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1,205 total results
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Discussions (77)
Comments (1,128)
Comment
The drug Hydrea/hydroxyurea has been around and used for about 45 years. It is generally well...
https://connect.mayoclinic.org/comment/1312634/
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Discussion:
New to Hydrea for ET
Support Group:
Blood Cancers & Disorders
Posted: May 25 1:59pm
Comment
Hi jello13577, I really like your approach. I have CALR and not JAK2, but I do...
https://connect.mayoclinic.org/comment/1294207/
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Discussion:
Anyone living with Essential Thrombocythemia with JAK2?
Support Group:
Blood Cancers & Disorders
Posted: May 1 10:39am
Comment
Hey dunewalker, I did the bone marrow biopsy last week at Mayo and went over results...
https://connect.mayoclinic.org/comment/1293666/
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Discussion:
What are most common side effects when starting HU (Hydroxyurea)?
Support Group:
Blood Cancers & Disorders
Posted: Apr 30 3:41pm
Comment
Honestly, I don't know if I have any tips! It was a really rare condition back...
https://connect.mayoclinic.org/comment/334497/
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Discussion:
People living with ET and taking Hydrea: Anybody setting records?
Support Group:
Blood Cancers & Disorders
Posted: Feb 16, 2021
Comment
I went to my GP with other issues & checked with him re Sleep Apnea. He...
https://connect.mayoclinic.org/comment/1036484/
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Discussion:
Polycythaemia Ruba Vera, Jak2 mutation & link to Sleep Apnea
Support Group:
Blood Cancers & Disorders
Posted: Mar 19, 2024
Comment
I had developed bad high blood pressure. I was put on medication to help with that....
https://connect.mayoclinic.org/comment/877194/
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Discussion:
I am curious: What symptoms did everyone have in the beginning for PV?
Support Group:
Blood Cancers & Disorders
Posted: Jun 12, 2023
Comment
Hi @winmil99. Essential thrombocytopenia is part of a blood disorder group referred to as Myeloproliferative neoplasms...
https://connect.mayoclinic.org/comment/1021067/
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Discussion:
Essential Thrombocythemia: Making treatment decisions
Support Group:
Blood Cancers & Disorders
Posted: Feb 23, 2024
Comment
Your clot risk depends on age, mutation type, and previous clot history. At 68 with JAK2,...
https://connect.mayoclinic.org/comment/1192772/
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Discussion:
How fast do you start to feel hydroxyurea symptoms?
Support Group:
Blood Cancers & Disorders
Posted: Dec 18, 2024
Comment
Vent all you want here. Firstly, your getting it out and you have people with the...
https://connect.mayoclinic.org/comment/1324057/
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Discussion:
Getting nowhere with current Hematologist
Support Group:
Blood Cancers & Disorders
Posted: Jun 10 6:59am
Comment
Welcome to Connect, @qbf This is one of those situations where it’s not good to speculate....
https://connect.mayoclinic.org/comment/1008961/
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Discussion:
Polycythemia Vera - Help getting Diagnosis
Support Group:
Blood Cancers & Disorders
Posted: Feb 3, 2024
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