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1,205 total results
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Discussions (77)
Comments (1,128)
Comment
I take HU, 500 mg, 4x week, baby aspirin 2x day, and iron supplements 1x day....
https://connect.mayoclinic.org/comment/1210555/
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Discussion:
Does ET or HU affect liver functions?
Support Group:
Blood Cancers & Disorders
Posted: Jan 13 10:49am
Comment
Good morning lindagualtieri. I am from Kentucky. I have had Polycythemia Vera (PV) for 6 years...
https://connect.mayoclinic.org/comment/1148497/
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Discussion:
Need help newly diagnosed with a high platelet count and the JAK2 gene
Support Group:
Blood Cancers & Disorders
Posted: Sep 28, 2024
Comment
I'm JAK2 positive as well, and have had high platelets since my 30s. I'm now 64....
https://connect.mayoclinic.org/comment/781250/
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Discussion:
How did you make the final decision to begin HU protocol for ET?
Support Group:
Blood Cancers & Disorders
Posted: Dec 5, 2022
Comment
Hi all... I am 69 and was diagnosed with ET and some fibrosis so Early PMF...
https://connect.mayoclinic.org/comment/146324/
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Discussion:
How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?
Support Group:
Blood Cancers & Disorders
Posted: Feb 14, 2021
Comment
A full blood test workup with the hematologist and an exam to determine the size of...
https://connect.mayoclinic.org/comment/1162672/
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Discussion:
JAK2 Mutation and enlarged spleen: What might it mean?
Support Group:
Blood Cancers & Disorders
Posted: Oct 25, 2024
Comment
Hello Debbie, Great to hear from you. I made my original post almost a year ago,...
https://connect.mayoclinic.org/comment/998935/
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Discussion:
Others out there with CEL (Chronic Eosinophilic Leukemia)?
Support Group:
Blood Cancers & Disorders
Posted: Jan 17, 2024
Comment
Welcome to Connect, @chella65. As you can see you’re not alone with your new diagnosis of...
https://connect.mayoclinic.org/comment/879767/
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Discussion:
Polycythemia Vera: Just been diagnosed
Support Group:
Blood Cancers & Disorders
Posted: Jun 16, 2023
Comment
Hello, I too have Polycythaemia Vera. I was diagnosed just over one year ago when I...
https://connect.mayoclinic.org/comment/787794/
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Discussion:
Polycythemia Vera: Is there anything I can do for fatigue at home?
Support Group:
Blood Cancers & Disorders
Posted: Dec 22, 2022
Comment
It is common for the blood numbers to take awhile to improve. I am Jak2 positive...
https://connect.mayoclinic.org/comment/795618/
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Discussion:
Polycythemia Vera: Just been diagnosed
Support Group:
Blood Cancers & Disorders
Posted: Jan 12, 2023
Comment
Hi DHCarter, I was getting episodes very lightheaded feeling, feeling lousy, heart beating abnormally. About five...
https://connect.mayoclinic.org/comment/813703/
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Discussion:
PV and atrial fibrillation
Support Group:
Blood Cancers & Disorders
Posted: Feb 19, 2023
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