Blood Cancers & Disorders Support Group

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Comment

I was originally misdiagnosed with Essential Thrombocythemia in 2018 by a hematologist at the VA Hospital...

https://connect.mayoclinic.org/comment/328598/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2021

Comment

Hi jackt00 - I also have the Jak2 mutation. I am 77 and have had the...

https://connect.mayoclinic.org/comment/830393/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Mar 22, 2023

Comment

I am 62 years old. I was diagnosed with ET a year ago and I am...

https://connect.mayoclinic.org/comment/57940/

Discussion: Essential thrombocythemia

Support Group: Blood Cancers & Disorders

Posted: Jun 21, 2020

Comment

My diagnosis of ET with Jak2 Mutation came after high platelets, 780K, were found on a...

https://connect.mayoclinic.org/comment/997096/

Discussion: What are pros of hydroxyurea vs other methods of lowering platelets?

Support Group: Blood Cancers & Disorders

Posted: Jan 14 11:48am

Comment

Anna, I had year fluctuations of platelet levels, all over normal, for almost 30 years before...

https://connect.mayoclinic.org/comment/826050/

Discussion: Persistently Elevated Platelets Fluctuating

Support Group: Blood Cancers & Disorders

Posted: Mar 14, 2023

Comment

Polycythemia with all negative results???????? I am a 29 year old female and have been feeling...

https://connect.mayoclinic.org/comment/855943/

Discussion: What might this be? polycythemia vera, PCOS, lupus, something else?

Support Group: Blood Cancers & Disorders

Posted: May 7, 2023

Comment

Oh heck Yeah! Diagnosed with ET and Jak2 was just one of the ten markers I...

https://connect.mayoclinic.org/comment/695189/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Apr 1, 2022

Comment

I was diagnosed with ET at 27. I had been having unusual, extensive bruising and severe...

https://connect.mayoclinic.org/comment/792696/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jan 5, 2023

Comment

Hi @ausableriver, Polycythemia Vera is a condition where the bone marrow makes too many red blood...

https://connect.mayoclinic.org/comment/1003392/

Discussion: Secondary polycythemia: What are the treatment options?

Support Group: Blood Cancers & Disorders

Posted: Jan 25 8:10am

Comment

Hi, I had all the classic symptoms of PV and at my annual visit my bloodwork...

https://connect.mayoclinic.org/comment/1024405/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Feb 28 1:29pm