Blood Cancers & Disorders Support Group

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Comment

@nohrt4me: I was diagnosed with ET when I was 50 with JAK2. My platelet level was...

https://connect.mayoclinic.org/comment/1329234/

Discussion: Starting 17th year with ET. What's ahead?

Support Group: Blood Cancers & Disorders

Posted: Jun 17 1:30pm

Comment

Hi Sophie, I started on Hydroxyurea 4 months ago. I was scared to take it because...

https://connect.mayoclinic.org/comment/1352607/

Discussion: F/w PV- JAK2-pre-mylelofibrosis SCARED to start Hydroxyurea. Help!

Support Group: Blood Cancers & Disorders

Posted: Jul 20 3:12pm

Comment

Our first experience with Jakafi was 3 years ago, my mom has ET (Jak2) her journey...

https://connect.mayoclinic.org/comment/1299993/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: May 8 4:28pm

Comment

Hi @arti4 When something causes a disruption in the normal function of our bone marrow, such...

https://connect.mayoclinic.org/comment/759044/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Oct 9, 2022

Comment

Which Mayo Clinic location are you going to? The top doctors at Mayo for this rare...

https://connect.mayoclinic.org/comment/1314708/

Discussion: Primary Myelofibrosis: What is life going to be like now?

Support Group: Blood Cancers & Disorders

Posted: May 28 9:08am

Comment

Hi lefsequeen, I am new to this group also. Hope I'm doing this correctly..... I was...

https://connect.mayoclinic.org/comment/334498/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Feb 16, 2021

Comment

Thank you so much for all your encouragement, you are super positive & determined to keep...

https://connect.mayoclinic.org/comment/966802/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Nov 18, 2023

Comment

Hi lynnebgraham, Was that your first bone marrow biopsy or did you have them in the...

https://connect.mayoclinic.org/comment/1244745/

Discussion: Like to know more. Just told I have Triple Negative MPN.

Support Group: Blood Cancers & Disorders

Posted: Feb 24 3:09pm

Comment

What we put in our bodies, food or onnour skins, is medicine. Food is medicine, when...

https://connect.mayoclinic.org/comment/1010051/

Discussion: Polycythemia Vera and Nutritional Ketosis

Support Group: Blood Cancers & Disorders

Posted: Feb 5, 2024

Comment

Diagnosed with ET 5 years ago….high platlets led to Bone Marrow Biopsy to confirm and found...

https://connect.mayoclinic.org/comment/890099/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2023