Neuroendocrine Tumors (NETs): Discussions | Page 51

Insulinoma diagnosed in 12/23. In 12/24 went into physical therapy for sharp back pain, which I...

https://connect.mayoclinic.org/comment/1351595/

Discussion: Insulinoma and back pain

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 19 10:49am

Hi there, my hubs had had NETS (neoendrocrine tumors) since 2019. I saw the above post...

https://connect.mayoclinic.org/comment/1231187/

Discussion: Lanreotide Question

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 7 1:05am

I appreciate that you shared your experiences with me. I am thinking of going for a...

https://connect.mayoclinic.org/comment/859481/

Discussion: Just diagnosed with PNET: Any thoughts on watch & wait approach?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 13, 2023

I was diagnosed with a NET on the head of my pancreas at 42, after 6...

https://connect.mayoclinic.org/comment/783855/

Discussion: Anyone out there have PNET experiences and outcomes to share?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 12, 2022

When he was diagnosed it was already metastasized throughout his whole body. That same year they...

https://connect.mayoclinic.org/comment/176684/

Discussion: Anyone treated for NETs at Mayo Clinic in Jacksonville, FL

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 19, 2018

When my husband Joe was diagnosed it was already metastasized throughout his body. That first year...

https://connect.mayoclinic.org/comment/181984/

Discussion: Anyone have a paraganglioma?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 19, 2018

Hi, @amani79--My father-in-law was diagnosed last spring, after having a suspicious spot on his liver for...

https://connect.mayoclinic.org/comment/163140/

Discussion: How to get a second opinion for an international patient??

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 10, 2017

Hi @Sweet 63, My wife Kim was diagnosed with NET in April of this year. We...

https://connect.mayoclinic.org/comment/777027/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 24, 2022

Thank you for all the information. I have nonfunctioning lung to liver Net just found out...

https://connect.mayoclinic.org/comment/671705/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 17, 2022

My “guess” on why the PET scan wasn’t ordered is due to it being stage 1/small...

https://connect.mayoclinic.org/comment/1354134/

Discussion: Initial imaging and tests; what to expect after initial NETs diagnosis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jul 22 5:02pm

Hey. Good morning to you. I am doing great. I woke up. How are you today?...

https://connect.mayoclinic.org/comment/1373430/

Discussion: My doctors know nothing

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 18 11:09am

I'm so sorry you have to go through this and understand your fear. The waiting is...

https://connect.mayoclinic.org/comment/1398686/

Discussion: New pNET so scared

Support Group: Neuroendocrine Tumors (NETs)

Posted: 3 days ago

I had sporadic diarrhea for quite a few years, the hot flashes pretty much started when...

https://connect.mayoclinic.org/comment/1295510/

Discussion: What should I do? Carcinoid symptoms but no answers.

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 3 7:48am

I received my Mayo Clinic e- consult. They agreed with the biopsy finding I had from...

https://connect.mayoclinic.org/comment/1161712/

Discussion: NET on liver: Question about treatments when no symptoms

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 23, 2024

I have metastasis liver net with unknown primary they believe it is in my gut I...

https://connect.mayoclinic.org/comment/922592/

Discussion: Anyone still have pancreas pain while taking Lanteotide?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Sep 1, 2023

I have had 11 tumors removed from pancreas in 2 surgeries. They were grade 2 tumors....

https://connect.mayoclinic.org/comment/843298/

Discussion: Recurrence in Liver after Whipple

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 14, 2023

My symptoms were bloating, severe abdominal pain resulting in slight temperature spike and vomiting. This happen...

https://connect.mayoclinic.org/comment/829669/

Discussion: Lost with no confirmation of NETs origin: Innumerable liver lesions

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 21, 2023

I was on Flofox chemotherapy for six months and my tumors [liver and pancreas] and a...

https://connect.mayoclinic.org/comment/824415/

Discussion: NET lung with Liver Metastasis (stage 4)

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 11, 2023

Hello - one year ago August of ‘23 I was diagnosed with Acinar Pancreatic Cancer with...

https://connect.mayoclinic.org/comment/1166095/

Discussion: Anyone have Pancreatic Acinar Cell Carcinoma?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 1, 2024

Thanks for sharing, my experience was very similar (see below) additionally they removed the right side...

https://connect.mayoclinic.org/comment/1236619/

Discussion: I recently had surgery to remove NET in small intestine

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 14 9:11am

Neuroendocrine Tumors (NETs) Support Group