Neuroendocrine Tumors (NETs): Discussions | Page 52

Hi @kt348 I had a similar experience during a endoscopic ultrasound of a liver biopsy. My...

https://connect.mayoclinic.org/comment/762551/

Discussion: Just diagnosed with pancreatic NET stage 1

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 18, 2022

I am 48, well-diff, grade 3 (ki67 17-29), unknown primary with tumors in liver (innumerable), pancreas,...

https://connect.mayoclinic.org/comment/1117054/

Discussion: Everolimus for multiple Neuroendocrine tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 3 11:35am

Patrick, you have helped me immensely! I can't believe I found someone else that has this!...

https://connect.mayoclinic.org/comment/908215/

Discussion: Has anyone had NETs metastasized to heart?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 5, 2023

Has anyone been advised to use a celiac plexus nerve block for back and upper abdominal...

https://connect.mayoclinic.org/comment/1019957/

Discussion: Anyone had plexus nerve block for cancer pain?

Support Group: Pancreatic Cancer

Posted: Feb 21 2:36pm

Welcome to the group! To say the least insulinomas can be challenging! Every case is a...

https://connect.mayoclinic.org/comment/1113245/

Discussion: Pancreatic neuroendocrine insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 28 10:59am

Hello Theresa. Thank you for your interest in my daughter. I forgot to mention that my...

https://connect.mayoclinic.org/comment/793404/

Discussion: Newly diagnosed - neuroendocrine tumor in intestines

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 7, 2023

I was diagnosed in Jan 2019 with a well-differentiated, functioning Net with a Ki-67 index of...

https://connect.mayoclinic.org/comment/1028134/

Discussion: Prognosis for Metastasized NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 5 1:35pm

I did have a good experience in NC. Duke is where my initial diagnosis and was...

https://connect.mayoclinic.org/comment/1037088/

Discussion: Does Mayo Clinic do insulinoma testing?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 20 11:02am

@mgreene No problem regarding the error in the date - I understood what you were trying...

https://connect.mayoclinic.org/comment/184534/

Discussion: Carcinoid Cancer and working

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 19, 2018

I guess its time for an update. On April 14'th Dr Cleary and his team went...

https://connect.mayoclinic.org/comment/849178/

Discussion: Has anyone chosen the Watch and Wait and regretted that choice?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 25, 2023

Super sorry for the delay everyone! It’s been a hectic work week and school week as...

https://connect.mayoclinic.org/comment/162791/

Discussion: Diagnosed with aggressive NET. Happy to see this group!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 13, 2017

I agree with other comments you need to respectfully push your care team for possible treatments...

https://connect.mayoclinic.org/comment/889727/

Discussion: NET symptoms despite follow-up lab work ok

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 4, 2023

Dear Carcinoid. From reading the posts it seems that you have done all the things I...

https://connect.mayoclinic.org/comment/240134/

Discussion: Carcinoid cancer in intestine or NETs (Neuroendocrine Tumors)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 18, 2019

Hello @somefan and welcome to Mayo Connect, As a NET survivor myself (3 X) I'm sorry...

https://connect.mayoclinic.org/comment/162788/

Discussion: Diagnosed with aggressive NET. Happy to see this group!

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 4, 2017

This site is new to me. I was diagnosed with NET and Carcinoid Syndrome in 2013....

https://connect.mayoclinic.org/comment/849237/

Discussion: Anyone else get bloating and abdominal pain from NETS or Lanreotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 25, 2023

Hi dbamos1945. I would think you have both cysts and solid tumors in your liver. A...

https://connect.mayoclinic.org/comment/819906/

Discussion: Lesions, Cystic liver mets, vs Tumors

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 2, 2023

Well, let me know if there is anything that I can do to help. I just...

https://connect.mayoclinic.org/comment/839539/

Discussion: High grade 2 and 3 neuroendocrine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 7, 2023

Hello @sandy23 I'm just now catching up on your posts that started on October 7. I...

https://connect.mayoclinic.org/comment/762504/

Discussion: Prognosis for Metastasized NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 18, 2022

Hello All in the NETs discussion groups. Here is a learning opportunity for all NETs patients...

https://connect.mayoclinic.org/comment/857594/

Discussion: Learn About NETs and monthly meetings

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 10, 2023

@fabiant No she had a open incision, about 12" from center of stomach up. So a...

https://connect.mayoclinic.org/comment/848829/

Discussion: PNET Surgery: My recovery journey

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 24, 2023

Neuroendocrine Tumors (NETs) Support Group