Neuroendocrine Tumors (NETs): Discussions | Page 57

I also concur with all of the above responses; I’m on year 3… Mine started as...

https://connect.mayoclinic.org/comment/1369496/

Discussion: Neuroendocrine Tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 12 11:18pm

You are welcome Teresa. I remember when I first got diagnosed 8/22/2022. Thee lead Doctor came...

https://connect.mayoclinic.org/comment/878357/

Discussion: My doctors know nothing

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 14, 2023

I’ve had 5 lanreotide shots and side effects less each time. Bloating is certainly one of...

https://connect.mayoclinic.org/comment/864105/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 21, 2023

In 2000 I had 2 pituitary tumor operations. Large tumor, but they had to take out...

https://connect.mayoclinic.org/comment/780134/

Discussion: Pituitary tumor symptoms: joint, muscle and body aches

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 2, 2022

@mdethardt: Sorry to learn of your disappointing experiences. NETS presents differently in patients and requires a...

https://connect.mayoclinic.org/comment/1356548/

Discussion: NET tumor of pancreas (1 cm) diagnosed

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 26 2:29am

My NET was primary in lung (Jan 2023) 3 cm and metastasized to liver stage 1,...

https://connect.mayoclinic.org/comment/1350571/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 17 5:33pm

Very interested in your second opinion that indicated you did not need the Octreotide injections. I...

https://connect.mayoclinic.org/comment/1171874/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 11, 2024

I was diagnosed with stage 4 advanced NET s primary in the small bowels, and metastasized...

https://connect.mayoclinic.org/comment/1112552/

Discussion: GI Net stage 4 advanced: Is it incurable?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 27, 2024

When my NET was diagnosed I was seeing an oncologist who immediately recommended chemo. At age...

https://connect.mayoclinic.org/comment/1030379/

Discussion: What questions should I ask oncologist tumor types and chemo treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 9, 2024

I am on Creon. It was prescribed to me after surgery. I had a very large...

https://connect.mayoclinic.org/comment/952517/

Discussion: Is everyone with pNETs on creon?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 23, 2023

@firepowr if you don’t mind me asking, what have they said about yours that is considered...

https://connect.mayoclinic.org/comment/813521/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 18, 2023

I started with two rounds of capecitabine/temozolamide, which did not work at all. I switched to...

https://connect.mayoclinic.org/comment/767094/

Discussion: Anyone gone to Mayo Clinic in Rochester Minnesota for carcinoid tumors?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 29, 2022

Just wanted to comment on this thread as I kind of had a similar experience. In...

https://connect.mayoclinic.org/comment/633582/

Discussion: Possible NET with No Evidence of Tumor: Mediastinal Mass

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 7, 2021

@helloitsme I had my pre chemo visit at Mayo Phoenix yesterday. Had some blood work done...

https://connect.mayoclinic.org/comment/851513/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 29, 2023

Hi Jlu, first off, wow 10x10cm is a very big tumor. And you have lots going...

https://connect.mayoclinic.org/comment/857723/

Discussion: 4 treatment options from my doctor, which one should I start with?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 10, 2023

@wkellett: Sorry to hear about your Mother’s discomfort. Rashes can appear for many reasons from strawberries...

https://connect.mayoclinic.org/comment/1369320/

Discussion: Rash side effect of Lutathera treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 12 5:07pm

Doctors are only human and do their best. With a less common condition like NET even...

https://connect.mayoclinic.org/comment/1373419/

Discussion: My doctors know nothing

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 18 11:00am

Hi, I'm new to the group but was reading about the NETs but I've never heard...

https://connect.mayoclinic.org/comment/1289033/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 24 2:30pm

I have Grade 1 stage 4 stage NET. The primary tumor was resected which was in...

https://connect.mayoclinic.org/comment/1216428/

Discussion: I am one year out with my diagnosis just finished 4th round of PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 19 10:34am

My experience: After discovery in Mar./2023 of a Grade 2, Small intestine NETs that metastasized to...

https://connect.mayoclinic.org/comment/1061064/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 2, 2024

Neuroendocrine Tumors (NETs) Support Group