Blood Cancers & Disorders Support Group

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Comment

I was recently diagnosed with this as well, at age 69. The chemo I'm taking is...

https://connect.mayoclinic.org/comment/983162/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2023

Comment

Hi, i was diagnosed with primary polycythaemia 2 weeks back, dr has said that my Jak2...

https://connect.mayoclinic.org/comment/822183/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 7, 2023

Comment

Hi, this is my first time writing anything, but I’ve benefitted tremendously from reading the insights...

https://connect.mayoclinic.org/comment/1167543/

Discussion: ET: What are acceptable platelet numbers?

Support Group: Blood Cancers & Disorders

Posted: Nov 3, 2024

Comment

I was diagnosed with a myelodysplastic disorder over a year ago. Last fall a bone marrow...

https://connect.mayoclinic.org/comment/1104835/

Discussion: What are treatments for myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 13, 2024

Comment

There is a lot of amazing info in this group. Kudos to many of you have...

https://connect.mayoclinic.org/comment/657917/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Nov 28, 2021

Comment

Ocular migraines and migraines and TIAs can be caused by high platelets and/or not taking aspirin....

https://connect.mayoclinic.org/comment/1354672/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 23 1:18pm

Comment

Hi Bonnie, I’m saddened that you have been diagnosed with MDS/MPN-RS-T. I remember my original diagnosis...

https://connect.mayoclinic.org/comment/970297/

Discussion: I have been diagnosed and under treatment for MDS

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2023

Comment

I don’t have EV, but I can give you first hand knowledge regarding hydroxyurea..I was diagnosed...

https://connect.mayoclinic.org/comment/784473/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Dec 13, 2022

Comment

Hi @learnandlive I recently learned that PV can be related to sleep apnea as well. My...

https://connect.mayoclinic.org/comment/783163/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Dec 10, 2022

Comment

Hi, ı am a patient who does have a MF/MDS overlap with JAk2 and SBF31 mutations,...

https://connect.mayoclinic.org/comment/328555/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Nov 26, 2020