Blood Cancers & Disorders Support Group

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Comment

I was diagnosed w Polycythemia Vera in 2020 when routine lab work showed HCT of 61.3....

https://connect.mayoclinic.org/comment/737723/

Discussion: Polycythemia Vera and Nutritional Ketosis

Support Group: Blood Cancers & Disorders

Posted: Aug 15, 2022

Comment

I find your post informative because I was diagnosed with MGUS in 2019. It’s a blood...

https://connect.mayoclinic.org/comment/729097/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jul 21, 2022

Comment

I was diagnosed with ET and Jak 2 I was taking a baby aspirin daily though...

https://connect.mayoclinic.org/comment/598589/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: May 1, 2021

Comment

Myself, platelets getting higher, was told I have JAK 2 mutation - clueless as to what...

https://connect.mayoclinic.org/comment/325701/

Discussion: JAK2 negative with high platelets

Support Group: Heart & Blood Health

Posted: Nov 26, 2020

Comment

Early 70's yrs, 5 mos ago annual wellness check indicated platelet count @ 600, now exceeds...

https://connect.mayoclinic.org/comment/194355/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jan 24, 2020

Comment

I am JAK-2 positive and I have not experienced back spasms, left side pains, left shoulder...

https://connect.mayoclinic.org/comment/194276/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jan 23, 2019

Comment

I can relate to the low adrenal function. I am 48, diagnosed with PV last year,...

https://connect.mayoclinic.org/comment/1126529/

Discussion: What's the latest Jakafi (ruxolitinib) for polycythemia vera (PV)?

Support Group: Blood Cancers & Disorders

Posted: Aug 19, 2024

Comment

I also questioned whether the vaccine had anything to do with my platelets increasing. I had...

https://connect.mayoclinic.org/comment/1123727/

Discussion: Research on COVID 19 vax causing Essential Thrombocythemia?

Support Group: Blood Cancers & Disorders

Posted: Aug 14, 2024

Comment

Hi, Vicky, I am 70, CALR+, have had ET for about 15 years. Doing OK, no...

https://connect.mayoclinic.org/comment/1103555/

Discussion: HU & Titanium Oxide

Support Group: Blood Cancers & Disorders

Posted: Jul 11, 2024

Comment

My platelets bounce between 57 to 600 then back down to 80. I was on hydroxyurea...

https://connect.mayoclinic.org/comment/1083471/

Discussion: Which specific kind of doctor looks into thrombocytopenia?

Support Group: Blood Cancers & Disorders

Posted: Jun 9, 2024