Neuroendocrine Tumors (NETs): Discussions | Page 63

Hi vtn, I did the watch and wait for a small PNET on the head of...

https://connect.mayoclinic.org/comment/859339/

Discussion: Just diagnosed with PNET: Any thoughts on watch & wait approach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 13, 2023

Just here to share my story and hopefully help others. I was diagnosed at 57 with...

https://connect.mayoclinic.org/comment/1312320/

Discussion: PRRT side effects and results

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25 8:12am

I can't offer any advice but can empathize. Mine started in my small bowel in 2020...

https://connect.mayoclinic.org/comment/1171118/

Discussion: Experience w/ watch and wait approach for metastatic liver tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 10, 2024

Stay positive, I had 15 years ago nec in my small intestine, surgery sucesfully but secondary...

https://connect.mayoclinic.org/comment/1288577/

Discussion: I recently had surgery to remove NET in small intestine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 24 1:44am

Good morning, NET group. My saga continues with the introduction of a new med protocol, Temozolomide....

https://connect.mayoclinic.org/comment/1060712/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 2, 2024

I can’t have debunking or Lithotrypsy as my liver has over 100 tumors per estimate. Fortunately,...

https://connect.mayoclinic.org/comment/995622/

Discussion: Update: Lutethera treatment is over

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 11, 2024

I am new to the group. Thanks for listening. Some quick background. I was diagnosed with...

https://connect.mayoclinic.org/comment/876491/

Discussion: Anyone have a neuroendocrine tumor (NET) in the spine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 11, 2023

I'm also on Lanreotide...have had two injections so far. I have 3 TACE treatments with the...

https://connect.mayoclinic.org/comment/830111/

Discussion: Long Time Survivor With Concerns re Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 22, 2023

Hi Teresa, Thanks for following up. I have surgery scheduled for October 21st to have the...

https://connect.mayoclinic.org/comment/636553/

Discussion: Possible NET with No Evidence of Tumor: Mediastinal Mass

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 18, 2021

I have just returned from my week at Mayo so I wanted to post a quick...

https://connect.mayoclinic.org/comment/593410/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 10, 2021

I'm being treated at IHC Oncology in Utah. My oncologist specializes in NETS and was educated...

https://connect.mayoclinic.org/comment/1167738/

Discussion: Dotatate lights only in liver, but report says metastatic to liver?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 4, 2024

Hello! Welcome to the ' zebra club' :). I had somewhat complicated case , as had...

https://connect.mayoclinic.org/comment/1074310/

Discussion: newly diagnosed pNET on tail of pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25, 2024

First, your husband is fortunate to have you supporting him. Second - there are so many...

https://connect.mayoclinic.org/comment/1022928/

Discussion: My husband has had his second PRRT and is doing well!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 26, 2024

Cobraman: Hi! I received diagnosis of small intestine (duodenum) NET tumor that had metastasized to liver...

https://connect.mayoclinic.org/comment/868984/

Discussion: Life expectancy with NETs and lifetyle as it progresses

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 30, 2023

A couple of immediate suggestions, as we have all fought this battle for NET's. There is...

https://connect.mayoclinic.org/comment/856394/

Discussion: Diagnosed with Stage 4 pNET: What should I know?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 8, 2023

Thank you both for the very helpful responses! I was able to meet with an oncologist...

https://connect.mayoclinic.org/comment/755235/

Discussion: Questions on Recurrence & Likelihood of Multiple NETs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 29, 2022

I'm sorry you're going through this. I know it's frustrating when the first line of defense...

https://connect.mayoclinic.org/comment/1326321/

Discussion: Help understand interval progression

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 13 10:29am

I just wanted to add that a ki-67 of 4% is fairly low, indicating that it...

https://connect.mayoclinic.org/comment/1331244/

Discussion: Neuroendocrine tumor pancreatic tail

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 20 10:58am

I was told by my Sutter Health docs that I had "benign gastric neuroendocrine carcinoid tumor,"...

https://connect.mayoclinic.org/comment/1172008/

Discussion: How many doctors did you see to get to your NETS diagnosis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 11, 2024

It's been awhile, but I wanted to update each of you kind souls on my Merkel...

https://connect.mayoclinic.org/comment/847355/

Discussion: Merkel cell-radiation effective on chest-new 2 cm spot on liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 22, 2023

Neuroendocrine Tumors (NETs) Support Group