Neuroendocrine Tumors (NETs) Support Group

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Thanks for your post. Can you tell me how old your wife is please? I had...

https://connect.mayoclinic.org/comment/1075303/

Discussion: newly diagnosed pNET on tail of pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 26, 2024

Absolutely, I apologize for not explaining it better. At our initial diagnosis of NETwe we’re terrified...

https://connect.mayoclinic.org/comment/933208/

Discussion: Diagnosed with Stage 4 pNET: What should I know?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 20, 2023

I agree. Im 55yrs old. I was 185lbs when i started my once a month Lanreotide...

https://connect.mayoclinic.org/comment/860207/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 15, 2023

I had a follow up with the Oncologist earlier this week. I inquired about a NET...

https://connect.mayoclinic.org/comment/835888/

Discussion: Newly diagnosed-Primary Malignant Neuroendocrine of Lung

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 1, 2023

size doesn't really matter, it depends more on the type of cancer in the lung. They...

https://connect.mayoclinic.org/comment/815650/

Discussion: What tumor size is typical for removing part of the lung?

Support Group: Lung Cancer

Posted: Feb 22, 2023

Hello Tom: - many thanks The term "somatostatin receptor type 2A": I read about this in...

https://connect.mayoclinic.org/comment/808601/

Discussion: PRRT has been approved by the FDA Jan 26, 2018, as expected

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 9, 2023

Teresa: My wife Sharon has recently had a C/T which showed additional lesions in the liver...

https://connect.mayoclinic.org/comment/800327/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 22, 2023

After 7 cycles of the above chemo (pills) treatment, our Cancer Care Team at Froedert Hospital...

https://connect.mayoclinic.org/comment/781681/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 6, 2022

Hello @cottagepeople! My pancreatic NET was found during an EUS for a liver biopsy! I was...

https://connect.mayoclinic.org/comment/775334/

Discussion: Investigations for pancreatic lesions, NETs? Confused and concerned

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 20, 2022

Hi- the extensive surgery I had was a right hemicolotomy. I which takes out all of...

https://connect.mayoclinic.org/comment/102022/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 14, 2016

Erin. Thanks for telling me about Dotatate. It's the first I've heard of it. It sounds...

https://connect.mayoclinic.org/comment/1256413/

Discussion: Diagnosing small bowel NETs with carcinoid syndrome

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 12 3:28pm

I understand your fear of what’s to come I’m a NET survivor first diagnosed in September...

https://connect.mayoclinic.org/comment/777324/

Discussion: Merkel cell-radiation effective on chest-new 2 cm spot on liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 25, 2022

Hi I had surgery in Australia in a regional town 3 years ago had 1.5m of...

https://connect.mayoclinic.org/comment/1310494/

Discussion: Primary Small Bowel NETS, Liver Mets

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 22 3:09pm

Rogerstc, I don't think you've had a recurrence per se. I think you have Neuroendocrine cancer...

https://connect.mayoclinic.org/comment/1255707/

Discussion: New Diagnosis: husband's labs are all indicating NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 11 3:48pm

I wouldn’t mind at all but it’s lengthy 😁 2008-At Stanford Specialists:Distal pancreatectomy with splenectomy 2009-Began...

https://connect.mayoclinic.org/comment/978180/

Discussion: Found PNET on tail of pancreas but told it’s nonfunctional

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 10, 2023

The blood tests are supposed to help diagnose. There is a bunch, your arms will be...

https://connect.mayoclinic.org/comment/971087/

Discussion: Anyone had nauseous, gas burping as symptoms for NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 27, 2023

Hello, ginnym3! I went to debulking surgery for a large pancreatic tumour (20×16 cm) with liver...

https://connect.mayoclinic.org/comment/966535/

Discussion: Any tips about Cytoreductive, debulking Surgery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 17, 2023

Thank you for this up date. I was diagnosed July 2022..have had chemo-Fo-flox every two weeks...

https://connect.mayoclinic.org/comment/867436/

Discussion: Life expectancy with NETs and lifetyle as it progresses

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 27, 2023

Hang in there @ahilker! I had similar situation, no primary site discovered during surgery, pNET debulked,...

https://connect.mayoclinic.org/comment/866356/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25, 2023

Thank you, yes that is me and my passion that the pain keeps me from. I...

https://connect.mayoclinic.org/comment/733482/

Discussion: Pituitary and pNET: Can't do the things I love anymore

Support Group: Brain Tumor

Posted: Aug 2, 2022

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