Blood Cancers & Disorders Support Group

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Comment

I have Jak2 positive PV treated with hydrox since October 2023...I noticed my blood values were...

https://connect.mayoclinic.org/comment/1253508/

Discussion: PV and peripheral artery disease PAD

Support Group: Blood Cancers & Disorders

Posted: Mar 8 6:37pm

Comment

After asymptomatic high platelets in the 600 range, a bone marrow biopsy revealed JAK2 and I...

https://connect.mayoclinic.org/comment/940348/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Oct 2, 2023

Comment

I also read the pamphlet and freaked out but did my research. This drug has been...

https://connect.mayoclinic.org/comment/1026291/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Mar 2, 2024

Comment

Mtnlife, I too had no symptoms of anything prior to a routine blood test. in March...

https://connect.mayoclinic.org/comment/783874/

Discussion: High Platelets

Support Group: Blood Cancers & Disorders

Posted: Dec 12, 2022

Comment

Hi Tammy, I have MDS/MPN overlap with Thrombocytosis and MF. My platelet count was about 800,000...

https://connect.mayoclinic.org/comment/146305/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Feb 8, 2020

Comment

My Naturopathic Physician suggested I see a Oncologist or Hemotologist in 2013 because my Platelets were...

https://connect.mayoclinic.org/comment/194297/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 17, 2019

Comment

I'm new to all of this. I am taking 500 mg HU for 5 days and...

https://connect.mayoclinic.org/comment/1308200/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: May 19 11:34pm

Comment

I started using Besremi (I do not live in the U.S.) in March. My platelets were...

https://connect.mayoclinic.org/comment/1296284/

Discussion: Anyone used Interferon instead of HU for ET: Benefits? Side effects?

Support Group: Blood Cancers & Disorders

Posted: May 4 9:27am

Comment

Hi bikalydy973, I have seen my GP every six months because I have hypertension. I have...

https://connect.mayoclinic.org/comment/797885/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Jan 17, 2023

Comment

66 year old male, diagnosed ET with JAK2, June 2024. Last week my haematologist gave me...

https://connect.mayoclinic.org/comment/1211108/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jan 14 8:10am