Blood Cancers & Disorders Support Group

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Comment

I have PV Jak 2 positive.

https://connect.mayoclinic.org/comment/993717/

Discussion: ET, Polycythemia, Jax2: Is this a blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jan 8 9:55am

Comment

For my skin cancer I used immiquod cream which allow the body to attack the cancer...

https://connect.mayoclinic.org/comment/981708/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2023

Comment

When I first started on HU I was very tired. Now I am on 500 MG...

https://connect.mayoclinic.org/comment/973596/

Discussion: Essential Thrombocytosis: What amount of hydroxy do you take?

Support Group: Blood Cancers & Disorders

Posted: Dec 1, 2023

Comment

When I was diagnosed with a blood disorder, and very hi Hemocrit levels, my Hemotologist did...

https://connect.mayoclinic.org/comment/1002254/

Discussion: At my wits end. Not sure where to go from here.

Support Group: Blood Cancers & Disorders

Posted: Jan 23 7:23am

Comment

Thank you for alerting me to the fact that strengthing exercises are essential. My brother also...

https://connect.mayoclinic.org/comment/1011201/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Feb 7 11:33am

Comment

Yes, it is a blood cancer, but is manageable for many, depending on the treatment that...

https://connect.mayoclinic.org/comment/994654/

Discussion: ET, Polycythemia, Jax2: Is this a blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jan 9 6:01pm

Comment

I was diagnosed w Polycythemia Vera in 2020 when routine lab work showed HCT of 61.3....

https://connect.mayoclinic.org/comment/737723/

Discussion: Polycythemia Vera and Nutritional Ketosis

Support Group: Blood Cancers & Disorders

Posted: Aug 15, 2022

Comment

Hi all. I am in the process of being diagnosed with an MPN. The doctor hasn't...

https://connect.mayoclinic.org/comment/878074/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 14, 2023

Comment

Thanks for sharing. I have been on Hydrea for 8 years and have had success with...

https://connect.mayoclinic.org/comment/862305/

Discussion: Anagrelide: Do you switch? How to cover costs?

Support Group: Blood Cancers & Disorders

Posted: May 18, 2023

Comment

I’m JAK 2 positive, platelets in 700s. Started hydroxyurea 1000mg/day 2 weeks ago. Am experiencing unusually...

https://connect.mayoclinic.org/comment/848233/

Discussion: Jak 2 Positive with Elevated Platelets: What symptoms do you have?

Support Group: Blood Cancers & Disorders

Posted: Apr 23, 2023