Neuroendocrine Tumors (NETs) Support Group

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Comments (1,498)

While NETs is a complicated cancer it was an easy diagnosis. A CgA blood test followed...

https://connect.mayoclinic.org/comment/884142/

Discussion: Recently diagnosed with a NET in my middle lobe of my right lung.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 24, 2023

Hi Teresa The NET was an incidental finding when I was in the hospital in January...

https://connect.mayoclinic.org/comment/884349/

Discussion: Recently diagnosed with a NET in my middle lobe of my right lung.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 24, 2023

Dear Mike I was diagnosed with PNET on my pancreas on March 21, 2023. My PNET...

https://connect.mayoclinic.org/comment/880451/

Discussion: NET found by colonoscopy. What to expect and how should I approach

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 17, 2023

While I realize this is rather a late notice, I just received an email about an...

https://connect.mayoclinic.org/comment/902980/

Discussion: Learn About NETs and monthly meetings

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 27, 2023

The CT cu64 is a different PET scan. Chemo doesn't work on Pnet. Make sure you...

https://connect.mayoclinic.org/comment/905048/

Discussion: Should I want more treatment after pancreatic nets with lymph nodes?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 31, 2023

So I spoke with my family doctor yesterday. He’s not a great doctor - very apathetic....

https://connect.mayoclinic.org/comment/914606/

Discussion: New paraganglioma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 17, 2023

What is the name and location of the endocrinologist? I live in Florida now and I...

https://connect.mayoclinic.org/comment/923277/

Discussion: Pituitary tumor symptoms: joint, muscle and body aches

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 2, 2023

thank you very much. I live in florida

https://connect.mayoclinic.org/comment/944904/

Discussion: Anyone have a neuroendocrine tumor (NET) in the spine?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 9, 2023

Hi Meandmysis, Your sister is definitely going through a lot right now. My condolences on the...

https://connect.mayoclinic.org/comment/935216/

Discussion: Carcinoid syndrome; NET not found

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 23, 2023

You gave me hope, thank you. Every day I wake up I’m thankful. This is such...

https://connect.mayoclinic.org/comment/933232/

Discussion: Diagnosed with Stage 4 pNET: What should I know?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 20, 2023

Hello @bluebelle and welcome to the NETs support group at Mayo Connect. I wanted to respond...

https://connect.mayoclinic.org/comment/943270/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 6, 2023

Good morning Cindy- I am so glad that my blog has helped you feel like you...

https://connect.mayoclinic.org/comment/232710/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Dec 8, 2018

Wow @lastround that's terrible what the first two doctors told you. Glad you saw a third!...

https://connect.mayoclinic.org/comment/861458/

Discussion: Dying from car accident can cause death more so this cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 17, 2023

@joannem Hello and welcome to Mayo Connect. Yes, carcinoids are an unusual type of cancer and...

https://connect.mayoclinic.org/comment/110438/

Discussion: Carcinoid Syndrome & Autoimmune Diseases.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 14, 2016

Yes, I'm also glad the surgeon you saw is so experienced with NET lung tumors. Experience...

https://connect.mayoclinic.org/comment/913585/

Discussion: How do I know somatostatin is in my system?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 15, 2023

Diana, Thanks for your response. I’ve been just hanging waiting to get information about diagnosis and...

https://connect.mayoclinic.org/comment/975230/

Discussion: Anyone with carcinoid tumors in lung and stomach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 5, 2023

Hello!! Thank you for your kindness! Yes, I had surgery at the Mayo Clinic Jacksonville on...

https://connect.mayoclinic.org/comment/962471/

Discussion: Found PNET on tail of pancreas but told it’s nonfunctional

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 10, 2023

What I did was to do a deep dive into the process. First I set my...

https://connect.mayoclinic.org/comment/1000033/

Discussion: Possible NET: Waiting for the endo appointment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 19 10:14am

Hi Theresa Does Mayo in Jacksonville have the equipment I live on Long Island NY I...

https://connect.mayoclinic.org/comment/1023929/

Discussion: 68Ga DOTATATE Positron Emission Tomography (PET) at Mayo Clinic

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 27 6:17pm

In May I had the entire lower left lobe removed for a 14mm Adenocarcinoma. I was...

https://connect.mayoclinic.org/comment/989273/

Discussion: Questions I should ask before surgery for Lung NETs?

Support Group: Lung Cancer

Posted: Dec 31, 2023

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