: Learn About NETs and monthly meetings

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15, 2022

@sebley12 I have had three carcinoid lesions removed since 2003, however, I have never experienced carcinoid...

https://connect.mayoclinic.org/comment/110436/

Discussion: Carcinoid Syndrome & Autoimmune Diseases.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 22, 2016

Ralph: If you live in Michigan you might already be aware of a Carcinoid Support Group. ...

https://connect.mayoclinic.org/comment/101982/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 11, 2016

thank-you i have been looking for someone that specializes in carcinoid tumors in the michigan area...

https://connect.mayoclinic.org/comment/101979/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 10, 2016

Hello Teresa and thank you for having me! I have had symptoms, but, as many people,...

https://connect.mayoclinic.org/comment/870403/

Discussion: Paraganglioma / Carotid Body Tumor Question

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 1, 2023

So sorry that you are going through this. Have you tried other hospital systems that could...

https://connect.mayoclinic.org/comment/874394/

Discussion: Neuroendocrine tumor and carcinoid tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 7, 2023

I am new to the group. My husband who is 62 years old starting having problems...

https://connect.mayoclinic.org/comment/887852/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 30, 2023

@debf I appreciate the information and I'm so glad that your son is living the life...

https://connect.mayoclinic.org/comment/152972/

Discussion: Use of Adrenaline/Epinephrine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 5, 2017

Dbamos1945 and bubbles 2023 - Dbamos, your response struck a cord with me as your response...

https://connect.mayoclinic.org/comment/885814/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 26, 2023

Neuroendocrine Tumors (NETs) Support Group