Blood Cancers & Disorders Support Group

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Comment

Hi Pumpkin1, Me, too, ET w/ JAK2. My primary sent me to a heme doc at...

https://connect.mayoclinic.org/comment/929615/

Discussion: Thrombocythemia and need neck surgery: Will surgery make it worse?

Support Group: Blood Cancers & Disorders

Posted: Sep 13, 2023

Comment

I'm a 72 yrs. old and I was diagnosed with ET in 2011 when my platelet...

https://connect.mayoclinic.org/comment/635580/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Sep 14, 2021

Comment

Penny...what was the determination? EV..PV? I too was diagnosed 3 years ago. BMB confirmed PV with...

https://connect.mayoclinic.org/comment/329374/

Discussion: JAK2 ASXL1 Mutations: Anyone else?

Support Group: Blood Cancers & Disorders

Posted: Jan 15, 2021

Comment

Research shows that rare cases of leukemia have been attributed to Hydroxyurea after 20 years of...

https://connect.mayoclinic.org/comment/1280275/

Discussion: Essential thrombocythemia (ET): When to start hydroxyurea (HU)?

Support Group: Blood Cancers & Disorders

Posted: Apr 12 3:23pm

Comment

Hi Steve, I was just diagnosis with ET yesterday after my bone marrow biopsy came back...

https://connect.mayoclinic.org/comment/1154980/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Oct 10, 2024

Comment

Hi @lyno29, You posted: “I’m choosing not to do chemo, even though my doctor recommends it....

https://connect.mayoclinic.org/comment/1230545/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Feb 6 8:47am

Comment

I have been right where you are. Yes, the words "cancer" and "biopsy" are frightening. Please...

https://connect.mayoclinic.org/comment/995912/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2024

Comment

Hi @papa6275 - my diagnosis was JAK2 PV in May ‘22. Like you I did not...

https://connect.mayoclinic.org/comment/913795/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Aug 16, 2023

Comment

Hi Ginger, I am 79 diagnosed with ET JAK2. My hematologist gave me an information sheet...

https://connect.mayoclinic.org/comment/892038/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 8, 2023

Comment

Hello all. About a year ago, I had a nephrectomy due to renal cell carcinoma. Since...

https://connect.mayoclinic.org/comment/194266/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Dec 26, 2018