Neuroendocrine Tumors (NETs): Discussions | Page 65

This site was given to me at Mayo's in Mn.. I am sooo glad to be...

https://connect.mayoclinic.org/comment/134546/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 21, 2019

I totally sympathize with your situation. Its frustrating to not have the answers you need. But...

https://connect.mayoclinic.org/comment/1337015/

Discussion: Y90 AND Captem Combo

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 28 10:59am

I had a Whipple at Mayo Rochester in October 2024 as well and my scan last...

https://connect.mayoclinic.org/comment/1260581/

Discussion: Pancreatic Cancer: Anyone have liver metastasis after Whipple?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 17 6:00pm

Yes I have read the Pet scan myself. No exact measurements. Existing hepatic lesions have shown...

https://connect.mayoclinic.org/comment/1333735/

Discussion: Stage 4 grade2 Pancreatic Neuroendocrine ki67 20% Lanreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 23 6:31pm

Hello @matt2024 ! I too have pNET but with liver metastases. Had distal pancreatectomy ( with...

https://connect.mayoclinic.org/comment/1082347/

Discussion: Grade 1 Non-functioning (NF) NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 7, 2024

@margaret12 Depending on the type of imaging (MRI, CT), my liver lesions have been described as...

https://connect.mayoclinic.org/comment/830370/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 22, 2023

Thanks or reaching out to me. I am being seen by a medical oncologist at University...

https://connect.mayoclinic.org/comment/827264/

Discussion: Lanreotide Manufacturers: anyone have experience with either?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 16, 2023

I never heard of that test I have to google that , what I can tell...

https://connect.mayoclinic.org/comment/768133/

Discussion: Newly diagnosed - neuroendocrine tumor in intestines

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 1, 2022

My NET’s were discovered by my gastroenterologist during reviewing a CT scan after I had a...

https://connect.mayoclinic.org/comment/1177879/

Discussion: How many doctors did you see to get to your NETS diagnosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 22, 2024

Phyllisden, thank you for the information. At this time, I will continue with no diet restrictions...

https://connect.mayoclinic.org/comment/1148212/

Discussion: Diet restrictions with Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 27, 2024

@merpreb Merry, Thanks for asking, I'm doing OK, right now. I need to have an upper...

https://connect.mayoclinic.org/comment/232764/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Dec 10, 2018

Looking back, I had symptoms of severe diarrhea 5 years before diagnosis. Nightime diarrhea including incontinence....

https://connect.mayoclinic.org/comment/1202313/

Discussion: Anyone have a neuroendocrine tumor (NET) in the spine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 2 9:52am

Hi Teresa. Thanks for the nice welcome! As a result of elevated Alk P in my...

https://connect.mayoclinic.org/comment/907216/

Discussion: Looking for information on CAPTEM treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 3, 2023

I have had Scans read wrong I think private places don’t really know what they are...

https://connect.mayoclinic.org/comment/1184710/

Discussion: What causes differences in reading of CAT Scan and MRI imaging?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 5, 2024

Hi, Mark, I was diagnosed in 2007 with a carcinoid tumor that had wrapped around several...

https://connect.mayoclinic.org/comment/809267/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 10, 2023

Hi Mark: I have commented before about my experience with PRRT, so will try not to...

https://connect.mayoclinic.org/comment/807548/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 7, 2023

Looks like the last time I posted was in May 2024. Things have definitely changed. Back...

https://connect.mayoclinic.org/comment/1363732/

Discussion: Questions Regarding Results after PRRT Treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 4 3:52pm

Another update on son: Functional tumor Glucagonoma tumor Well differentiate Cga 252 Pancreatic polypeptide 162 (normal)...

https://connect.mayoclinic.org/comment/1295972/

Discussion: Son, 48 diagnosed with PNET pancreatic cancer 8cm tail & spleen

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 3 5:53pm

Just found this. I can’t remember if I posted anything about this or not, bad memory....

https://connect.mayoclinic.org/comment/1307611/

Discussion: Anyone have swelling with liver metastases?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 19 10:08am

I’m not sure why things are offered in a different order Some things I read say...

https://connect.mayoclinic.org/comment/956820/

Discussion: Is everyone with pNETs on creon?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 31, 2023

Neuroendocrine Tumors (NETs) Support Group