Neuroendocrine Tumors (NETs): Discussions | Page 101

@sturns - I’m sorry to hear about your wife’s struggle with her treatments, but the results...

https://connect.mayoclinic.org/comment/780522/

Discussion: Pituitary tumor symptoms: joint, muscle and body aches

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 3, 2022

@georgiamartin - It must be difficult to live with that pain for so long and no...

https://connect.mayoclinic.org/comment/780279/

Discussion: Pituitary tumor symptoms: joint, muscle and body aches

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 2, 2022

Hello everyone. New to everything. Stage 4 but what is NET? Diagnosis is Neuroendocrine pancreatic tumor...

https://connect.mayoclinic.org/comment/776776/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 23, 2022

Hi. Good to hear from you. I will try to help. What I have done has...

https://connect.mayoclinic.org/comment/776368/

Discussion: Prognosis for Metastasized NET

Support Group: Neuroendocrine Tumors (NETs)

Posted: Nov 22, 2022

Hello everyone. I have bilateral Pheochromocytoma's on both my adrenal glands. I live in Oregon. This...

https://connect.mayoclinic.org/comment/764174/

Discussion: Welcome to the NETs Group! Come say hi.

Support Group: Neuroendocrine Tumors (NETs)

Posted: Oct 22, 2022

Hi, its so good to meet someone going through the same thing. were you a patient...

https://connect.mayoclinic.org/comment/743510/

Discussion: Linear endocrine cells hyperplasia & Autoimmune Gastritis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 30, 2022

Hi, yes i have lost confidence in my former medical team for a dozen of reasons....

https://connect.mayoclinic.org/comment/740221/

Discussion: Linear endocrine cells hyperplasia & Autoimmune Gastritis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 22, 2022

Hi and thanks for your response. I have 3 people including the doctor say how there...

https://connect.mayoclinic.org/comment/739682/

Discussion: Linear endocrine cells hyperplasia & Autoimmune Gastritis

Support Group: Neuroendocrine Tumors (NETs)

Posted: Aug 20, 2022

My PCP ordered a 5HIAA based on his opinion that I have carcinoid syndrone. It came...

https://connect.mayoclinic.org/comment/721534/

Discussion: Looking for neuroendocrine tumor (NET) with carcinoid syndrome support

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 27, 2022

Welcome @laurell410. I look forward to learning more about you. What type of NETs do you...

https://connect.mayoclinic.org/comment/692346/

Discussion: Any NET patients from NYC

Support Group: Neuroendocrine Tumors (NETs)

Posted: Mar 23, 2022

@remi @jhilbish @cvb @lenorahaston @captain1950 @khauert @tomewilson @alphanumeric @gulzar @megansims @netpatient @kate12345 @amd12 @tatteesmom3 @elm60 I'm...

https://connect.mayoclinic.org/comment/681229/

Discussion: What’s next: Seeking advice on how to navigate diagnosis appointments?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 15, 2022

Hi Steph, Do you know about the free Concierge Services at Mayo Clinic? You can get...

https://connect.mayoclinic.org/comment/610621/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jun 21, 2021

@tkubista, congrats on embracing life and living cancer free. When are your next scans? What does...

https://connect.mayoclinic.org/comment/329145/

Discussion: Small bowel NET and colon cancer

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 18, 2021

As you may already know ( I did reply last week ) I had surgery at...

https://connect.mayoclinic.org/comment/134708/

Discussion: NET - Insulinoma

Support Group: Neuroendocrine Tumors (NETs)

Posted: Dec 15, 2020

Are you currently suffering any symptoms? Because if not, the "waiting game" as you call it...

https://connect.mayoclinic.org/comment/1281617/

Discussion: Cu-64 Dotatate PET results show no malignancy. What’s next?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 14 10:51am

Hi rogo yes I live with diagnosis of DIPNECH & lung neuroendocrine cancer (Typical tumor)confirmed by...

https://connect.mayoclinic.org/comment/1288532/

Discussion: Anyone living long-term with DIPNECH on lungs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 23 10:55pm

Taking the shot is literally a pain in the butt! I am like you no more...

https://connect.mayoclinic.org/comment/1289445/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Apr 25 8:37am

Hello all! I am new to this Mayo Connect and responding to sophiarose: no epi because...

https://connect.mayoclinic.org/comment/1207691/

Discussion: What does my dentist need to know about my NETs?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 9 1:11pm

Yep, always out of the fridge for at least 12 hours before but it's not the...

https://connect.mayoclinic.org/comment/1305861/

Discussion: Any one with Neuroendocrine tumors getting the shot once a month?

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 17 2:44am

I was diagnosed at Stanford by Dr. Jeffrey Norton and his team. I have a genetic...

https://connect.mayoclinic.org/comment/1315141/

Discussion: New PNET

Support Group: Neuroendocrine Tumors (NETs)

Posted: May 28 4:32pm

Neuroendocrine Tumors (NETs) Support Group