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1,180 total results
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Discussions (75)
Comments (1,105)
Comment
Hello ,I wish you a speedy recovery ,my doctor told me that I have PMF but...
https://connect.mayoclinic.org/comment/1044469/
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Discussion:
Anyone have information about late stages of primary myelofibrosis?
Support Group:
Blood Cancers & Disorders
Posted: Apr 2, 2024
Comment
I was diagnosed with ET (Jak2), about 2 years ago. My platelet count was 550 and...
https://connect.mayoclinic.org/comment/928760/
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Discussion:
Thrombocythemia and need neck surgery: Will surgery make it worse?
Support Group:
Blood Cancers & Disorders
Posted: Sep 12, 2023
Comment
Wow, surprised to read that they did a bone biopsy immediately. My doctor said they can...
https://connect.mayoclinic.org/comment/892162/
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Discussion:
Polycythemia Vera: Just been diagnosed
Support Group:
Blood Cancers & Disorders
Posted: Jul 8, 2023
Comment
Yes, I can sure understand wanting a firm diagnosis before taking meds, and you are right...
https://connect.mayoclinic.org/comment/1220505/
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Discussion:
What are pros of hydroxyurea vs other methods of lowering platelets?
Support Group:
Blood Cancers & Disorders
Posted: Jan 24 10:26am
Comment
Sounds like Becky has been through quite a lot. I am looking at mitral valve repair,...
https://connect.mayoclinic.org/comment/1154916/
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Discussion:
Essential thrombocythemia: Interested in connecting with others
Support Group:
Blood Cancers & Disorders
Posted: Oct 10, 2024
Comment
I take HU, 500 mg, 2x week, and I am fatigued. I just try to keep...
https://connect.mayoclinic.org/comment/975898/
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Discussion:
Essential Thrombocytosis: What amount of hydroxy do you take?
Support Group:
Blood Cancers & Disorders
Posted: Dec 6, 2023
Comment
Are you being seen by a hematologist or your GP? What are your platelets? From what...
https://connect.mayoclinic.org/comment/776839/
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Discussion:
I have JAK2 ET and MPN: Anyone else have these symptoms?
Support Group:
Blood Cancers & Disorders
Posted: Nov 24, 2022
Comment
Additional symptoms I'm experiencing include: swollen lymph nodes on sides of neck and sore throat over...
https://connect.mayoclinic.org/comment/284522/
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Discussion:
Jak 2 and Waldenstrom's Macroglobulinemia
Support Group:
Blood Cancers & Disorders
Posted: Dec 5, 2019
Comment
Hi arecchie, I was diagnosed with ET (Jak2 mutation) in November 2022. Started with 500 mg...
https://connect.mayoclinic.org/comment/1248006/
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Discussion:
How long before side effects from Hydrea start?
Support Group:
Blood Cancers & Disorders
Posted: Mar 1 11:09am
Comment
I have been on hydroxyurea for 10 months now after getting a diagnosis of ET Jak2.....My...
https://connect.mayoclinic.org/comment/918086/
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Discussion:
JAK2 Mutation - Effects and Questions
Support Group:
Blood Cancers & Disorders
Posted: Aug 24, 2023
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