Blood Cancers & Disorders Support Group

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Comment

I just turned 67, and was diagnosed with ET JAK2 a few months ago. Although I’m...

https://connect.mayoclinic.org/comment/1196178/

Discussion: Anyone living with Essential Thrombocythemia with JAK2?

Support Group: Blood Cancers & Disorders

Posted: Dec 23, 2024

Comment

New to this group. I've been diagnosed with an MPN ET with JAK2. Doctor has put...

https://connect.mayoclinic.org/comment/1192587/

Discussion: How fast do you start to feel hydroxyurea symptoms?

Support Group: Blood Cancers & Disorders

Posted: Dec 17, 2024

Comment

I also started with platelets over one million at age 39. Now I'm 69. I'm also...

https://connect.mayoclinic.org/comment/1041181/

Discussion: People living with ET and taking Hydrea: Anybody setting records?

Support Group: Blood Cancers & Disorders

Posted: Mar 27, 2024

Comment

I'm 69 years old, JAK2 mutation, and diagnosed with ET this past November with platelets around...

https://connect.mayoclinic.org/comment/1026487/

Discussion: ET: What are acceptable platelet numbers?

Support Group: Blood Cancers & Disorders

Posted: Mar 3, 2024

Comment

That is such encouraging news. Thank you! I did have a bone marrow biopsy & I...

https://connect.mayoclinic.org/comment/799804/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Jan 21, 2023

Comment

Thank you Eileen, before all this occurred (ET, JAK2) I had been discussing with drs about...

https://connect.mayoclinic.org/comment/798340/

Discussion: High platelet count: What does this mean?

Support Group: Blood Cancers & Disorders

Posted: Jan 18, 2023

Comment

I am surprised you are starting on Pegasys first. From what I have read Hydroxyurea is...

https://connect.mayoclinic.org/comment/774166/

Discussion: High platelets, Jak2, ET, and pre-fib new diagnosis

Support Group: Blood Cancers & Disorders

Posted: Nov 17, 2022

Comment

Hi Wiggins32, I have had slightly low iron and now take iron supplements...Many of the symptoms...

https://connect.mayoclinic.org/comment/826011/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 14, 2023

Comment

I tested negative for the jak2 went to the hematologist and he did more blood tests....

https://connect.mayoclinic.org/comment/810170/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Feb 12, 2023

Comment

You need to demand an Erythropoietin test (EPO), if this protein is low you have PV,...

https://connect.mayoclinic.org/comment/783931/

Discussion: Polycythemia Vera - Help getting Diagnosis

Support Group: Blood Cancers & Disorders

Posted: Dec 12, 2022