Blood Cancers & Disorders Support Group

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Comment

Good luck with the Besremi. I have been taking it for about a year and a...

https://connect.mayoclinic.org/comment/1235142/

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Feb 12 10:08am

Comment

I have documented (JAK2 positive) PV and on hydrox..I understand your fear and there are many...

https://connect.mayoclinic.org/comment/1097487/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Jul 1, 2024

Comment

Hi Beth, My experience is very similar to yours. BMB in September 2020 favors ET with...

https://connect.mayoclinic.org/comment/840273/

Discussion: Prefibrotic Myelofibrosis: Diagnosis Favors Essential Thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Apr 9, 2023

Comment

Hi Pink Flamingo, I call this "the scary club". Friends laugh at this and laughter is...

https://connect.mayoclinic.org/comment/836941/

Discussion: Blood Cancer - JAK2 - Autoimmune- Confusion

Support Group: Blood Cancers & Disorders

Posted: Apr 3, 2023

Comment

I was officially diagnosed with ET this spring and tested positive for JAK2. 53 years old,...

https://connect.mayoclinic.org/comment/1194488/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Dec 21, 2024

Comment

I’m awaiting my JAK2 V617F status and overwhelmed by so much information. I’ve had several episodes...

https://connect.mayoclinic.org/comment/810105/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2023

Comment

As a follow up to my question, I searched for diagnostic criteria for PV (since they...

https://connect.mayoclinic.org/comment/231777/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 11, 2019

Comment

@nohrt4me: I was diagnosed with ET when I was 50 with JAK2. My platelet level was...

https://connect.mayoclinic.org/comment/1329234/

Discussion: Starting 17th year with ET. What's ahead?

Support Group: Blood Cancers & Disorders

Posted: Jun 17 1:30pm

Comment

Hi jello13577, I really like your approach. I have CALR and not JAK2, but I do...

https://connect.mayoclinic.org/comment/1294207/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: May 1 10:39am

Comment

Hey dunewalker, I did the bone marrow biopsy last week at Mayo and went over results...

https://connect.mayoclinic.org/comment/1293666/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Apr 30 3:41pm