Neuroendocrine Tumors (NETs) Support Group

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I also have the same condition . I am 72 , diagnosed 8 years ago ....

https://connect.mayoclinic.org/comment/1142709/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 16 11:10pm

@jhhaas Good idea to get a second opinion. Glad you don’t have coughing. Octreotide also helps...

https://connect.mayoclinic.org/comment/1143685/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 18 7:33pm

It depends on where you live .

https://connect.mayoclinic.org/comment/1158453/

Discussion: Merkel Cell Carcinoma: I'd like to hear from others

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 17 10:34am

I has dx’d with DIPNECH last fall after having my right middle lobe removed for 1...

https://connect.mayoclinic.org/comment/1143500/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 18 11:34am

I am 75 and was diagnosed 6years ago, I had half my right lung removed and...

https://connect.mayoclinic.org/comment/1142704/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 16 11:01pm

My dipnech was also found by chance, I had fallen down some steps and landed on...

https://connect.mayoclinic.org/comment/1143736/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 18 11:23pm

@astaingegerdm im trying to get help with neurologist but they seem not concerned even tho I’m...

https://connect.mayoclinic.org/comment/788262/

Discussion: Pituitary tumor symptoms: joint, muscle and body aches

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 24, 2022

Welcome, @links. You may wish to connect with others living with insulinoma neuroendocrine tumor in this...

https://connect.mayoclinic.org/comment/788205/

Discussion: NETs: Anyone has Liver debulking for liver metastasis?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 23, 2022

@nohrt4me, you will find many resources and programs for all types of cancers, including chronic management...

https://connect.mayoclinic.org/comment/697755/

Discussion: Stress Management for Cancer: Free online course from Mayo

Support Group: Cancer: Managing Symptoms

Posted: Apr 10, 2022

Live each and everyday. Don't put off important things that make a difference to you. Be...

https://connect.mayoclinic.org/comment/742098/

Discussion: Treatments for Carcinoids

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 26, 2022

I was the point person, in a sense, when a friend was recovering from a broken...

https://connect.mayoclinic.org/comment/707006/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: May 10, 2022

Hello I all just joined. I have just been diagnosed with a stage 3 slow growing...

https://connect.mayoclinic.org/comment/817654/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 26, 2023

I also have fast growing NET tumors. Chemo has shrunk my tumors considerably. My story is...

https://connect.mayoclinic.org/comment/812270/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 16, 2023

Hi @kim2022 I see this post is from November of last year. Hope all is going...

https://connect.mayoclinic.org/comment/807987/

Discussion: Stage 4, High-Grade Neuroendocrine carcinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 8, 2023

the town of Rochester is all about services to Mayo patients-hotel shuttles, meal delivery—all very supportive....

https://connect.mayoclinic.org/comment/838084/

Discussion: Anyone gone to Mayo Clinic in Rochester Minnesota for carcinoid tumors?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 5, 2023

Colleen - thanks for responding. My wife has not been identified as having a neuroendocrine tumor....

https://connect.mayoclinic.org/comment/832434/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 26, 2023

Had my 2nd injection April 13th will have them every 28 days, June I have a...

https://connect.mayoclinic.org/comment/831846/

Discussion: Anyone treated for NETs at Mayo Clinic in Jacksonville, FL

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 25, 2023

My NETs was found during an episode of jaundice, where a bile duct was blocked by...

https://connect.mayoclinic.org/comment/755807/

Discussion: Need help with diet after a hemicolectomy....

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 1, 2022

Here is another learning opportunity for NETs patients. This one is hosted by LACNETs Team. This...

https://connect.mayoclinic.org/comment/674838/

Discussion: Learn About NETs and monthly meetings

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 25, 2022

Thank you. Yes I have good support. Your advice is well taken!! I would feel better...

https://connect.mayoclinic.org/comment/674208/

Discussion: High or Fluctuating Chromogranin A Level: What does it mean?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 23, 2022

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