Neuroendocrine Tumors (NETs) Support Group

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I have Glioblastoma grade 4...so I also have to remind myself to live in the moment....

https://connect.mayoclinic.org/comment/233001/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Aug 28, 2019

I am experiencing all the emotions that everyone here is experiencing... I have Stage 4 inoperable...

https://connect.mayoclinic.org/comment/232999/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Aug 28, 2019

I think now it's the fatigue that's getting to me. I still have literally no energy...

https://connect.mayoclinic.org/comment/232815/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Jan 12, 2019

As crazy as this sounds, I did not think of taking anything. I live alone and...

https://connect.mayoclinic.org/comment/232840/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Jan 17, 2019

Hi @marylou705 Wednesday isn't that long ago. It does take time to recover from such a...

https://connect.mayoclinic.org/comment/193018/

Discussion: [New] Member spotlights: Meet fellow members

Support Group: Mental Health

Posted: Jun 3, 2018

Hi Teresa My sister went to a hospital near her in Delaware. Not sure which one...

https://connect.mayoclinic.org/comment/163586/

Discussion: NIH clinical study looking for the gene causing carcinoid cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 12, 2017

Hello Justin, Welcome to the group and I hope you find encouragement and helpful information here....

https://connect.mayoclinic.org/comment/162789/

Discussion: Diagnosed with aggressive NET. Happy to see this group!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 6, 2017

Hello, my symptoms were dizziness, tiredness and some headaches. I live in Peru so my GP...

https://connect.mayoclinic.org/comment/176701/

Discussion: Anyone treated for NETs at Mayo Clinic in Jacksonville, FL

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 18, 2019

@susu2 @odette @merpreb, thanks for sharing your experiences. Susu, technically speaking hiccups are involuntary contractions of...

https://connect.mayoclinic.org/comment/265599/

Discussion: Have you ever had hiccups with or after chemotherapy?

Support Group: Cancer: Managing Symptoms

Posted: Jun 12, 2019

Shari, that's so great to hear that you are doing so well!!! Did you have genetic...

https://connect.mayoclinic.org/comment/244183/

Discussion: Paraganglioma / Carotid Body Tumor Question

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 2, 2019

Hello Again. I was very hopeful that Afinitor would help. My oncologist was seeking a size...

https://connect.mayoclinic.org/comment/134282/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 15, 2019

Hello, Thanks to each of you for the helpful info, I really appreciate your replies. I...

https://connect.mayoclinic.org/comment/134645/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 31, 2018

When I was really sick, friends came to my house. I explain to them about the...

https://connect.mayoclinic.org/comment/134603/

Discussion: Take Your Mind Off of Cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 20, 2017

There is a support group in my state of residence, Minnesota. I have spenttime on that...

https://connect.mayoclinic.org/comment/101987/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 11, 2016

Hi! I was dx'ed with Stage 4 melanoma in 2009. I was given 6 months to...

https://connect.mayoclinic.org/comment/85530/

Discussion: Anyone gone to Mayo Clinic in Rochester Minnesota for carcinoid tumors?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 21, 2015

Hello @deloris and welcome to the NETs discussion on Mayo Clinic Connect. I see that you...

https://connect.mayoclinic.org/comment/842366/

Discussion: What do I need to know about NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 12, 2023

I am in Florida and my adrenal mass grew from 3cm to 4cm in 8 months....

https://connect.mayoclinic.org/comment/850289/

Discussion: Pheochromocytoma: Anyone being treated for an adrenal mass?

Support Group: Diabetes & Endocrine System

Posted: Apr 27, 2023

Very interesting , let’s hope they are are able to make excellent progress to help us...

https://connect.mayoclinic.org/comment/871585/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 3, 2023

You have really found a way to successfully live with NETs, @patrick031621. I appreciate you sharing...

https://connect.mayoclinic.org/comment/856330/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 8, 2023

Hi there! Your diet doesn't sound dull to me at all! I believe this diet or...

https://connect.mayoclinic.org/comment/856433/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 8, 2023

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