Neuroendocrine Tumors (NETs) Support Group

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I have liverNET cancer. I was diagnosed almost one year ago. I had 4 intense chemo...

https://connect.mayoclinic.org/comment/963078/

Discussion: Carcinoid Tumorlets Neuroendocrine tumor/Cell Hyperplasia - DIPNECH

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 11, 2023

Thanks for the prompt reply kim1965. I appreciate the additional information and will definitely discuss with...

https://connect.mayoclinic.org/comment/932814/

Discussion: Diagnosed with Stage 4 pNET: What should I know?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 19, 2023

Good morning to (hello it’s me) I was diagnosed Dec. 2022.. started in small intestine and...

https://connect.mayoclinic.org/comment/851326/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 29, 2023

For both of the 72 hour fasts, the endocrinologist ordered. The first was done in the...

https://connect.mayoclinic.org/comment/807790/

Discussion: Pancreatic NETs: Looking to connect with anyone with insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 7, 2023

Hello, @netofliver8550 and welcome to Mayo Connect. I am sorry to hear about your liver NETs...

https://connect.mayoclinic.org/comment/333405/

Discussion: NET Stomach Discomfort

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 19, 2021

@retiredinkazoo - I have similar case - huge pNet on the tail ( 20x16 cm) plus...

https://connect.mayoclinic.org/comment/1075652/

Discussion: newly diagnosed pNET on tail of pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 27, 2024

Nice to hear from a fellow Badger. Certianly hope all goes well for your wife's recovery...

https://connect.mayoclinic.org/comment/827544/

Discussion: Lanreotide Manufacturers: anyone have experience with either?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 17, 2023

Hopeful. I was diagnosed with Islet Cell Cancer, a neuroendricine adenoma carcinoma back in July of...

https://connect.mayoclinic.org/comment/90122/

Discussion: I have recently been diagnosed with my third neuroendocrine tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 31, 2016

@hollywood817- Wow... you are going through a lot. Have you by chance had genetic testing done...

https://connect.mayoclinic.org/comment/796472/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 14, 2023

Welcome to the group. I have had success controlling my blood sugar with Octreotide (Sandostatin LAR...

https://connect.mayoclinic.org/comment/1180040/

Discussion: Neuroendocrine insulinoma and MDS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 26, 2024

I have experienced this and feel something in my armpit lymph node area too. My oncologist...

https://connect.mayoclinic.org/comment/1073038/

Discussion: Lung Nets and pain in arm pit

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 23, 2024

Hi It's a shame that a blockage had to be the warning sign. I was never...

https://connect.mayoclinic.org/comment/920251/

Discussion: Laparoscopic Possible Open Surgery Resection - Small Bowel NETS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 28, 2023

Chromogranin is a fairly reliable biomarker used to monitor patients with neuroendocrine cancers. Mine was up...

https://connect.mayoclinic.org/comment/882094/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 20, 2023

Hello @amani79 I am sorry to hear of your daughter's diagnosis with NETs and mets to...

https://connect.mayoclinic.org/comment/163136/

Discussion: How to get a second opinion for an international patient??

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 10, 2017

I'm feeling happy, that's for sure. I had asked how can you tell the difference between...

https://connect.mayoclinic.org/comment/102019/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 30, 2016

William, My NEC Carotid Body Paraganglioma was active. Till NEC diagnosis I have been miss-diagnosed twice....

https://connect.mayoclinic.org/comment/971072/

Discussion: Anyone had nauseous, gas burping as symptoms for NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 27, 2023

Hi, Raj A. I am doing well,feel good have energy . I go to Mass general...

https://connect.mayoclinic.org/comment/1260966/

Discussion: Pancreatic Cancer: Anyone have liver metastasis after Whipple?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 18 9:00am

She is 59 years old, still works part time. She started with too many tumors to...

https://connect.mayoclinic.org/comment/1198148/

Discussion: Wondering if we are making the right choices in our NET fight.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 27, 2024

@rockchick I'm sorry about your diagnosis of NET on the pancreas. As your aware, none of...

https://connect.mayoclinic.org/comment/810956/

Discussion: Scared - Suspected NET on tail of the pancreas

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 13, 2023

In reply to your questions, I had breast cancer 9 years ago, so periodically have scans...

https://connect.mayoclinic.org/comment/1167626/

Discussion: Dotatate lights only in liver, but report says metastatic to liver?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 3, 2024

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