Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

1,958 total results

Comments (1,797)

This site is new to me. I was diagnosed with NET and Carcinoid Syndrome in 2013....

https://connect.mayoclinic.org/comment/849237/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 25, 2023

Dear Carcinoid. From reading the posts it seems that you have done all the things I...

https://connect.mayoclinic.org/comment/240134/

Discussion: Carcinoid cancer in intestine or NETs (Neuroendocrine Tumors)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 18, 2019

Hello @somefan and welcome to Mayo Connect, As a NET survivor myself (3 X) I'm sorry...

https://connect.mayoclinic.org/comment/162788/

Discussion: Diagnosed with aggressive NET. Happy to see this group!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 4, 2017

Hi dbamos1945. I would think you have both cysts and solid tumors in your liver. A...

https://connect.mayoclinic.org/comment/819906/

Discussion: Lesions, Cystic liver mets, vs Tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 2, 2023

Hello All in the NETs discussion groups. Here is a learning opportunity for all NETs patients...

https://connect.mayoclinic.org/comment/857594/

Discussion: Learn About NETs and monthly meetings

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 10, 2023

@fabiant No she had a open incision, about 12" from center of stomach up. So a...

https://connect.mayoclinic.org/comment/848829/

Discussion: PNET Surgery: My recovery journey

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 24, 2023

Hi there, fist off.. fellow Wisconsinite.....GoPackGo. back to the NETS. My hubs was diagnosed back in...

https://connect.mayoclinic.org/comment/1231196/

Discussion: New Diagnosis: husband's labs are all indicating NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 7 1:58am

I'm exactly your age and my situation appears to be exactly like yours. But my journey...

https://connect.mayoclinic.org/comment/941331/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 3, 2023

Hello everyone!! I am new to the group!! Have been on my cancer journey since April...

https://connect.mayoclinic.org/comment/755415/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 29, 2022

Hi Mark, regarding your question about the Chromogranin A (CGA) test, I have found some information,...

https://connect.mayoclinic.org/comment/745379/

Discussion: Recommendation for Seattle Cancer Care Alliance MDs Treating NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 4, 2022

Thanks for all of that information, @gapsc I know so many NET patients who were misdiagnosed...

https://connect.mayoclinic.org/comment/134270/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 11, 2018

Hi billyfeet, I had two NETs on the tail of my pancreas both over 2 cms....

https://connect.mayoclinic.org/comment/842530/

Discussion: Has anyone chosen the Watch and Wait and regretted that choice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 13, 2023

@markbrinkley Sure, I have had surgeries for all three NETs with no other treatment beyond the...

https://connect.mayoclinic.org/comment/234458/

Discussion: New to Mayo: MEN1 with duodenum NET G1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 12, 2018

Hi vtn So I didn’t have the gallium first. So when they did the first recheck...

https://connect.mayoclinic.org/comment/858909/

Discussion: Just diagnosed with PNET: Any thoughts on watch & wait approach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 12, 2023

Hello Mollie, Back in 2008 I was diagnosed with carcinoid having a mid-gut primary with liver...

https://connect.mayoclinic.org/comment/160169/

Discussion: Carcinoid Cancer of the Liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 18, 2017

Hi Teresa, Thank you for sharing your story and suggestions. I'm assuming your surgeries were from...

https://connect.mayoclinic.org/comment/762620/

Discussion: Prognosis for Metastasized NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 18, 2022

It really, really, really, really sux. Welcome to your new "normal". For me, I had to...

https://connect.mayoclinic.org/comment/1190944/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 15, 2024

@colleenyoung Maybe you will want to cross post this to other groups. My husband has fought...

https://connect.mayoclinic.org/comment/196569/

Discussion: Overmedication with cancer and other conditions

Support Group: Head & Neck Cancer

Posted: Apr 19, 2018

Hello, My dad was recently diagnosed with a GI NET. We live in the US ....

https://connect.mayoclinic.org/comment/1010196/

Discussion: GI NET attached to pancreas supposedly non-producing

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 5, 2024

This is my opinion with the facts for myself. I started octreotide twelve and a half...

https://connect.mayoclinic.org/comment/1162233/

Discussion: NET on liver: Question about treatments when no symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 24, 2024

Pancreatic Cancer

Follow

2694

1 minute ago

Digestive Health

Follow

14622

7 minutes ago

Follow

6320

1 hour ago

Follow

7984

3 hours ago

Cancer: Managing Symptoms

Follow

4322

3 hours ago