Blood Cancers & Disorders Support Group

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Comment

Hi Steve, Becky has the JAK2 mutation which, from my understanding, makes primary ET more likely,...

https://connect.mayoclinic.org/comment/1154236/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Oct 8, 2024

Comment

Just to add my two cents that may be helpful: My wife has recently been diagnosed...

https://connect.mayoclinic.org/comment/1152194/

Discussion: Essential thrombocythemia: Interested in connecting with others

Support Group: Blood Cancers & Disorders

Posted: Oct 5, 2024

Comment

Hi @tennis7777, welcome to Connect. I’m not a medical professional but from my experience of having...

https://connect.mayoclinic.org/comment/1011277/

Discussion: Polycythemia Vera and Nutritional Ketosis

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2024

Comment

Similar to you, I was diagnosed based on blood work, not symptoms. Platelets were a bit...

https://connect.mayoclinic.org/comment/1010600/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Feb 6, 2024

Comment

Thanks Eileen. I had terrible mouth sores with HU and went off for about a month...

https://connect.mayoclinic.org/comment/792213/

Discussion: High platelets, Jak2, ET, and pre-fib new diagnosis

Support Group: Blood Cancers & Disorders

Posted: Jan 4, 2023

Comment

You seem extremely responsive to Hydroxyurea (HU) if your platelets came down in only ten days....

https://connect.mayoclinic.org/comment/777871/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Nov 27, 2022

Comment

I was given the option for a bone marrow test and did some research and decided...

https://connect.mayoclinic.org/comment/1270620/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Mar 31 6:45am

Comment

My hematologist submitted blood at a lab for 5 genetic tests after I suffered my 2nd...

https://connect.mayoclinic.org/comment/194258/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 30, 2018

Comment

Ive had PV for 18 months, at least formally diagnosed ..I noticed my Red Cells increasing...

https://connect.mayoclinic.org/comment/1194832/

Discussion: My mom has Polycythemia Vera: Can PV be managed without phlebotomies?

Support Group: Blood Cancers & Disorders

Posted: Dec 21, 2024

Comment

I can’t recall where I looked it up. Mostly hospital sites. My main question was how...

https://connect.mayoclinic.org/comment/1271996/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Apr 1 4:54pm