Neuroendocrine Tumors (NETs): Discussions | Page 62

I had a very scary Saturday night, with the pain under my shoulder blade radiating through...

https://connect.mayoclinic.org/comment/1062606/

Discussion: Lung nodule could be slow growing carcinoid: Watch and wait is scary

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 5, 2024

Welcome to the NET site! Hope you find the group helpful and supportive. I don’t have...

https://connect.mayoclinic.org/comment/851281/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 29, 2023

My husband was diagnosed with NETs 5 years ago, had surgery and had been followed every...

https://connect.mayoclinic.org/comment/851255/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 29, 2023

First time here and would appreciate any info from folks with a similiar issue. I had...

https://connect.mayoclinic.org/comment/811885/

Discussion: Carcinoid tumor of the appendix.PET scan results

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15, 2023

Hello, New here, found the group when searching NET on the Mayo Clinic website. My husband...

https://connect.mayoclinic.org/comment/800940/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 24, 2023

I wonder why the follow up at all with me if the so called scars on...

https://connect.mayoclinic.org/comment/775350/

Discussion: Investigations for pancreatic lesions, NETs? Confused and concerned

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 20, 2022

Hi, thanks for your reply to my post. So sorry to hear that your husband's pain...

https://connect.mayoclinic.org/comment/669792/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 10, 2022

He had stomach pain and diarrhea for 4 years (since 5th grade) and even after numerous...

https://connect.mayoclinic.org/comment/152971/

Discussion: Use of Adrenaline/Epinephrine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 5, 2017

@splendrous, my oncologist is located at the Springfield Clinic Cancer Center. My oncology surgeon is located...

https://connect.mayoclinic.org/comment/1275161/

Discussion: Tumor growth in three month follow up MRI

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 5 8:22pm

I had the dotonate PET Scan after CAT, MRI, liver biopsy. I also had primary partial...

https://connect.mayoclinic.org/comment/1257287/

Discussion: Diagnosing small bowel NETs with carcinoid syndrome

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 13 5:12pm

I began PRRT in June 2024 and today received the 3rd infusion without any issues. I...

https://connect.mayoclinic.org/comment/1150466/

Discussion: Straight to the liver: Anyone have NETs originating in strange areas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 1, 2024

I was diagnosed in January 2020, grade 3 NETs with tumors in liver, lungs, pancreas, bones,...

https://connect.mayoclinic.org/comment/828078/

Discussion: High grade 2 and 3 neuroendocrine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 18, 2023

I, too, have metastatic innumerable liver lesions, as well as in my pelvis, lymph nodes, and...

https://connect.mayoclinic.org/comment/811172/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14, 2023

Hi Ipate. Sorry to here of your multiple problems. I did not have any problems and...

https://connect.mayoclinic.org/comment/317669/

Discussion: Could I have NET?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 28, 2020

After first diagnosis Dec 2023, had lanreotide injections and a hepatic artery embolization. Neither seemed to...

https://connect.mayoclinic.org/comment/1302872/

Discussion: Update: Lutethera treatment is over

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 12 8:28pm

I think histotripsy is pretty exciting. Watch the videos on it. Yes, it was just approved...

https://connect.mayoclinic.org/comment/949922/

Discussion: Anyone heard about Histotripsy for liver NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 18, 2023

I also had a grade 1 NET removed from my cecum during colonoscopy. I was referred...

https://connect.mayoclinic.org/comment/1295112/

Discussion: Neuroendocrine Tumor - no treatment plan method

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 2 1:51pm

I get the lanreotide injection every three weeks. I have GPNET grade 2 resection from small...

https://connect.mayoclinic.org/comment/1280086/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 12 11:16am

Hello, My name is Lenora and this is my first time commenting on the NETs website....

https://connect.mayoclinic.org/comment/668493/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 6, 2022

I wish I had an answer for you, but I doubt that even your doctor can...

https://connect.mayoclinic.org/comment/867084/

Discussion: Life expectancy with NETs and lifetyle as it progresses

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 26, 2023

Neuroendocrine Tumors (NETs) Support Group