Neuroendocrine Tumors (NETs): Discussions | Page 63

While I haven’t been diagnosed with DIPNECH I am 2 years into my treatment journey living...

https://connect.mayoclinic.org/comment/1070929/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 19 11:43am

Welcome, @canuk! As someone living with NETs for over 13 years, you will have a lot...

https://connect.mayoclinic.org/comment/1070890/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 19 11:03am

Being the "healthiest sick guy he knows!" is quite the compliment! Congratulations on living well, in...

https://connect.mayoclinic.org/comment/1084151/

Discussion: Grade 1 Non-functioning (NF) NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 10 8:55am

I was 59 when I was diagnosed and 60 when I found I was at stage...

https://connect.mayoclinic.org/comment/1054505/

Discussion: Laparoscopic Possible Open Surgery Resection - Small Bowel NETS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 21 2:23am

The pain in the left arm would probably be depending on how the surgery goes. I...

https://connect.mayoclinic.org/comment/1108182/

Discussion: Sarcoidosis and Lung NET, upcoming surgery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 19 9:38am

Hello. I understand your plight to find the right care. My wife has a grade 2,...

https://connect.mayoclinic.org/comment/877019/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 12, 2023

Hi. I was very lucky. I didn’t have to have chemo or radiation. I just had...

https://connect.mayoclinic.org/comment/1046358/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 6 1:12pm

That is very interesting what you said. I have had 3 cancers and although one try’s...

https://connect.mayoclinic.org/comment/232702/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Dec 7, 2018

Thank you, Colleen, It is nice to have a connection with people on the same road....

https://connect.mayoclinic.org/comment/1075210/

Discussion: Paraganglioma / Carotid Body Tumor Question

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 26 2:59pm

Hi, thank you! Yes, I do intend to address all my side effect issues with the...

https://connect.mayoclinic.org/comment/1103497/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 11 8:45am

My goodness, you’ve had the mother load when it comes to testing. I met the benchmark...

https://connect.mayoclinic.org/comment/1104138/

Discussion: What am I missing? Possible NET?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 12 8:21am

I wash my wig carefully using a little mild shampoo (Paula sells one too) in wash...

https://connect.mayoclinic.org/comment/1011193/

Discussion: Anyone have hair loss with lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 7 11:26am

I live in Long Island

https://connect.mayoclinic.org/comment/718870/

Discussion: Any NET patients from NYC

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 19, 2022

Just a note: I like the approach my oncologists has... 1. get things in order 2....

https://connect.mayoclinic.org/comment/706933/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: May 10, 2022

I don’t single anyone or him out. We don’t have visitors, he is the only one....

https://connect.mayoclinic.org/comment/786900/

Discussion: Visitor etiquette for NETs patient

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 20, 2022

Hello @jessie59 Here is a link to a time conversion. I hope this helps you to...

https://connect.mayoclinic.org/comment/781875/

Discussion: Learn About NETs and monthly meetings

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 7, 2022

I forgot to add that the youngest carcinoid patient I have met & briefly know was...

https://connect.mayoclinic.org/comment/773745/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 16, 2022

It is my understanding that you need to understand the cellular structure of the problem and...

https://connect.mayoclinic.org/comment/772407/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 12, 2022

Hello @sanjaykumar1, I can certainly understand your concern about the CGA level rising. It is hard...

https://connect.mayoclinic.org/comment/776826/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 24, 2022

I have a rare aggressive tumor (NET in breast) and turned down chemo as I also...

https://connect.mayoclinic.org/comment/829917/

Discussion: The Roller Coaster Ride of Cancer

Support Group: Cancer

Posted: Mar 21, 2023

Neuroendocrine Tumors (NETs) Support Group