Neuroendocrine Tumors (NETs) Support Group

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I got a second opinion from MD Anderson's Neuroendocrine research doctors who also recommended Everolimus. My...

https://connect.mayoclinic.org/comment/1118230/

Discussion: Everolimus for multiple Neuroendocrine tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 5, 2024

I just had my what has become a yearly as opposed to every three to six...

https://connect.mayoclinic.org/comment/854136/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 4, 2023

Hello @lovemyfamtopieces72 and welcome to the NETs Support Group on Mayo Connect. I see that two...

https://connect.mayoclinic.org/comment/1112748/

Discussion: GI Net stage 4 advanced: Is it incurable?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 27, 2024

Welcome to the group! Insulinoma diagnosis can be tricky. In brief, I was diagnosed in 2015...

https://connect.mayoclinic.org/comment/889522/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 3, 2023

I was diagnosed almost 2 years ago with NET primary pancreas that metastasized to liver(over 100)...

https://connect.mayoclinic.org/comment/859321/

Discussion: TACE Procedure: What is it like?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 13, 2023

I was scheduled for an incisional hernia repair and removing the adrenal tumor and gland was...

https://connect.mayoclinic.org/comment/1231115/

Discussion: Adrenocortical carcinoma (ACC) outcomes: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 6 8:38pm

Hello Audra, Let me introduce myself....I am Mary, and was diagnosed with Carcinoid Syndrome (with liver...

https://connect.mayoclinic.org/comment/184521/

Discussion: Carcinoid Cancer and working

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14, 2018

Hello @jatx25 and welcome to Connect and the "NET world" as you so aptly describe it....

https://connect.mayoclinic.org/comment/753020/

Discussion: Questions on Recurrence & Likelihood of Multiple NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 23, 2022

Yes I have had one discovered about two years ago with a heart MRI. It was...

https://connect.mayoclinic.org/comment/907604/

Discussion: Has anyone had NETs metastasized to heart?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 4, 2023

I have LiverNET and receive a CT and PET scan every 90 days. Here is some...

https://connect.mayoclinic.org/comment/1218736/

Discussion: MRI or CatScan as follow up imaging for metastatic liver tumor?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 22 8:27am

Hello @gtassithomas I see that this is your first post in the NET discussion group. I...

https://connect.mayoclinic.org/comment/260957/

Discussion: Carcinoid syndrome symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 2, 2019

Hello! My name is Karla and I live in SW MO near Branson. I’m 52 years...

https://connect.mayoclinic.org/comment/787752/

Discussion: Anyone out there have PNET experiences and outcomes to share?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 22, 2022

Wow! Let me saw that I was treated like a rock star at Mayo in Jacksonville....

https://connect.mayoclinic.org/comment/770718/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 8, 2022

Hello, Thanks for reaching out. Truthfully? I am lost. I think I am okay, other than...

https://connect.mayoclinic.org/comment/758341/

Discussion: Paraganglioma / Carotid Body Tumor Question

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 7, 2022

Thank you and congratulations on living with this monster. I am USUALLY an upbeat optimistic person...

https://connect.mayoclinic.org/comment/881074/

Discussion: Diagnosed with Stage 4 pNET: What should I know?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 19, 2023

I have been dealing with carcinoid tumors for 19 and a half years and am a...

https://connect.mayoclinic.org/comment/772394/

Discussion: Prognosis for Metastasized NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 12, 2022

Oops I forgot to repost my thread about my journey before sending the last message to...

https://connect.mayoclinic.org/comment/1239033/

Discussion: New Diagnosis: husband's labs are all indicating NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 17 10:07am

After a lot of tests, scans and different doctors over the course of the last year,...

https://connect.mayoclinic.org/comment/912620/

Discussion: Anyone with an insulinoma have only therapies instead of surgery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 14, 2023

In 2019 I had to have a pet scan because I was having liver issues -...

https://connect.mayoclinic.org/comment/1056651/

Discussion: Lung nodule could be slow growing carcinoid: Watch and wait is scary

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 24, 2024

Thank you! I was going to attend the zoom last night but ended up being in...

https://connect.mayoclinic.org/comment/907702/

Discussion: Anyone with an insulinoma have only therapies instead of surgery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 4, 2023

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