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1,205 total results
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Discussions (77)
Comments (1,128)
Comment
If you have ET, genetic tests help determine your clot risk. I am 70. I have...
https://connect.mayoclinic.org/comment/1040439/
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Discussion:
Im 64 and my blood platelets have been in the low 530-550 range for yr
Support Group:
Blood Cancers & Disorders
Posted: Mar 26, 2024
Comment
Thank you for your response. If I’ve been sitting without much movement, I can wake up...
https://connect.mayoclinic.org/comment/686238/
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Discussion:
I have JAK2 ET and MPN: Anyone else have these symptoms?
Support Group:
Blood Cancers & Disorders
Posted: Mar 3, 2022
Comment
As far as I know, ET with a positive JAK2 mutation normally suggests you have a...
https://connect.mayoclinic.org/comment/284525/
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Discussion:
Jak 2 and Waldenstrom's Macroglobulinemia
Support Group:
Blood Cancers & Disorders
Posted: Dec 11, 2019
Comment
My mother had polycythemia Vera in the 1990's. She had it for about 10 years and...
https://connect.mayoclinic.org/comment/1301191/
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Discussion:
Is Essential Thrombocythemia a blood disease or cancer?
Support Group:
Blood Cancers & Disorders
Posted: May 10 1:41pm
Comment
Hi Wiggins32, I have had slightly low iron and now take iron supplements...Many of the symptoms...
https://connect.mayoclinic.org/comment/826011/
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Discussion:
Essential Thrombocythemia: Looking for information and support
Support Group:
Blood Cancers & Disorders
Posted: Mar 14, 2023
Comment
I tested negative for the jak2 went to the hematologist and he did more blood tests....
https://connect.mayoclinic.org/comment/810170/
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Discussion:
Polycythemia Vera: Just been diagnosed
Support Group:
Blood Cancers & Disorders
Posted: Feb 12, 2023
Comment
You need to demand an Erythropoietin test (EPO), if this protein is low you have PV,...
https://connect.mayoclinic.org/comment/783931/
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Discussion:
Polycythemia Vera - Help getting Diagnosis
Support Group:
Blood Cancers & Disorders
Posted: Dec 12, 2022
Comment
Hi everyone, I am newly diagnosed (Fall 2021) and have the JAK2 V617F mutation. In my...
https://connect.mayoclinic.org/comment/770649/
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Discussion:
People living with ET and taking Hydrea: Anybody setting records?
Support Group:
Blood Cancers & Disorders
Posted: Nov 8, 2022
Comment
68 yr old diagnosed 2 years ago with PMF, Jak2 mutation. Have managed foot pain symtoms...
https://connect.mayoclinic.org/comment/132637/
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Discussion:
Anyone want to talk about Myelofibrosis?
Support Group:
Blood Cancers & Disorders
Posted: Jul 18, 2020
Comment
Hi all. In December, I was diagnosed with a JAK2 mutation. Finally had my appointment with...
https://connect.mayoclinic.org/comment/231778/
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Discussion:
Polycythemia Vera: Just been diagnosed
Support Group:
Blood Cancers & Disorders
Posted: Jan 11, 2019
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