Head & Neck Cancer Support Group

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Well let me tell you that I have been in the exact same situation as you...

https://connect.mayoclinic.org/comment/859559/

Discussion: Tonsil cancer?

Support Group: Head & Neck Cancer

Posted: May 14, 2023

Be patient. I went through this 24 years ago. You can exercise by buying some tongue...

https://connect.mayoclinic.org/comment/1118228/

Discussion: Nerve damage and unable to open mouth much. Stiff jaw.

Support Group: Head & Neck Cancer

Posted: Aug 5 10:04am

I can't swear this will help with radiation burns, but the singular best thing that I've...

https://connect.mayoclinic.org/comment/706795/

Discussion: My Dad has terrible burns from radiation. Any suggestions to help?

Support Group: Cancer

Posted: May 9, 2022

Congrats on five years plus. Thank you for your response. My taste buds, neuropathy, runny nose,...

https://connect.mayoclinic.org/comment/174405/

Discussion: Meet others living with Head & Neck Cancer: Introduce yourself

Support Group: Head & Neck Cancer

Posted: Jan 12, 2018

I’ve inoperable HPV 16 carcinoma at the base of tongue, T1, N0, M0. Ive been through...

https://connect.mayoclinic.org/comment/648673/

Discussion: Trismus (lock jaw) after Head & Neck cancer treatment: What helps?

Support Group: Head & Neck Cancer

Posted: Oct 27, 2021

I start treatment on 3/13. My simulation is scheduled for 2/28 and I'll know more details...

https://connect.mayoclinic.org/comment/816359/

Discussion: Questions about de-escalation radiation

Support Group: Head & Neck Cancer

Posted: Feb 23, 2023

Not sure if it will help you, Tom, but I heard from patient stories that went...

https://connect.mayoclinic.org/comment/947223/

Discussion: Diagnosed with Ameloblastoma

Support Group: Head & Neck Cancer

Posted: Oct 13, 2023

Radiation after a mandible replacement seems odd however every case is different. I had a prosthetic...

https://connect.mayoclinic.org/comment/1014280/

Discussion: Should I get a bridge to replace teeth from removed jaw?

Support Group: Head & Neck Cancer

Posted: Feb 12 10:04am

They usually wait 90 days or so after your last treatment for the PET scan. Mine...

https://connect.mayoclinic.org/comment/763115/

Discussion: Tongue Cancer: What are my treatment options?

Support Group: Head & Neck Cancer

Posted: Oct 19, 2022

@fwpoole, I noticed that you posted the same message in the ENT group as well. I...

https://connect.mayoclinic.org/comment/684452/

Discussion: 3 weeks Laryngitis or Hoarse voice: Late side effect of radiation?

Support Group: Head & Neck Cancer

Posted: Feb 25, 2022

I agree our case is different. Attended at our Family Dr beforehand when tongue seemed heavy...

https://connect.mayoclinic.org/comment/172489/

Discussion: Adenoid cystic carcinoma - left tongue base

Support Group: Head & Neck Cancer

Posted: Oct 23, 2017

Second day of rad/chemo included a swallow test to check for possibility of aspiration and to...

https://connect.mayoclinic.org/comment/898225/

Discussion: Husband diagnosed with tonsil cancer: looking for tips and support

Support Group: Head & Neck Cancer

Posted: Jul 18, 2023

I also have multifocal adenocarcinoma , was diagnosed in 2011 at mayo. Have had two surgeries...

https://connect.mayoclinic.org/comment/233083/

Discussion: Facing Cancer Recurrence, PTSD & Acknowledging Mental Health

Support Group: Cancer: Managing Symptoms

Posted: Sep 20, 2019

Sounds pretty much like mine. Lump was movable went to my doctor and she set me...

https://connect.mayoclinic.org/comment/1047261/

Discussion: I need some advice or some idea of what I'm dealing with

Support Group: Head & Neck Cancer

Posted: Apr 8 8:38am

Hi @lindst427 It's not uncommon for this "trismus" to occur after head and neck surgery or...

https://connect.mayoclinic.org/comment/602605/

Discussion: Trismus (lock jaw) after Head & Neck cancer treatment: What helps?

Support Group: Head & Neck Cancer

Posted: May 18, 2021

Have them check his thyroid again. I’ve just been put on meds-same cancer. It’s going to...

https://connect.mayoclinic.org/comment/1106030/

Discussion: When do you start getting energy after radiation?

Support Group: Head & Neck Cancer

Posted: Jul 15 11:46am

Yes. I have Squamous Cell Carcinoma. I had surgery in May - removed left parotid, left...

https://connect.mayoclinic.org/comment/1009459/

Discussion: Squamous cell carcinoma (SCC) P16+

Support Group: Head & Neck Cancer

Posted: Feb 4 12:09pm

I was diagnosed with same sort of cancer in Feb. Mayo Drs recommended 7 weeks radiation....

https://connect.mayoclinic.org/comment/884731/

Discussion: Husband diagnosed with tonsil cancer: looking for tips and support

Support Group: Head & Neck Cancer

Posted: Jun 25, 2023

I was told by my ENT that by post 12 months, you might not get any...

https://connect.mayoclinic.org/comment/933570/

Discussion: How long before my taste buds recover after H&N treatments?

Support Group: Head & Neck Cancer

Posted: Sep 21, 2023

The surgeon got clean margins with the residual surgery. Cancerous tumor was in my right tonsil...

https://connect.mayoclinic.org/comment/910064/

Discussion: Swallowing liquids after throat surgery and lymph node dissection

Support Group: Head & Neck Cancer

Posted: Aug 9, 2023

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