Neuroendocrine Tumors (NETs) Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

1,626 total results

Comments (1,498)

To all of our NET members who live in or near the Minnesota area, I wanted...

https://connect.mayoclinic.org/comment/102042/

Discussion: Carcinoid cancer: Want to meet others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 18, 2018

My name is Mariana. I live in Dallas and was discovered during my first colonoscopy to...

https://connect.mayoclinic.org/comment/184525/

Discussion: Carcinoid Cancer and working

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 17, 2018

Mary, Thank you so much for reaching out and providing this info. I just emailed Dave...

https://connect.mayoclinic.org/comment/184523/

Discussion: Carcinoid Cancer and working

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14, 2018

Hi! My name is Nancy and I live in Cape Coral, Florida. I have been to...

https://connect.mayoclinic.org/comment/39442/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 6, 2018

Hello, I have been suffering from terrible vertigo. No understanding why but we think it is...

https://connect.mayoclinic.org/comment/184542/

Discussion: Carcinoid Cancer and working

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 19, 2018

Hello @lolorn and welcome to Mayo Connect While I am sorry to hear of your recent...

https://connect.mayoclinic.org/comment/134639/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 31, 2018

Hi there I am diagnosed with typical carcinoid that hssn’t Metastized the size is 1.5 ,...

https://connect.mayoclinic.org/comment/134273/

Discussion: Typical Carcinoid Tumor in Lungs

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 25, 2018

Sakota- Multifocal is a category of lung cancer that since 1960 was a redefined bronchioloalveolar carcinoma...

https://connect.mayoclinic.org/comment/232727/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Dec 8, 2018

@jenchaney727 Hi Jen: I agree! It was very informative for me. I learned a great deal....

https://connect.mayoclinic.org/comment/138594/

Discussion: Panel Discussion on NETs/Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 4, 2017

My husband has much the same type of NET as you. It is grade 1 but...

https://connect.mayoclinic.org/comment/837108/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 3, 2023

Hello @sidmom347 and welcome to the NETs discussion on Mayo Clinic Connect. I so applaud you...

https://connect.mayoclinic.org/comment/846445/

Discussion: What do I need to know about NETS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 20, 2023

@lenny48ca I can certainly understand that the uncertainty is disconcerting to you as it would be...

https://connect.mayoclinic.org/comment/852750/

Discussion: Has the NET found in my axilla or arm pit likely to have spread?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 1, 2023

Thank you for reporting on the Northwoods NETs conference. I was hoping it would be live...

https://connect.mayoclinic.org/comment/179465/

Discussion: Does Y-90 preclude PRRT?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 1, 2018

Here is my diet which covers almost every day of the year. Breakfast---a cup of coffee...

https://connect.mayoclinic.org/comment/856388/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 8, 2023

I've read previous comments & my experience has been mostly same as oncologist told me that...

https://connect.mayoclinic.org/comment/868242/

Discussion: Life expectancy with NETs and lifetyle as it progresses

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 28, 2023

Talkativeinfl, first of all, I’m so very sorry to hear about your husband’s situation and your...

https://connect.mayoclinic.org/comment/873777/

Discussion: Diagnosed with Stage 4 pNET: What should I know?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 6, 2023

Hi Faith: I went to the NIH in April, 2016. My mom never went there. She...

https://connect.mayoclinic.org/comment/163589/

Discussion: NIH clinical study looking for the gene causing carcinoid cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 13, 2017

I just want to say a big “thank you” to everyone who has taken the time...

https://connect.mayoclinic.org/comment/874478/

Discussion: Neuroendocrine tumor and carcinoid tumor

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 7, 2023

Our state of mind has a big effect on our dealing with and healing cancer. I'm...

https://connect.mayoclinic.org/comment/879645/

Discussion: Adenocarcinoma with Neuroendocrine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 16, 2023

I was diagnosed with pituitary adenoma and successfully had a large tumor surgically removed almost 15...

https://connect.mayoclinic.org/comment/610145/

Discussion: Pituitary tumor symptoms: joint, muscle and body aches

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 19, 2021

Digestive Health

Follow

12623

15 minutes ago

Pancreatic Cancer

Follow

2233

19 minutes ago

Follow

6928

27 minutes ago

Visiting Mayo Clinic

Follow

4521

1 hour ago

Follow

5511

1 hour ago