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1,177 total results
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Discussions (74)
Comments (1,103)
Comment
My diagnosis of ET with Jak2 Mutation came after high platelets, 780K, were found on a...
https://connect.mayoclinic.org/comment/997096/
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Discussion:
What are pros of hydroxyurea vs other methods of lowering platelets?
Support Group:
Blood Cancers & Disorders
Posted: Jan 14, 2024
Comment
Hi jackt00 - I also have the Jak2 mutation. I am 77 and have had the...
https://connect.mayoclinic.org/comment/830393/
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Discussion:
Essential Thrombocythemia: Looking for information and support
Support Group:
Blood Cancers & Disorders
Posted: Mar 22, 2023
Comment
I am 62 years old. I was diagnosed with ET a year ago and I am...
https://connect.mayoclinic.org/comment/57940/
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Discussion:
Essential thrombocythemia: Interested in connecting with others
Support Group:
Blood Cancers & Disorders
Posted: Jun 21, 2020
Comment
Our first experience with Jakafi was 3 years ago, my mom has ET (Jak2) her journey...
https://connect.mayoclinic.org/comment/1299993/
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Discussion:
Has anyone had experience with Jakafi?
Support Group:
Blood Cancers & Disorders
Posted: May 8 4:28pm
Comment
Which Mayo Clinic location are you going to? The top doctors at Mayo for this rare...
https://connect.mayoclinic.org/comment/1314708/
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Discussion:
Primary Myelofibrosis: What is life going to be like now?
Support Group:
Blood Cancers & Disorders
Posted: May 28 9:08am
Comment
@ettap you have a lot of reasonable questions. I'm not a doctor. I just have Jak2...
https://connect.mayoclinic.org/comment/919110/
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Discussion:
JAK2 Mutation - Effects and Questions
Support Group:
Blood Cancers & Disorders
Posted: Aug 26, 2023
Comment
Good morning, Keith. I have to confess that you and I are not on the same...
https://connect.mayoclinic.org/comment/912206/
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Discussion:
Polycythemia Vera: Just been diagnosed
Support Group:
Blood Cancers & Disorders
Posted: Aug 13, 2023
Comment
Hi. I have been on HU for 2 years since 2023. My biggest issue is dry...
https://connect.mayoclinic.org/comment/1221373/
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Discussion:
What are most common side effects when starting HU (Hydroxyurea)?
Support Group:
Blood Cancers & Disorders
Posted: Jan 25 11:53am
Comment
My health is a bit like that of Lourdene's--65 years old, long time high platelets but...
https://connect.mayoclinic.org/comment/941362/
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Discussion:
New to Pegasys for ET - advice please!
Support Group:
Blood Cancers & Disorders
Posted: Oct 3, 2023
Comment
Hi Jewelfaux, I think the answer about "does it make a difference to have diagnosis done...
https://connect.mayoclinic.org/comment/878241/
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Discussion:
Essential Thrombocythemia: Looking for information and support
Support Group:
Blood Cancers & Disorders
Posted: Jun 14, 2023
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