Neuroendocrine Tumors (NETs): Discussions | Page 1

Money is a huge problem. I've been disabled for 20 years, which hit us hard economically....

https://connect.mayoclinic.org/comment/1228008/

Discussion: Already on oxygen - diagnosed with DIPNECH: What happens next?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 2 6:42pm

Hello Hopeful33250. Thank you so much for your replies! I will keep you in my prayers...

https://connect.mayoclinic.org/comment/1236092/

Discussion: I have recently been diagnosed with my third neuroendocrine tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 13 1:37pm

@elgie17 I literally just did the 24 hour pee test. My husband took it in this...

https://connect.mayoclinic.org/comment/1232411/

Discussion: Just diagnosed Paraganglioma - how to treat side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 8 3:11pm

Hello @hunts1014 My original lesion was found during a routine upper endoscopy. My first two surgeries...

https://connect.mayoclinic.org/comment/1234763/

Discussion: I have recently been diagnosed with my third neuroendocrine tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 11 7:19pm

Thank you. I'm originally from Kenosha. But currently living in Charleston SC. Good luck. And fed...

https://connect.mayoclinic.org/comment/1231756/

Discussion: New Diagnosis: husband's labs are all indicating NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 7 4:31pm

Hello @hans051275 and welcome to the NETs support group on Mayo Connect. I agree with @dbamos1945...

https://connect.mayoclinic.org/comment/1242537/

Discussion: I recently had surgery to remove NET in small intestine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 21 5:53pm

Sounds like you're feeling really good, which is awesome. I suspect you can go to a...

https://connect.mayoclinic.org/comment/1221351/

Discussion: Cu-64 Dotatate PET results show no malignancy. What’s next?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25 11:29am

Hi, I know this is an older post but I have just been diagnosed with paraganglioma...

https://connect.mayoclinic.org/comment/1231874/

Discussion: Paraganglioma / Carotid Body Tumor Question

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 7 8:48pm

Hello how are you? I'm sorry you had to go through this. I tell you, my...

https://connect.mayoclinic.org/comment/1237580/

Discussion: Diagnosed with NET si-NET Stage 1 Grade 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15 12:48pm

Santa Barbara is beautiful. I've lived all over southern California.

https://connect.mayoclinic.org/comment/1228166/

Discussion: Histotripsy near St. Louis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 3 12:00am

I am so sorry to hear about your son. The word cancer is very scary. If...

https://connect.mayoclinic.org/comment/1230250/

Discussion: Adrenocortical carcinoma (ACC) outcomes: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 5 4:53pm

I'm in the same boat. Well differentiated, had small bowel resection, still have a mass and...

https://connect.mayoclinic.org/comment/1236191/

Discussion: I recently had surgery to remove NET in small intestine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 13 3:52pm

Hi, Thank you so much for this long share. I really appreciate it. Your husband struck...

https://connect.mayoclinic.org/comment/1231602/

Discussion: New Diagnosis: husband's labs are all indicating NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 7 1:13pm

I was diagnosed December 28th, 2024. I was having chronic pain on my left side. Went...

https://connect.mayoclinic.org/comment/1227882/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 2 3:58pm

Hello, I am feeling fine except for a 20 lb weight gain that seemed to happen...

https://connect.mayoclinic.org/comment/1242864/

Discussion: New Diagnosis: husband's labs are all indicating NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 22 9:11am

Me. 2.5 years since diagnosis and not only surviving, I am thriving. I am but a...

https://connect.mayoclinic.org/comment/1225015/

Discussion: 68Ga DOTATATE Positron Emission Tomography (PET) at Mayo Clinic

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 29 8:34pm

Why did you have a CT/Pet in the first place? Did or do you have symptoms?...

https://connect.mayoclinic.org/comment/1264349/

Discussion: Anyone have a neuroendocrine tumor in small intestine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 22 4:49pm

That's been my fear all along. I was not as enthusiastic about Watchful Waiting as my...

https://connect.mayoclinic.org/comment/1232215/

Discussion: Paraganglioma / Carotid Body Tumor Question

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 8 11:30am

I live in NY. My surgeon is at MSKCC. Mine was discovered 3 years ago. I...

https://connect.mayoclinic.org/comment/1232620/

Discussion: Paraganglioma / Carotid Body Tumor Question

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 8 9:03pm

Thanks for letting me know all that . I was actually asking though how long ago...

https://connect.mayoclinic.org/comment/1238185/

Discussion: Diagnosed with NET si-NET Stage 1 Grade 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 16 10:42am

Neuroendocrine Tumors (NETs) Support Group