Blood Cancers & Disorders Support Group

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Comment

Yes, i'm dealing with JAK 2 mutation, had a biopsy which confirmed MDS/MPN syndrome. I take...

https://connect.mayoclinic.org/comment/777367/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2022

Comment

I’m newly diagnosed with ET with a JAK 2 mutation, at 69 years old. Hematologist wants...

https://connect.mayoclinic.org/comment/726658/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2022

Comment

Hang in there @pennyhedgecoth e! Has a JAK 2 gene or CALR mutation been revealed in...

https://connect.mayoclinic.org/comment/616434/

Discussion: JAK2 ASXL1 Mutations: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jul 14, 2021

Comment

Hi. I asked my hematologist/oncologist which stage I'm in for each cancer and the number of...

https://connect.mayoclinic.org/comment/284528/

Discussion: Jak 2 and Waldenstrom's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Dec 30, 2019

Comment

Thank you so much for sharing with me what's going on with you. I had pain...

https://connect.mayoclinic.org/comment/218738/

Discussion: Want to connect with others with Splenic B cell Marginal Zone Lymphoma

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2019

Comment

I was diagnosed at age 46 with Polycythemia Vera and am JAK-2 positive. My treatments have...

https://connect.mayoclinic.org/comment/194278/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jan 23, 2019

Comment

Hello, I see you're taking both Nattokinase and aspirin. I just started on my journey being...

https://connect.mayoclinic.org/comment/1258964/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 15 8:02pm

Comment

First, Im sorry for your loss. Second, thank God for your husband. Now, and I will...

https://connect.mayoclinic.org/comment/1277843/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 9 11:41am

Comment

I’m on my second month of Jakafi. I’ve had no side effects and so far my...

https://connect.mayoclinic.org/comment/1200841/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Dec 31, 2024

Comment

Some commenters experienced a gradual increase of platelets. Mine shot up from 250 in July 2024...

https://connect.mayoclinic.org/comment/1269150/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Mar 29 8:11am