Blood Cancers & Disorders Support Group

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1,205 total results

Comment

Yes, JAK2 ET. After experiencing shortness of breath (my only symptom), and some alarming blood work,...

https://connect.mayoclinic.org/comment/1202773/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: Jan 2 10:32pm

Comment

I am 65 years old and seem to be a rare male here. Not surprising since...

https://connect.mayoclinic.org/comment/1117080/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Aug 3, 2024

Comment

I was originally miss diagnosed with polycythemia Vera. Because I was borderline anemic and I worked...

https://connect.mayoclinic.org/comment/1044688/

Discussion: Anyone have information about late stages of primary myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Apr 3, 2024

Comment

Thanks for your comment. So Pegasus is about $1200 before insurance? Do they accept all insurances?...

https://connect.mayoclinic.org/comment/1010342/

Discussion: New to Pegasys for ET - advice please!

Support Group: Blood Cancers & Disorders

Posted: Feb 5, 2024

Comment

My hematologist about 6 yrs ago diagnosed me with primary myelofibrosis at 71 yrs old, after...

https://connect.mayoclinic.org/comment/1217600/

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Jan 20 3:50pm

Comment

Hang in there. I went undiagnosed for nearly a year. I have had blood work and...

https://connect.mayoclinic.org/comment/1060466/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: May 1, 2024

Comment

After being diagnosed with ALL, then T-Cell large granular LL. I wondered by my platelets went...

https://connect.mayoclinic.org/comment/1325185/

Discussion: I am looking for advice on lab work and how to address my Dr about it

Support Group: Blood Cancers & Disorders

Posted: Jun 11 5:21pm

Comment

I was diagnosed with MDS/MPN-RS-T in 2018. I have three mutations -JAK2, SRFS2 and IDH1-R132H. My...

https://connect.mayoclinic.org/comment/1042552/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Mar 30, 2024

Comment

Sorry to here he joined our band of rare misfits....I have had Primary MF for two...

https://connect.mayoclinic.org/comment/132655/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 8, 2020

Comment

Hi, my name is Carlavan and I to have ET with JAK2 mutation, my initial complaint...

https://connect.mayoclinic.org/comment/276870/

Discussion: Anyone have CALR mutation with constitutional symptoms?

Support Group: Blood Cancers & Disorders

Posted: Sep 24, 2019