Neuroendocrine Tumors (NETs): Discussions | Page 52

Hi Carrie! I am do sorry to hear your news and I completely empathize with your...

https://connect.mayoclinic.org/comment/1073202/

Discussion: Neuroendocrine Carcinoma with Liver Metastasis

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 23, 2024

Please see questions in string below. I think some may have ventured off and begun answering...

https://connect.mayoclinic.org/comment/1316236/

Discussion: Pancreatic Cancer Q&A with Dr. Stauffer, Mayo Surgeon: May 29

Support Group: Pancreatic Cancer

Posted: May 30 6:44am

I just completed my last PRRT (Lutathera)treatment in May, I had a scan before my third...

https://connect.mayoclinic.org/comment/1324144/

Discussion: Advice for Preparations and Expectations on starting PRRT?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 10 9:03am

Hi! I have been receiving Octreotide injections once a month for about a year now. For...

https://connect.mayoclinic.org/comment/1196315/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 24, 2024

I also experience profuse sweating similar to hot flashes and weakness, I lay down or did...

https://connect.mayoclinic.org/comment/1235397/

Discussion: Has anyone chosen the Watch and Wait and regretted that choice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 12 3:10pm

@vinnie694: to Vinnie and others on Lutathera PRRT infusions for NET tumor progression! I had Lutathera...

https://connect.mayoclinic.org/comment/1284269/

Discussion: NET in jejunum spread to liver: Treatment options?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 17 7:52pm

@colleenyoung Thank you so much for welcoming me and for your quick response and encouraging words....

https://connect.mayoclinic.org/comment/777322/

Discussion: Merkel cell-radiation effective on chest-new 2 cm spot on liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 25, 2022

I was diagnosed with Grade2 Stage IV metastasized from small intestines to liver. PET scan validated...

https://connect.mayoclinic.org/comment/1162526/

Discussion: NET on liver: Question about treatments when no symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 25, 2024

My tumors started in the small intestine and metastasized to the liver before I was diagnosed....

https://connect.mayoclinic.org/comment/1072655/

Discussion: Flushing with NETS lung cancer?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 22, 2024

Hi, I'm new to this group. Was dx Dece. of 2021 after developing a bowel obstruction....

https://connect.mayoclinic.org/comment/826685/

Discussion: Lanreotide Manufacturers: anyone have experience with either?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 15, 2023

Hi Kim I'm so excited for you! I go to the MD Anderson here in az...

https://connect.mayoclinic.org/comment/802382/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 27, 2023

I had a liver tumor biopsy in October even though the doctors and I all knew...

https://connect.mayoclinic.org/comment/795174/

Discussion: Bland embolization or transarterial chemoembolization (TACE)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 11, 2023

I had very high tumor burden to both sides of the liver. Primary pancreatic gastrinomas causing...

https://connect.mayoclinic.org/comment/1335396/

Discussion: Y90 AND Captem Combo

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 26 7:39am

Wow thats a lot to deal with at once. I've been dealing with it since 2020...

https://connect.mayoclinic.org/comment/1289339/

Discussion: New To NETS - Stage 4 / Grade 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 25 6:09am

I weigh 175 told I have fatty liver and visceral fat in abdomen. My appetite is...

https://connect.mayoclinic.org/comment/1306163/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 17 11:26am

Hi, This is my first post on this site. Just discovered it a few days ago....

https://connect.mayoclinic.org/comment/1227799/

Discussion: New Diagnosis: husband's labs are all indicating NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 2 2:17pm

I live in Canada: aside from having a Whipple / liver debulking in October 2023 and...

https://connect.mayoclinic.org/comment/1260313/

Discussion: Living with Neuroendocrine NETS, any advice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 17 12:08pm

Thank you for your reply. Where is Dr Lui located? So you received three opinions and...

https://connect.mayoclinic.org/comment/1145815/

Discussion: Diagnosed with Stage 4 pancreatic neuroendocrine metastasized to liver

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 22, 2024

Chemo worked for me with my pnet. I was on CAPTEM for 13 months and now...

https://connect.mayoclinic.org/comment/1030195/

Discussion: High risk surgery. Is it worth it?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 8, 2024

I eat banana pancakes once or 2 times a week ( 1egg, 1/4 cup of oats,...

https://connect.mayoclinic.org/comment/939571/

Discussion: Updating about My Lanreotide Injections & CT Scan

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 30, 2023

Neuroendocrine Tumors (NETs) Support Group