Blood Cancers & Disorders Support Group

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Comment

Dx of MPN Myeloproliferative disorder ET Essential thrombocythemia JAK2 positive in June 2024. I am allergic...

https://connect.mayoclinic.org/comment/1270799/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Mar 31 10:02am

Comment

Hi, having similar issues. My dr. Just called it polycythemia. I have similar EPO but steadily...

https://connect.mayoclinic.org/comment/746554/

Discussion: Polycythemia: Primary or Secondary?

Support Group: Blood Cancers & Disorders

Posted: Sep 7, 2022

Comment

Hi @1pearl, I’m putting together pieces of your ET puzzle. When we first spoke the other...

https://connect.mayoclinic.org/comment/1231285/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Feb 7 7:25am

Comment

Unfortunately I’m not a pilot 😂,you can say I’m an airline ground dispatcher pilot ,I don’t...

https://connect.mayoclinic.org/comment/1022506/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Feb 25, 2024

Comment

Hi Jackt00, Welcome to the site, Given the fact you are taking another chemo med, I...

https://connect.mayoclinic.org/comment/830017/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 22, 2023

Comment

Lourdene, I'm in an almost identical position to you, having had high platelets for decades but...

https://connect.mayoclinic.org/comment/788501/

Discussion: New to Pegasys for ET - advice please!

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2022

Comment

Excellent news that you consulted at the Mayo Clinic! That's a great plan for someone planning...

https://connect.mayoclinic.org/comment/1156324/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Oct 13, 2024

Comment

I was diagnosed in March 2025 after rising platelets caused painful jabs in my toes. This...

https://connect.mayoclinic.org/comment/1349661/

Discussion: Question about how you each received your diagnosis of MPN

Support Group: Blood Cancers & Disorders

Posted: Jul 16 1:12pm

Comment

It’s a comfort to know you and others had the same initial experience when diagnosed. My...

https://connect.mayoclinic.org/comment/1280121/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 12 12:05pm

Comment

I have been taking 600mgs of HU(Droxia formulation) since PMF diagnosis in 2018. It has lowered...

https://connect.mayoclinic.org/comment/1087439/

Discussion: Is my treatment a bit aggressive?

Support Group: Blood Cancers & Disorders

Posted: Jun 15, 2024