Blood Cancers & Disorders Support Group

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Comment

I have documented (JAK2 positive) PV and on hydrox..I understand your fear and there are many...

https://connect.mayoclinic.org/comment/1097487/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Jul 1, 2024

Comment

Hi Beth, My experience is very similar to yours. BMB in September 2020 favors ET with...

https://connect.mayoclinic.org/comment/840273/

Discussion: Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2023

Comment

I was officially diagnosed with ET this spring and tested positive for JAK2. 53 years old,...

https://connect.mayoclinic.org/comment/1194488/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Dec 21, 2024

Comment

I’m awaiting my JAK2 V617F status and overwhelmed by so much information. I’ve had several episodes...

https://connect.mayoclinic.org/comment/810105/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2023

Comment

As a follow up to my question, I searched for diagnostic criteria for PV (since they...

https://connect.mayoclinic.org/comment/231777/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 11, 2019

Comment

Best wishes for your upcoming appointment, edriels. I too have the JAK2 gene mutation. I have...

https://connect.mayoclinic.org/comment/1375921/

Discussion: Essential thrombocythemia (ET): When to start hydroxyurea (HU)?

Support Group: Blood Cancers & Disorders

Posted: Aug 21 11:28am

Comment

Thank you for posting these results. It helps to see the actual numbers. I’m not a...

https://connect.mayoclinic.org/comment/1083081/

Discussion: How fast do you start to feel hydroxyurea symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jun 8, 2024

Comment

Anna, I had year fluctuations of platelet levels, all over normal, for almost 30 years before...

https://connect.mayoclinic.org/comment/826050/

Discussion: Persistently Elevated Platelets Fluctuating

Support Group: Blood Cancers & Disorders

Posted: Mar 14, 2023

Comment

I was originally misdiagnosed with Essential Thrombocythemia in 2018 by a hematologist at the VA Hospital...

https://connect.mayoclinic.org/comment/328598/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2021

Comment

My diagnosis of ET with Jak2 Mutation came after high platelets, 780K, were found on a...

https://connect.mayoclinic.org/comment/997096/

Discussion: What are pros of hydroxyurea vs other methods of lowering platelets?

Support Group: Blood Cancers & Disorders

Posted: Jan 14, 2024