Blood Cancers & Disorders Support Group

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Comment

I have protein abnormalities present for 3 years. Blood tests still show them. Seems MM and...

https://connect.mayoclinic.org/comment/916541/

Discussion: I have smoldering Myeloma. Does anyone have this diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 21, 2023

Comment

There is so much variability with MGUS between different people. And so much to learn about...

https://connect.mayoclinic.org/comment/865101/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 23, 2023

Comment

I found this link to clinical trials open and have yet to open for MGUS: https://www.clinicaltrials.gov/ct2/results?cond=monoclonal+gammopathy+of+undetermined+significance&recrs=b&recrs=a...

https://connect.mayoclinic.org/comment/826485/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 15, 2023

Comment

The blood work has been done every six months. My doctor is excellent but does not...

https://connect.mayoclinic.org/comment/771421/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2022

Comment

I would not let tender or swollen lymph nodes go by without evaluation by doctor. I...

https://connect.mayoclinic.org/comment/1309335/

Discussion: Multiple lymph nodes throughout body

Support Group: Blood Cancers & Disorders

Posted: May 21 9:40am

Comment

@remainanonymous Welcome to Connect. Neuropathy is a frequent topic among the MGUS members so there is...

https://connect.mayoclinic.org/comment/1051082/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Apr 15, 2024

Comment

Hello, it is my daughter. Previous told it was MGUS/MM, was treated with 3 chemo drugs....

https://connect.mayoclinic.org/comment/851599/

Discussion: Waldenstrom Macroglobulinemia with MYD88-wild type

Support Group: Blood Cancers & Disorders

Posted: Apr 29, 2023

Comment

Physical exam, full MGUS blood, and urine workup, and only a BMB if things have gotten...

https://connect.mayoclinic.org/comment/770461/

Discussion: MGUS monitoring: What tests do you have done regularly?

Support Group: Blood Cancers & Disorders

Posted: Nov 7, 2022

Comment

I was diagnosed with MGUS April of 2020, but my IGM continues to rise and I've...

https://connect.mayoclinic.org/comment/599614/

Discussion: I have MGUS

Support Group: Blood Cancers & Disorders

Posted: May 5, 2021

Comment

I consulted with three specialists - one at Mayo Clinic. All are MGUS/MM specialists. Even though...

https://connect.mayoclinic.org/comment/770463/

Discussion: MGUS monitoring: What tests do you have done regularly?

Support Group: Blood Cancers & Disorders

Posted: Nov 7, 2022