Blood Cancers & Disorders Support Group

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Comment

I was diagnosed with ET (Jak2), about 2 years ago. My platelet count was 550 and...

https://connect.mayoclinic.org/comment/928760/

Discussion: Thrombocythemia and need neck surgery: Will surgery make it worse?

Support Group: Blood Cancers & Disorders

Posted: Sep 12, 2023

Comment

Wow, surprised to read that they did a bone biopsy immediately. My doctor said they can...

https://connect.mayoclinic.org/comment/892162/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jul 8, 2023

Comment

Hi, Is this discussion still active? I just found the website yesterday and have been reading...

https://connect.mayoclinic.org/comment/1374163/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Aug 19 9:59am

Comment

Might be good to find out what driver mutation you have--JAK2, MPL, or CALR. It makes...

https://connect.mayoclinic.org/comment/1088475/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 17, 2024

Comment

Wow that is an extremely high amount to start on but I can only assume it...

https://connect.mayoclinic.org/comment/1065766/

Discussion: Polycythemia Vera or Essential Thrombocythemia ?

Support Group: Blood Cancers & Disorders

Posted: May 11, 2024

Comment

Hi Arti4, I was experiencing allot of bad itching before my Et/Jak2 diagnosis and my dermatologist...

https://connect.mayoclinic.org/comment/874288/

Discussion: MGUS and restless leg syndrome

Support Group: Blood Cancers & Disorders

Posted: Jun 7, 2023

Comment

I was diagnosed in 2001 with PV/ jak2 mutated with blood withdrawals until 2012 Myelofibrosis diagnosed...

https://connect.mayoclinic.org/comment/794654/

Discussion: Any suggestions for chronic shortness of breath with PV?

Support Group: Blood Cancers & Disorders

Posted: Jan 10, 2023

Comment

@tkp22, I can understand you're worried. It sounds like your health care team is being thorough....

https://connect.mayoclinic.org/comment/719785/

Discussion: Jak2 positive, biopsy next: Does it mean I have blood cancer?

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2022

Comment

During a 5th spine surgery at age 79, I was diagnosed with Jak2 mutation. My platelet...

https://connect.mayoclinic.org/comment/801488/

Discussion: Essential Thrombocythemia (ET) and viruses

Support Group: Blood Cancers & Disorders

Posted: Jan 25, 2023

Comment

Slightly different scenario but thought I'd pass it along. My 72 year old wife had a...

https://connect.mayoclinic.org/comment/1200307/

Discussion: Has anyone had a total knee replacement that also has JAK2?

Support Group: Blood Cancers & Disorders

Posted: Dec 30, 2024