Neuroendocrine Tumors (NETs) Support Group

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I totally know how he and you feel. At least you are there to confirm it....

https://connect.mayoclinic.org/comment/979851/

Discussion: NET symptoms despite follow-up lab work ok

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 13, 2023

Thanks for the suggestions. I prefer not having someone at night. I don’t think I would...

https://connect.mayoclinic.org/comment/989847/

Discussion: Questions I should ask before surgery for Lung NETs?

Support Group: Lung Cancer

Posted: Jan 1 3:37pm

I live in Southern Oregon, so not close to Mayo though grew up in S. Dak.,...

https://connect.mayoclinic.org/comment/1076692/

Discussion: Lung nodule could be slow growing carcinoid: Watch and wait is scary

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 28 6:19pm

Many of you have crossed paths, been greeted and encouraged by @kim1965 as he shares his...

https://connect.mayoclinic.org/comment/906538/

Discussion: Learn About NETs and monthly meetings

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 2, 2023

I was diagnosed with Carcinoid tumor in Feb 2023. My Chromogranin A blood count had hit...

https://connect.mayoclinic.org/comment/929310/

Discussion: Anyone still have pancreas pain while taking Lanteotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 13, 2023

Thank you for replying to my post. It's been a lonely road the past few months....

https://connect.mayoclinic.org/comment/911526/

Discussion: Pheochromocytoma: Anyone being treated for an adrenal mass?

Support Group: Diabetes & Endocrine System

Posted: Aug 12, 2023

Hi @woundedwarrior1969, I moved your message about living with 3 NETs tumors for 50 years to...

https://connect.mayoclinic.org/comment/911813/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 12, 2023

@shella I had a similar experience. I went to the ER because I was coughing up...

https://connect.mayoclinic.org/comment/815215/

Discussion: What tumor size is typical for removing part of the lung?

Support Group: Lung Cancer

Posted: Feb 21, 2023

I had a 6 hour non-nerve sparing RARP ten days ago for my Gleason 4+4=8 PC....

https://connect.mayoclinic.org/comment/1100341/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Jul 6 11:47am

I thought I replied but if I didn’t here goes . I presented at stage 4...

https://connect.mayoclinic.org/comment/1102644/

Discussion: What is a normal range for Chromogranin A test? Mine was 99 in 2021.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 10 1:42am

Does anyone ever get over multifocal adenocarcinoma or our lives going to be ct scans. We...

https://connect.mayoclinic.org/comment/232726/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Dec 8, 2018

I had a resection in 2015 and had about a foot removed. Yes you will have...

https://connect.mayoclinic.org/comment/831318/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 24, 2023

Haha! No worries at all. I get asked that a lot and love to share our...

https://connect.mayoclinic.org/comment/1123243/

Discussion: Everolimus for multiple Neuroendocrine tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 13 10:18pm

Lenmon, I am sorry that you lost your husband to this terrible disease. We do need...

https://connect.mayoclinic.org/comment/826958/

Discussion: Where are they doing neuroendocrine cancer/lung research?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 16, 2023

I am so grateful for your response to my post,and the possible connection that we may...

https://connect.mayoclinic.org/comment/803945/

Discussion: Pancreatic neuroendocrine insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 30, 2023

Amen this rare disease can be very challenging but like you say we are still here...

https://connect.mayoclinic.org/comment/748499/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 12, 2022

Thank you for taking the time to respond, it is much appreciated. I will get her...

https://connect.mayoclinic.org/comment/744465/

Discussion: Support for Young Adult with carcinoid tumor on ovary

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 2, 2022

My 29 y.o. son was diagnosed w a 2.6 cm NET on his appendix following an...

https://connect.mayoclinic.org/comment/753126/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 23, 2022

I feel for you with the difficult to control blood sugars. For a time I was...

https://connect.mayoclinic.org/comment/838750/

Discussion: Ways to control hypoglycemia caused by insulinoma in pancreas?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 6, 2023

Hello @lisa812 I would like to join Colleen, @colleenyoung, in welcoming you to the NETs discussion...

https://connect.mayoclinic.org/comment/832719/

Discussion: Stage 4 Carcinoid tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 27, 2023

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