Blood Cancers & Disorders Support Group

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Comment

Hi everyone, I am newly diagnosed (Fall 2021) and have the JAK2 V617F mutation. In my...

https://connect.mayoclinic.org/comment/770649/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Nov 8, 2022

Comment

68 yr old diagnosed 2 years ago with PMF, Jak2 mutation. Have managed foot pain symtoms...

https://connect.mayoclinic.org/comment/132637/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Jul 18, 2020

Comment

Hi all. In December, I was diagnosed with a JAK2 mutation. Finally had my appointment with...

https://connect.mayoclinic.org/comment/231778/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 11, 2019

Comment

I have been right where you are. Yes, the words "cancer" and "biopsy" are frightening. Please...

https://connect.mayoclinic.org/comment/995912/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2024

Comment

Hi @papa6275 - my diagnosis was JAK2 PV in May ‘22. Like you I did not...

https://connect.mayoclinic.org/comment/913795/

Discussion: Has anyone had experience with Jakafi?

Support Group: Blood Cancers & Disorders

Posted: Aug 16, 2023

Comment

Hi Ginger, I am 79 diagnosed with ET JAK2. My hematologist gave me an information sheet...

https://connect.mayoclinic.org/comment/892038/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jul 8, 2023

Comment

Hello all. About a year ago, I had a nephrectomy due to renal cell carcinoma. Since...

https://connect.mayoclinic.org/comment/194266/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Dec 26, 2018

Comment

Research shows that rare cases of leukemia have been attributed to Hydroxyurea after 20 years of...

https://connect.mayoclinic.org/comment/1280275/

Discussion: Essential thrombocythemia (ET): When to start hydroxyurea (HU)?

Support Group: Blood Cancers & Disorders

Posted: Apr 12 3:23pm

Comment

Hi Steve, I was just diagnosis with ET yesterday after my bone marrow biopsy came back...

https://connect.mayoclinic.org/comment/1154980/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Oct 10, 2024

Comment

Your post is uplifting & amazing. I have been taking 1000mg HU now for 3 weeks....

https://connect.mayoclinic.org/comment/1042373/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2024