Neuroendocrine Tumors (NETs) Support Group

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Hello, My name is Dulce I was diagnosed with neuroendocrine cancer, which started in my duodenum...

https://connect.mayoclinic.org/comment/1198506/

Discussion: Anyone have experience with Acites?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 28, 2024

@jenniferrasigade I'm so glad that you posted again. I hope that your surgery goes well. Tumors...

https://connect.mayoclinic.org/comment/971201/

Discussion: Found PNET on tail of pancreas but told it’s nonfunctional

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 27, 2023

Hello @marifersitacastro and welcome to Mayo Clinic Connect! I appreciate you posting on behalf of your...

https://connect.mayoclinic.org/comment/612483/

Discussion: Interested in hearing people's experiences with PRRT

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 29, 2021

I have pancreatic NET , grade 2, stage 4 with liver metastases. Had debulking surgery on...

https://connect.mayoclinic.org/comment/1286484/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 21 7:38am

On a Thursday a MRI on my prostrate showed suspicious cancer in the small intestine my...

https://connect.mayoclinic.org/comment/750473/

Discussion: Just got the news… stage 2 Carcinoid tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 16, 2022

Yes I had all those test including 5-H1AA urine test. A liver biopsy determined it was...

https://connect.mayoclinic.org/comment/1261353/

Discussion: Diagnosing small bowel NETs with carcinoid syndrome

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 18 4:25pm

Has anyone tried Histotripsy? My husband has Cholangiocarcinoma and has done well with chemo and now...

https://connect.mayoclinic.org/comment/1149765/

Discussion: Has anyone out there tried Histotripsy for tumors in the liver?

Support Group: Liver Cancer

Posted: Sep 30, 2024

I was diagnosed Dec. 2021 Tumors started in the small intestines and metastasized to the liver...

https://connect.mayoclinic.org/comment/1035643/

Discussion: What questions should I ask oncologist tumor types and chemo treatment

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 18, 2024

What type of embolization did you have? Did it include radiation? I have been on lanreotide...

https://connect.mayoclinic.org/comment/977539/

Discussion: After liver embolization: Looking for the best diet + food suggestions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 9, 2023

Very similar symptoms. Stomach pain, constant diarrhea, and always feeling sick that got progressively worse over...

https://connect.mayoclinic.org/comment/951274/

Discussion: Is everyone with pNETs on creon?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 21, 2023

I hope my comments helped. Good luck. You have nothing to lose by trying dietary restrictions....

https://connect.mayoclinic.org/comment/854487/

Discussion: Just diagnosed: Metastatic NETs. Treatment?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 4, 2023

I had all the NET at a before being diagnosed, probably for 5 years they CAT...

https://connect.mayoclinic.org/comment/1057160/

Discussion: Flushing with NETS lung cancer?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 25, 2024

I should mind my own business However! I have had 4 different options if there is...

https://connect.mayoclinic.org/comment/1028520/

Discussion: Prognosis for Metastasized NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 6, 2024

The only effect I have with carcinoid syndrome is flushing heat , my face and ears...

https://connect.mayoclinic.org/comment/843667/

Discussion: Differentiating Carcinoid syndrome from MCAS?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 15, 2023

Thank you some much for posting the video! Gave me a lot of answers. I am...

https://connect.mayoclinic.org/comment/766068/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 27, 2022

Sorry to ask for more specifics, but when you say right sided abdominal pain, is it...

https://connect.mayoclinic.org/comment/137541/

Discussion: My Husband was newly diagnosed with Carcinoid Cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15, 2017

There are some limitations on it, for it's use now that it is FDA approved. It...

https://connect.mayoclinic.org/comment/1015375/

Discussion: Anyone heard about Histotripsy for liver NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 13, 2024

Thanks @helpful33250 (great name) I just had my first shot of Lanreotide on 08/18 and yes,...

https://connect.mayoclinic.org/comment/921461/

Discussion: Laparoscopic Possible Open Surgery Resection - Small Bowel NETS

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 30, 2023

Hi My sugars dropped to 37 last July when I passed out in my car....found the...

https://connect.mayoclinic.org/comment/811873/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15, 2023

Hello @margaret12 and welcome to Mayo Clinic Connect. You have asked many questions about liver Mets...

https://connect.mayoclinic.org/comment/748814/

Discussion: Liver mets mistaken as hemangioma or harmatoma on MRI

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 12, 2022

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