Blood Cancers & Disorders Support Group

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Comment

I was diagnosed with JAK2 positive in 12/21. My platelets rose to high 700's and I...

https://connect.mayoclinic.org/comment/798458/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Jan 18, 2023

Comment

Ok from what I’m understanding is that you’ve been diagnosed with polycythemia vera. This is a...

https://connect.mayoclinic.org/comment/1137715/

Discussion: Polycythemia vera (PV) and bone pain: What helps?

Support Group: Blood Cancers & Disorders

Posted: Sep 7, 2024

Comment

Wonderful news that there’s no sign of lung cancer! That had to be a relief. I...

https://connect.mayoclinic.org/comment/1051623/

Discussion: How bad is a diagnosis of Polycythemia Vera?

Support Group: Blood Cancers & Disorders

Posted: Apr 16, 2024

Comment

I’m also thankful for this group! My very supportive husband found this for me. I was...

https://connect.mayoclinic.org/comment/975461/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2023

Comment

I was first alerted in May 2022 that all red blood count were high. No one...

https://connect.mayoclinic.org/comment/825133/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 12, 2023

Comment

Today diagnosed with ET/JAK 2 mutation. Hello ~ I have been reading other posts and recognize...

https://connect.mayoclinic.org/comment/782169/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Dec 7, 2022

Comment

I was diagnosed with ET and I do have the Jak 2 mutation. Leading up to...

https://connect.mayoclinic.org/comment/776350/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Nov 22, 2022

Comment

I'm CALR, too. Been on HU for 6 years and bloodwork very stable in 400s once...

https://connect.mayoclinic.org/comment/1089100/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 18, 2024

Comment

A "safe" platelet count usually takes into consideration age, driver mutation, and clot history. Somebody in...

https://connect.mayoclinic.org/comment/1025894/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Mar 2, 2024

Comment

Hi Wendy, it’s my pleasure to help any way I can. Going through my leukemia and...

https://connect.mayoclinic.org/comment/876086/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 10, 2023