Blood Cancers & Disorders Support Group

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Comment

I started using Besremi (I do not live in the U.S.) in March. My platelets were...

https://connect.mayoclinic.org/comment/1296284/

Discussion: Anyone used Interferon instead of HU for ET: Benefits? Side effects?

Support Group: Blood Cancers & Disorders

Posted: May 4 9:27am

Comment

Hi, having similar issues. My dr. Just called it polycythemia. I have similar EPO but steadily...

https://connect.mayoclinic.org/comment/746554/

Discussion: Polycythemia: Primary or Secondary?

Support Group: Blood Cancers & Disorders

Posted: Sep 7, 2022

Comment

I'm new to all of this. I am taking 500 mg HU for 5 days and...

https://connect.mayoclinic.org/comment/1308200/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: May 19 11:34pm

Comment

Hi Lisa. Hopefully you will get some definitive answers once you meet with your Hematologist in...

https://connect.mayoclinic.org/comment/1162384/

Discussion: JAK2 Mutation and enlarged spleen: What might it mean?

Support Group: Blood Cancers & Disorders

Posted: Oct 25, 2024

Comment

Yes it was positive medium Deterioration. Joe my husband was on Hydrea but his legs started...

https://connect.mayoclinic.org/comment/1051576/

Discussion: How bad is a diagnosis of Polycythemia Vera?

Support Group: Blood Cancers & Disorders

Posted: Apr 16, 2024

Comment

Hi. I also was diagnosed with polycythemia Vera JAK2. 2 years ago. I have never done...

https://connect.mayoclinic.org/comment/1013924/

Discussion: Polycythemia Vera and Nutritional Ketosis

Support Group: Blood Cancers & Disorders

Posted: Feb 11, 2024

Comment

Hello all! I am new to this forum and I am so glad I happened upon...

https://connect.mayoclinic.org/comment/1002607/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Jan 23, 2024

Comment

I was diagnosed with ET at 27. I had been having unusual, extensive bruising and severe...

https://connect.mayoclinic.org/comment/792682/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2023

Comment

Dx of MPN Myeloproliferative disorder ET Essential thrombocythemia JAK2 positive in June 2024. I am allergic...

https://connect.mayoclinic.org/comment/1270799/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Mar 31 10:02am

Comment

My comment is an opinion based on conversations I had with hematologists whose credentials I respect...

https://connect.mayoclinic.org/comment/990628/

Discussion: ET, Polycythemia, Jax2: Is this a blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jan 3, 2024