Neuroendocrine Tumors (NETs) Support Group

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Hello @wolf359 and welcome to the NETs support group on Mayo Connect. I so appreciate you...

https://connect.mayoclinic.org/comment/930465/

Discussion: Anyone still have pancreas pain while taking Lanteotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 15, 2023

Thanks! We got a CT scan earlier this week and met with our cancer team today....

https://connect.mayoclinic.org/comment/887433/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 29, 2023

My husband was diagnosed 2 years ago after finding a 2” tumor pressing on his spinal...

https://connect.mayoclinic.org/comment/885643/

Discussion: NETs: Scheduled for small intestine resection: What to expect?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 26, 2023

@kim1965 Hi kim1965 A lot has gone on since my last post. My tumor is stage...

https://connect.mayoclinic.org/comment/837243/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 4, 2023

Colleen, Thank you! I was concerned with the growth hormone because it does make his organs...

https://connect.mayoclinic.org/comment/675397/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 27, 2022

I couch any comment we 'we are all different' and the treatment strategies are diverse and...

https://connect.mayoclinic.org/comment/671329/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 16, 2022

Hello. I’m sorry to hear that you are dealing with recurrence. Do you mind sharing where...

https://connect.mayoclinic.org/comment/1242639/

Discussion: New Diagnosis: husband's labs are all indicating NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 21 10:33pm

I was diagnosed with a PNET in 11/2022. It is a well differentiated tumor of 1.3...

https://connect.mayoclinic.org/comment/971141/

Discussion: Found PNET on tail of pancreas but told it’s nonfunctional

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 27, 2023

Hello. Diagnosed almost 2 years ago. Had one year of uncontrollable diarrhea. Diagnosed with IBS at...

https://connect.mayoclinic.org/comment/952145/

Discussion: Is everyone with pNETs on creon?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 22, 2023

Hi Nana120 I can relate to you. I am having my 3rd Lanreotide this week. I...

https://connect.mayoclinic.org/comment/940604/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 2, 2023

Hello, my husband was diagnosed with stage four metastatic PNET cancer last October. He has a...

https://connect.mayoclinic.org/comment/866675/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 25, 2023

Many factors to consider—grade of tumors, locations, whether well-differentiated or poorly differentiated. A close friend of...

https://connect.mayoclinic.org/comment/861020/

Discussion: Dying from car accident can cause death more so this cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 17, 2023

I forgot to mention there are no support groups here because it’s somewhat secluded (like the...

https://connect.mayoclinic.org/comment/184514/

Discussion: Carcinoid Cancer and working

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 13, 2018

@harley4650 I found an article about the two west coast hospitals offering histotripsy -- second link....

https://connect.mayoclinic.org/comment/1047147/

Discussion: Spreading NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 7, 2024

My NET story is similar to yours--small intestines metastasized to liver. I get the same monthly...

https://connect.mayoclinic.org/comment/1321054/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 5 5:27pm

Your story is similar to mine. I was diagnosed with pancreatic cancer stage 2 & liver...

https://connect.mayoclinic.org/comment/1332672/

Discussion: Stage 4 grade2 Pancreatic Neuroendocrine ki67 20% Lanreotide

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 22 11:22am

Funny story went to the hospital years ago and they never found anything other than an...

https://connect.mayoclinic.org/comment/1047775/

Discussion: Spreading NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 9, 2024

How old are you? Why watch and wait? I had symptoms of GERD and rheumatoid arthritis...

https://connect.mayoclinic.org/comment/1077422/

Discussion: Anyone diagnosed with NET, Grade II of the esophagus/stomach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 29, 2024

My pNET is also grade 2 stage 4 with liver metastases. I had my 4th injection...

https://connect.mayoclinic.org/comment/875710/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 9, 2023

Just went to the first oncologist appointment. After my doctor discussed with the hospital tumor board...

https://connect.mayoclinic.org/comment/812004/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15, 2023

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