Blood Cancers & Disorders Support Group

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Comment

The drug Hydrea/hydroxyurea has been around and used for about 45 years. It is generally well...

https://connect.mayoclinic.org/comment/1312634/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: May 25 1:59pm

Comment

Vent all you want here. Firstly, your getting it out and you have people with the...

https://connect.mayoclinic.org/comment/1324057/

Discussion: Getting nowhere with current Hematologist

Support Group: Blood Cancers & Disorders

Posted: Jun 10 6:59am

Comment

Thank you for posting these results. It helps to see the actual numbers. I’m not a...

https://connect.mayoclinic.org/comment/1083081/

Discussion: How fast do you start to feel hydroxyurea symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jun 8, 2024

Comment

I was originally misdiagnosed with Essential Thrombocythemia in 2018 by a hematologist at the VA Hospital...

https://connect.mayoclinic.org/comment/328598/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2021

Comment

Anna, I had year fluctuations of platelet levels, all over normal, for almost 30 years before...

https://connect.mayoclinic.org/comment/826050/

Discussion: Persistently Elevated Platelets Fluctuating

Support Group: Blood Cancers & Disorders

Posted: Mar 14, 2023

Comment

Welcome to Connect, @mariaalive. It sounds like you’re very proactive in taking care of your health...

https://connect.mayoclinic.org/comment/1196339/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2024

Comment

Oh heck Yeah! Diagnosed with ET and Jak2 was just one of the ten markers I...

https://connect.mayoclinic.org/comment/695189/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Apr 1, 2022

Comment

Hi, I had all the classic symptoms of PV and at my annual visit my bloodwork...

https://connect.mayoclinic.org/comment/1024405/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Feb 28, 2024

Comment

Hi @ausableriver, Polycythemia Vera is a condition where the bone marrow makes too many red blood...

https://connect.mayoclinic.org/comment/1003392/

Discussion: Secondary polycythemia: What are the treatment options?

Support Group: Blood Cancers & Disorders

Posted: Jan 25, 2024

Comment

I was diagnosed with ET at 27. I had been having unusual, extensive bruising and severe...

https://connect.mayoclinic.org/comment/792696/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2023