Neuroendocrine Tumors (NETs): Discussions | Page 64

Thank you! It's been like a story with different points of view. The radiation oncologist has...

https://connect.mayoclinic.org/comment/819000/

Discussion: NETs: Competing Pathologies--how to sort it all out?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 28, 2023

Happy to have found this support group! I have a near 6 cm paraganglioma from my...

https://connect.mayoclinic.org/comment/810104/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 11, 2023

I take cosentyx for arthritis which I sometimes wonder if this could be causing my NET...

https://connect.mayoclinic.org/comment/805017/

Discussion: Newly diagnosed - neuroendocrine tumor in intestines

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 1, 2023

Hello, I have NET related pancreatic cancer. My mother died of pancreatic cancer which was diagnosed...

https://connect.mayoclinic.org/comment/804523/

Discussion: Gynecologic neuroendocrine metastasized to lungs: Need a specialist

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 31, 2023

We live in Orlando Florida. Mom came to the ER of Orlando Health Hospital thinking she...

https://connect.mayoclinic.org/comment/804283/

Discussion: Gynecologic neuroendocrine metastasized to lungs: Need a specialist

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 31, 2023

I would encourage you to become your best advocate. This is done by educating yourself in...

https://connect.mayoclinic.org/comment/802379/

Discussion: Neuroendocrine Lung stage 4B with metastasis in liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 27, 2023

Hello @smart1, I'm glad that @colleenyoung tagged me for this discussion. As I've had three surgeries...

https://connect.mayoclinic.org/comment/753806/

Discussion: Need help with diet after a hemicolectomy....

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 25, 2022

@rowlandsb, I have some options for your daughter. She is welcome to join Mayo Clinic Connect...

https://connect.mayoclinic.org/comment/744223/

Discussion: Support for Young Adult with carcinoid tumor on ovary

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 1, 2022

I had some pain around my back and side, but that is about it. The chemo...

https://connect.mayoclinic.org/comment/834197/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 29, 2023

Hello. My 16 year old son was diagnosed with metastatic PNETs last November at Mayo in...

https://connect.mayoclinic.org/comment/152968/

Discussion: Use of Adrenaline/Epinephrine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 5, 2017

Curious what the rest of you thought about this webinar? I learned a LOT and was...

https://connect.mayoclinic.org/comment/138593/

Discussion: Panel Discussion on NETs/Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 4, 2017

Great discussion topic, Maureen. I cross-posted the thread in the other cancer groups too. I'd like...

https://connect.mayoclinic.org/comment/196542/

Discussion: Overmedication with cancer and other conditions

Support Group: Head & Neck Cancer

Posted: Apr 17, 2018

Yes, a support group would be good even if you connected with them by email or...

https://connect.mayoclinic.org/comment/101986/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 11, 2016

when I was dx'ed initially we were living in north central North Dakota. It was a...

https://connect.mayoclinic.org/comment/85535/

Discussion: Anyone gone to Mayo Clinic in Rochester Minnesota for carcinoid tumors?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 21, 2015

Dear denisebrown67, I am sorry to read of your suffering. Although my cancer was discovered in...

https://connect.mayoclinic.org/comment/330401/

Discussion: How I was diagnosed with Parotid Gland Cancer (High-grade NETs)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 16, 2021

Thanks so much for your response. It is heartening to know that your wife has been...

https://connect.mayoclinic.org/comment/669814/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 10, 2022

I understand your thought here. All I read tells me that when cancer appears in a...

https://connect.mayoclinic.org/comment/284807/

Discussion: I've had 3 cancers: Thyroid cancer, Lung Cancer and Breast Cancer

Support Group: Cancer

Posted: Jan 12, 2020

Thanks for your reply, Teresa @hopeful33250. I contacted NIH a couple years ago about their research...

https://connect.mayoclinic.org/comment/275694/

Discussion: What topics do you want for the Neuroendocrine Support Group?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 8, 2019

Hi Auntie, I agree about the small talk. I don't want people to keep asking questions...

https://connect.mayoclinic.org/comment/233084/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Sep 21, 2019

By any chance where you live, does your medical community have a Mindfulness Meditation group/classes offered?...

https://connect.mayoclinic.org/comment/232889/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Mar 21, 2019

Neuroendocrine Tumors (NETs) Support Group