Neuroendocrine Tumors (NETs): Discussions | Page 60

Hi I was diagnosed with a malignant insulinoma last July. The tumor originated in my pancreas...

https://connect.mayoclinic.org/comment/901833/

Discussion: Anyone with an insulinoma have only therapies instead of surgery?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 25, 2023

Hi! I just came out of the hospital yesterday. Had extensive distal pancreatectomy, spleen and gall...

https://connect.mayoclinic.org/comment/808230/

Discussion: What topics do you want for the Neuroendocrine Support Group?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 8, 2023

My wife @kim1965 was diagnosed with NET on tail of pancreas and numerous tumors on liver...

https://connect.mayoclinic.org/comment/802307/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 27, 2023

I was diagnosed in 2002 and mine was already metastasized to liver and lymph nodes. I...

https://connect.mayoclinic.org/comment/101985/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 11, 2016

You will find lots of support on this site for insulinomas. Hope it is a helpful...

https://connect.mayoclinic.org/comment/1267607/

Discussion: Pancreatic NETs: Looking to connect with anyone with insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 26 7:48pm

Hi Sunshyn, may I knows 3 times PET scans within a period of how long? Any...

https://connect.mayoclinic.org/comment/1277034/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 8 10:07am

Thank you for your reply and all the information. I'm so sorry that your son is...

https://connect.mayoclinic.org/comment/1219950/

Discussion: Liver masses found on CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 23 4:43pm

My heart goes out to all of use!! Dealing with NETs is a struggle I have...

https://connect.mayoclinic.org/comment/1113078/

Discussion: GI Net stage 4 advanced: Is it incurable?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 28, 2024

Exactly. Neck to pelvis. I have had kidneys and liver issues for a while. Out of...

https://connect.mayoclinic.org/comment/893469/

Discussion: SDHB Positive and Ga-68 Dotatate Scan question.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 10, 2023

Hello carm1011! I have the same diagnosis - pNET well functioning, Grade 2, Stage 4 with...

https://connect.mayoclinic.org/comment/891762/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 7, 2023

I recently had a bland embolization for liver metastasis 5 weeks ago They did my right...

https://connect.mayoclinic.org/comment/814539/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 20, 2023

@crmom Welcome to Mayo Connect. First of all, take a deep breath in and slowly exhale....

https://connect.mayoclinic.org/comment/1332303/

Discussion: Stage 4 grade2 Pancreatic Neuroendocrine ki67 20% Lanreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 21 8:59pm

Hopefully there is someone out there still monitoring this. I have chronic NET that started in...

https://connect.mayoclinic.org/comment/1171106/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 10, 2024

I was diagnosed 17 months ago with a metastatic stage 4, grade 2-3 small intestinal NET....

https://connect.mayoclinic.org/comment/1165976/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 1, 2024

hi I am from Far North Queensland Australia 3 years ago I found out I had...

https://connect.mayoclinic.org/comment/1312071/

Discussion: Any one have experience with Dr J Maxwell (surgical oncologist) at MD

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 24 4:15pm

I was diagnosed with NETs in the liver December 2022, Had a PET scan to determine...

https://connect.mayoclinic.org/comment/1147007/

Discussion: After initial tests/consults at Mayo: When does NETs treatment start?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 25, 2024

Hello! I just finished my 6th round of Lutetium LU-177 dotatate as part of the Compose...

https://connect.mayoclinic.org/comment/943115/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 6, 2023

I did have a biopsy in Dec 2022. It was very painful since the IR said...

https://connect.mayoclinic.org/comment/901227/

Discussion: First Lanreotide Injection: Any tips about diet and side effects?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 24, 2023

@hollywood817 I appreciate all of your updates as you go through various treatments. Regarding the cough,...

https://connect.mayoclinic.org/comment/866925/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 26, 2023

I found out 3 years ago that I have net cancer. Originated in small intestines and...

https://connect.mayoclinic.org/comment/848467/

Discussion: Differentiating Carcinoid syndrome from MCAS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 24, 2023

Neuroendocrine Tumors (NETs) Support Group