Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

1,205 total results

Comment

Hi @lindagualtieri, Welcome to Connect. Looks like you’ve been dubbed with a new diagnosis and have...

https://connect.mayoclinic.org/comment/1146045/

Discussion: Need help newly diagnosed with a high platelet count and the JAK2 gene

Support Group: Blood Cancers & Disorders

Posted: Sep 23, 2024

Comment

Hi shhanks. Welcome to the site. After I had seven vaccines (2 Moderna, 1 booster, 2...

https://connect.mayoclinic.org/comment/798922/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Jan 19, 2023

Comment

Hello @sap21981 Welcome to Mayo Connect. I’m sure you’re in panic mode right now! Being a...

https://connect.mayoclinic.org/comment/886233/

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: Jun 27, 2023

Comment

I was diagnosed with JAK2 in early 2021. Taking the drug hydrea has put everything (RBC,...

https://connect.mayoclinic.org/comment/765304/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Oct 25, 2022

Comment

My comment is an opinion based on conversations I had with hematologists whose credentials I respect...

https://connect.mayoclinic.org/comment/990628/

Discussion: ET, Polycythemia, Jax2: Is this a blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jan 3, 2024

Comment

Hi Lisa. Hopefully you will get some definitive answers once you meet with your Hematologist in...

https://connect.mayoclinic.org/comment/1162384/

Discussion: JAK2 Mutation and enlarged spleen: What might it mean?

Support Group: Blood Cancers & Disorders

Posted: Oct 25, 2024

Comment

Yes it was positive medium Deterioration. Joe my husband was on Hydrea but his legs started...

https://connect.mayoclinic.org/comment/1051576/

Discussion: How bad is a diagnosis of Polycythemia Vera?

Support Group: Blood Cancers & Disorders

Posted: Apr 16, 2024

Comment

Hi. I also was diagnosed with polycythemia Vera JAK2. 2 years ago. I have never done...

https://connect.mayoclinic.org/comment/1013924/

Discussion: Polycythemia Vera and Nutritional Ketosis

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2024

Comment

Hello all! I am new to this forum and I am so glad I happened upon...

https://connect.mayoclinic.org/comment/1002607/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Jan 23, 2024

Comment

I was diagnosed with ET at 27. I had been having unusual, extensive bruising and severe...

https://connect.mayoclinic.org/comment/792682/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2023