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1,177 total results
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Discussions (74)
Comments (1,103)
Comment
I'm CALR, too. Been on HU for 6 years and bloodwork very stable in 400s once...
https://connect.mayoclinic.org/comment/1089100/
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Discussion:
Essential Thrombocythemia: Looking for information and support
Support Group:
Blood Cancers & Disorders
Posted: Jun 18, 2024
Comment
A "safe" platelet count usually takes into consideration age, driver mutation, and clot history. Somebody in...
https://connect.mayoclinic.org/comment/1025894/
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Discussion:
Anyone else find the side effects of Hydrea 500MG frightening?
Support Group:
Blood Cancers & Disorders
Posted: Mar 2, 2024
Comment
Hi Wendy, it’s my pleasure to help any way I can. Going through my leukemia and...
https://connect.mayoclinic.org/comment/876086/
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Discussion:
Polycythemia Vera: Just been diagnosed
Support Group:
Blood Cancers & Disorders
Posted: Jun 10, 2023
Comment
I was 60 when diagnosed, but hemo looked at past CBCs and said elevated platelets were...
https://connect.mayoclinic.org/comment/1319389/
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Discussion:
Is Essential Thrombocythemia a blood disease or cancer?
Support Group:
Blood Cancers & Disorders
Posted: Jun 3 11:49am
Comment
Mine came out of nowhere - last September I started with severe GI issues after a...
https://connect.mayoclinic.org/comment/1060628/
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Discussion:
Essential Thrombocythemia: Looking for information and support
Support Group:
Blood Cancers & Disorders
Posted: May 2, 2024
Comment
I have a similar diagnosis, but I am high risk due to over age 60. I...
https://connect.mayoclinic.org/comment/1221350/
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Discussion:
What are pros of hydroxyurea vs other methods of lowering platelets?
Support Group:
Blood Cancers & Disorders
Posted: Jan 25 11:28am
Comment
Welcome @ontheverge I am 79 and was diagnosed last year with ET JAK2 by labs and...
https://connect.mayoclinic.org/comment/869114/
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Discussion:
JAK2 V617F Essential Thrombocythemia: Hydroxyurea causes headaches
Support Group:
Blood Cancers & Disorders
Posted: May 30, 2023
Comment
Well this is my gang, here. I was just diagnosed (age 64, now one day away...
https://connect.mayoclinic.org/comment/778788/
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Discussion:
How did you make the final decision to begin HU protocol for ET?
Support Group:
Blood Cancers & Disorders
Posted: Nov 29, 2022
Comment
To eetap, 1) The JAK2 mutation is typically found either after a clotting event or routine...
https://connect.mayoclinic.org/comment/719531/
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Discussion:
JAK2 Mutation - Effects and Questions
Support Group:
Blood Cancers & Disorders
Posted: Jun 21, 2022
Comment
Hi @onthejoedock Polycythemia vera is a type of cancer that causes red blood cells to multiply....
https://connect.mayoclinic.org/comment/1009341/
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Discussion:
How bad is a diagnosis of Polycythemia Vera?
Support Group:
Blood Cancers & Disorders
Posted: Feb 4, 2024
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