Neuroendocrine Tumors (NETs): Discussions | Page 58

I'm new to this social media connection. I just read your blog post. Thank you for...

https://connect.mayoclinic.org/comment/232708/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Dec 8, 2018

Highest blood pressure I have had to date is had is 247 over 185, you can...

https://connect.mayoclinic.org/comment/892763/

Discussion: SDHB Positive and Ga-68 Dotatate Scan question.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 9, 2023

You’ve received valuable comments and suggestions on how to live with our NETS. I’ll add that...

https://connect.mayoclinic.org/comment/896457/

Discussion: NET symptoms despite follow-up lab work ok

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 15, 2023

@mlbschuler I am so excited to hear you are seeing Robert Ramirez! He seems the most...

https://connect.mayoclinic.org/comment/1012065/

Discussion: Neuroendocrine cells in Breast and Lungs DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 8 4:53pm

Fear of recurrence. I have lived with those words for the last 30 years since I...

https://connect.mayoclinic.org/comment/828833/

Discussion: The Roller Coaster Ride of Cancer

Support Group: Cancer

Posted: Mar 20, 2023

I had the same issue with the protein shakes ( upset stomach). Cornstarch at bedtime help...

https://connect.mayoclinic.org/comment/863278/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 20, 2023

I’m so sorry to hear your mother is having these terrible symptoms, , I’m 61 and...

https://connect.mayoclinic.org/comment/940275/

Discussion: Mother might have neuroendocrine tumors, is being told she has IBS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 2, 2023

Hello @charlenesf and welcome to the NETs support group on Mayo Connect. Thank you for sharing...

https://connect.mayoclinic.org/comment/941364/

Discussion: Long Time Survivor With Concerns re Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 3, 2023

My "bucket list" is complete. I have been the "care giver" for both my father and...

https://connect.mayoclinic.org/comment/942391/

Discussion: Anyone had plexus nerve block for cancer pain?

Support Group: Pancreatic Cancer

Posted: Oct 5, 2023

I’m aware of a number of people who opted for a celiac plexus block and all...

https://connect.mayoclinic.org/comment/824381/

Discussion: Anyone had plexus nerve block for cancer pain?

Support Group: Pancreatic Cancer

Posted: Mar 11, 2023

I've had 17 lanreotide injections. one every 3 weeks. i still have all my hair. i...

https://connect.mayoclinic.org/comment/1011155/

Discussion: Anyone have hair loss with lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 7 10:40am

I thought, What if my diagnosis is a 30 day expected shelf life. That appointment is...

https://connect.mayoclinic.org/comment/1000177/

Discussion: Possible NET: Waiting for the endo appointment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 19 2:33pm

Hi. I have been experiencing excruciating and debilitating joint and muscle pain for several months now....

https://connect.mayoclinic.org/comment/289800/

Discussion: Pituitary tumor symptoms: joint, muscle and body aches

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 12, 2020

I have stage 3 NET cancer and had a large tumor in my small intestine removed,...

https://connect.mayoclinic.org/comment/942886/

Discussion: Learn About NETs and monthly meetings

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 6, 2023

Hello @sylvian and welcome to the NETs discussion on Mayo Clinic Connect. As you can see,...

https://connect.mayoclinic.org/comment/827446/

Discussion: Newly diagnosed-Primary Malignant Neuroendocrine of Lung

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 17, 2023

Good morning The surgeon has very straightforward and honest. He said that surgery is the best...

https://connect.mayoclinic.org/comment/913416/

Discussion: How do I know somatostatin is in my system?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 15, 2023

Thank you Phyllisden, yes l saw my two doctors oncologists, and thorax thoracic surgeon. They said...

https://connect.mayoclinic.org/comment/1062199/

Discussion: NET not found on PET/CT

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 4 4:04pm

I am doing better thanks. I was sick for years before getting diagnosed. Covid didn't help....

https://connect.mayoclinic.org/comment/1040151/

Discussion: Treatment for GI NET with liver mets not working: Options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25 3:33pm

Sorry your going through this. Thanks for your response. If you do not mind, I would...

https://connect.mayoclinic.org/comment/1055029/

Discussion: New DIPNECH diagnosis, need advice on doctors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 22 4:43am

Hello, Carrie, My name is Lucy and I'm having my first surgery this month on the...

https://connect.mayoclinic.org/comment/760371/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 12, 2022

Neuroendocrine Tumors (NETs) Support Group