Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

1,178 total results

Comment

Hello Debbie, Great to hear from you. I made my original post almost a year ago,...

https://connect.mayoclinic.org/comment/998935/

Discussion: Others out there with CEL (Chronic Eosinophilic Leukemia)?

Support Group: Blood Cancers & Disorders

Posted: Jan 17, 2024

Comment

Welcome to Connect, @chella65. As you can see you’re not alone with your new diagnosis of...

https://connect.mayoclinic.org/comment/879767/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jun 16, 2023

Comment

Hello, I too have Polycythaemia Vera. I was diagnosed just over one year ago when I...

https://connect.mayoclinic.org/comment/787794/

Discussion: Polycythemia Vera: Is there anything I can do for fatigue at home?

Support Group: Blood Cancers & Disorders

Posted: Dec 22, 2022

Comment

Good morning lindagualtieri. I am from Kentucky. I have had Polycythemia Vera (PV) for 6 years...

https://connect.mayoclinic.org/comment/1148497/

Discussion: Need help newly diagnosed with a high platelet count and the JAK2 gene

Support Group: Blood Cancers & Disorders

Posted: Sep 28, 2024

Comment

I'm JAK2 positive as well, and have had high platelets since my 30s. I'm now 64....

https://connect.mayoclinic.org/comment/781250/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2022

Comment

Hi all... I am 69 and was diagnosed with ET and some fibrosis so Early PMF...

https://connect.mayoclinic.org/comment/146324/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2021

Comment

I have been living with high platelets (500-680 range) since 2016. In 2017 I had a...

https://connect.mayoclinic.org/comment/692090/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2022

Comment

Thank you for responding, very appreciated. As of now, knock on wood, the only mutation is...

https://connect.mayoclinic.org/comment/328596/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2021

Comment

It is common for the blood numbers to take awhile to improve. I am Jak2 positive...

https://connect.mayoclinic.org/comment/795618/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2023

Comment

Hi DHCarter, I was getting episodes very lightheaded feeling, feeling lousy, heart beating abnormally. About five...

https://connect.mayoclinic.org/comment/813703/

Discussion: PV and atrial fibrillation

Support Group: Blood Cancers & Disorders

Posted: Feb 19, 2023