Neuroendocrine Tumors (NETs): Discussions | Page 61

When I said that his digestion is normal, something in my brain is nagging me because...

https://connect.mayoclinic.org/comment/817699/

Discussion: Has anyone had referred shoulder pain in post pancreatectomy?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 26, 2023

In reply to k8lyn23, Hi I had mentioned the LACNET which is a very good Los...

https://connect.mayoclinic.org/comment/815722/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 22, 2023

I mand hopes et with an oncologist yesterday. My report: Small tumors in pelvic/abdominal region and...

https://connect.mayoclinic.org/comment/812958/

Discussion: Long Time Survivor With Concerns re Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 17, 2023

I have carcinoid cancer stage 4 diagnosed 2 years ago with tumors spread to liver and...

https://connect.mayoclinic.org/comment/110437/

Discussion: Carcinoid Syndrome & Autoimmune Diseases.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 13, 2016

Hi! My cancer has also metastasized to my liver and I get Octreotide injections every month...

https://connect.mayoclinic.org/comment/1196332/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 24, 2024

@robin5: Hi! I was diagnosed NET small intestine primary with liver metastases, grade1, well-def, stage 4,...

https://connect.mayoclinic.org/comment/1324502/

Discussion: Lanreotide side effects: diarrhea constipation, what to do?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 10 5:29pm

@hollywood819: thank you for your post- this info will help many of us! I have a...

https://connect.mayoclinic.org/comment/1206751/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 8 11:18am

This can be so frustrating. Without symptoms, but an instinct, I chose to pay for an...

https://connect.mayoclinic.org/comment/1259307/

Discussion: Diagnosing small bowel NETs with carcinoid syndrome

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 16 9:44am

I had the Y90 In August of 2022 at University of Michigan as a follow up...

https://connect.mayoclinic.org/comment/1055893/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 23, 2024

Has debulking surgery ever been suggested for your sister? I had that plus gallbladder removal as...

https://connect.mayoclinic.org/comment/935416/

Discussion: Carcinoid syndrome; NET not found

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 24, 2023

5 months ago, I had a 'gut' feeling (no symptoms) and chose to pay for a...

https://connect.mayoclinic.org/comment/916496/

Discussion: Laparoscopic Possible Open Surgery Resection - Small Bowel NETS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 21, 2023

Hi, Pete. I've had a similar situation. I had a robotic surgery for my PNET in...

https://connect.mayoclinic.org/comment/817091/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 25, 2023

I was diagnosed in March 2018 with NETs in multiple locations after having a blockage in...

https://connect.mayoclinic.org/comment/807089/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 6, 2023

Hi @hopeful33250, I had this done as an outpatient procedure. It took two sessions. The first,...

https://connect.mayoclinic.org/comment/769013/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 3, 2022

I have NETS mets to the liver with unknown primary and underwent PRRT treatment at Mayo...

https://connect.mayoclinic.org/comment/767329/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 30, 2022

Hello @mkmm and welcome to Connect. I understand that you are interested in finding someone else...

https://connect.mayoclinic.org/comment/726846/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 14, 2022

No meds before Lanreotide. I have had yearly CAT scans. The annual scan this year showed...

https://connect.mayoclinic.org/comment/1171345/

Discussion: Experience w/ watch and wait approach for metastatic liver tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 10, 2024

Hi, Thank you for you reply. I have a grade 2 very slow growing. But my...

https://connect.mayoclinic.org/comment/1321091/

Discussion: PNET in Tail of Pancreas, Portal and Splenic Veins

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 5 6:39pm

@sophiarose: I am awaiting my 4th PRRT early December 2024. How is your affected arm? What...

https://connect.mayoclinic.org/comment/1161212/

Discussion: PRRT side effects and results

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 22, 2024

I had neuroendocrine tumors in my small intestines. I had surgery in 2017, the surgeon removed...

https://connect.mayoclinic.org/comment/1110182/

Discussion: Anyone have side effects after Lanreotide injection?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 22, 2024

Neuroendocrine Tumors (NETs) Support Group