Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

987 total results

Comment

I have the same situation and my oncologist put me on hydroxyurea 500 mg a day....

https://connect.mayoclinic.org/comment/981420/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2023

Comment

I am 75 years old and was diagnosed three years ago with PCV and Jak 2...

https://connect.mayoclinic.org/comment/985815/

Discussion: Polycythemia: Does anyone have a problem with dryness?

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2023

Comment

I have been diagnosed with ET Jak 2 last June. I am 70 , vegetarian x...

https://connect.mayoclinic.org/comment/1016618/

Discussion: Concerned about medications for ET JAK2

Support Group: Blood Cancers & Disorders

Posted: Feb 16 7:40am

Comment

I have Jak 2 and I am taking hydroxicarbate also known as poly Vera I would...

https://connect.mayoclinic.org/comment/773381/

Discussion: Jak2 and Vitamin D3

Support Group: Blood Cancers & Disorders

Posted: Nov 15, 2022

Comment

I was diagnosed right away with Essential Thrombocythemia. (ET) having 1,250,000 platelets when first diagnosed. I...

https://connect.mayoclinic.org/comment/1051269/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Apr 15 1:56pm

Comment

I’m new to this group and appreciate reading both the new and older posts. The first...

https://connect.mayoclinic.org/comment/1086852/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 14 12:21pm

Comment

Thank you for responding – – all of you – – very much appreciated. I found...

https://connect.mayoclinic.org/comment/1088714/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 17 4:08pm

Comment

If they are checking for Polycythemia Vera, the Jak 2 test (Pisitive)will confirm. No need to...

https://connect.mayoclinic.org/comment/827691/

Discussion: Persistently Elevated Platelets Fluctuating

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2023

Comment

Colleen. All he said was to see him in 6 months - when I questioned him...

https://connect.mayoclinic.org/comment/328560/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Nov 28, 2020

Comment

Thank you for getting back with me - I truly am appreciative for you input. Have...

https://connect.mayoclinic.org/comment/328554/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2020