Blood Cancers & Disorders Support Group

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1,205 total results

Comment

Good morning, Keith. I have to confess that you and I are not on the same...

https://connect.mayoclinic.org/comment/912206/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Aug 13, 2023

Comment

Hi. I have been on HU for 2 years since 2023. My biggest issue is dry...

https://connect.mayoclinic.org/comment/1221373/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jan 25 11:53am

Comment

If you are over 60, have JAK2, you are at moderate clot risk and doc will...

https://connect.mayoclinic.org/comment/1147040/

Discussion: Need help newly diagnosed with a high platelet count and the JAK2 gene

Support Group: Blood Cancers & Disorders

Posted: Sep 25, 2024

Comment

I have PV JAK2 diagnosis in fact I changed hematologists and the second Hematologist asked if...

https://connect.mayoclinic.org/comment/1095124/

Discussion: I was diagnosed with Polycythemia vera last Sept. Is pain normal?

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2024

Comment

I was diagnosed with ET and the Jak2 mutation in Feb. 2023. I took iron supplements...

https://connect.mayoclinic.org/comment/941166/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Oct 3, 2023

Comment

I was misdiagnosed at the VA Hospital on Long Island with ET in early 2018. I...

https://connect.mayoclinic.org/comment/865740/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: May 24, 2023

Comment

I have ET and am CALR + . I was diagnosed at age 60, but onset...

https://connect.mayoclinic.org/comment/786716/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2022

Comment

I was 60 when diagnosed, but hemo looked at past CBCs and said elevated platelets were...

https://connect.mayoclinic.org/comment/1319389/

Discussion: Is Essential Thrombocythemia a blood disease or cancer?

Support Group: Blood Cancers & Disorders

Posted: Jun 3 11:49am

Comment

Hello, I'm new to this group and to the ET diagnosis, although I've had high platelet...

https://connect.mayoclinic.org/comment/768111/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Nov 1, 2022

Comment

I have recently been diagnosed with Essential Thrombocythemia as I had slightly elevated platelets on routine...

https://connect.mayoclinic.org/comment/1260307/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Mar 17 12:00pm