Blood Cancers & Disorders Support Group

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Comment

Hello @momoffivetoo. I’m 77 now and was diagnosed with PV in 1/2020. It was discovered by...

https://connect.mayoclinic.org/comment/1277135/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 8 11:58am

Comment

Hi @ruthiek519 , Happy belated Birthday despite getting the diagnosis none of us want. I think...

https://connect.mayoclinic.org/comment/1312721/

Discussion: Getting nowhere with current Hematologist

Support Group: Blood Cancers & Disorders

Posted: May 25 3:50pm

Comment

Really glad to hear you were diagnosed before having a stroke or heart attack I, too,...

https://connect.mayoclinic.org/comment/1374970/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 20 10:15am

Comment

Hi Ana, Your question and comments and the replies are already helpful to me; my thanks...

https://connect.mayoclinic.org/comment/1373955/

Discussion: Essential thrombocythemia (ET): When to start hydroxyurea (HU)?

Support Group: Blood Cancers & Disorders

Posted: Aug 19 12:38am

Comment

Hi I just joined this group and I was JAK 2 positive also .. my doctor...

https://connect.mayoclinic.org/comment/1350332/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jul 17 12:07pm

Comment

I am 82 years old. My platelet count had been slowly increasing and a year ago...

https://connect.mayoclinic.org/comment/1356836/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jul 26 10:24am

Comment

I was diagnosed with Polycythemia Vera about three years ago. It was explained to me that...

https://connect.mayoclinic.org/comment/1163233/

Discussion: JAK2 Mutation and enlarged spleen: What might it mean?

Support Group: Blood Cancers & Disorders

Posted: Oct 26, 2024

Comment

I was diagnosed with ET JAK 2 about 15 years ago - no symptoms but found...

https://connect.mayoclinic.org/comment/1140166/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Sep 12, 2024

Comment

Yes, I have been on Peg since Nov 2022 and started at 45mcg/ wk and moved...

https://connect.mayoclinic.org/comment/1106156/

Discussion: Hydroxyurea vs peginterferon side effect impact

Support Group: Blood Cancers & Disorders

Posted: Jul 15, 2024

Comment

I have had ET for 10 years and avoided a bone marrow biopsy completely. The fact...

https://connect.mayoclinic.org/comment/1088943/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2024