Blood Cancers & Disorders Support Group

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Comment

Hi @onthejoedock Polycythemia vera is a type of cancer that causes red blood cells to multiply....

https://connect.mayoclinic.org/comment/1009341/

Discussion: How bad is a diagnosis of Polycythemia Vera?

Support Group: Blood Cancers & Disorders

Posted: Feb 4, 2024

Comment

Good luck with the Besremi. I have been taking it for about a year and a...

https://connect.mayoclinic.org/comment/1235142/

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Feb 12 10:08am

Comment

Mine came out of nowhere - last September I started with severe GI issues after a...

https://connect.mayoclinic.org/comment/1060628/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: May 2, 2024

Comment

I have a similar diagnosis, but I am high risk due to over age 60. I...

https://connect.mayoclinic.org/comment/1221350/

Discussion: What are pros of hydroxyurea vs other methods of lowering platelets?

Support Group: Blood Cancers & Disorders

Posted: Jan 25 11:28am

Comment

Welcome @ontheverge I am 79 and was diagnosed last year with ET JAK2 by labs and...

https://connect.mayoclinic.org/comment/869114/

Discussion: JAK2 V617F Essential Thrombocythemia: Hydroxyurea causes headaches

Support Group: Blood Cancers & Disorders

Posted: May 30, 2023

Comment

Well this is my gang, here. I was just diagnosed (age 64, now one day away...

https://connect.mayoclinic.org/comment/778788/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2022

Comment

To eetap, 1) The JAK2 mutation is typically found either after a clotting event or routine...

https://connect.mayoclinic.org/comment/719531/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2022

Comment

Hi Sherry, hope all is well. I am currently only on Aspirin. My hemo diagnosed the...

https://connect.mayoclinic.org/comment/1293272/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Apr 30 8:12am

Comment

Hi Pink Flamingo, I call this "the scary club". Friends laugh at this and laughter is...

https://connect.mayoclinic.org/comment/836941/

Discussion: Blood Cancer - JAK2 - Autoimmune- Confusion

Support Group: Blood Cancers & Disorders

Posted: Apr 3, 2023

Comment

Regarding hair loss: I've been on HU for two months; first month was 500mg daily with...

https://connect.mayoclinic.org/comment/1324276/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Jun 10 11:36am