Blood Cancers & Disorders Support Group

Public Support Group

Follow for updates

Search discussions

Start a new discussion

1,205 total results

Comment

My decision to take HU….. I am 78, My platelets were slowly rising, In June 2022...

https://connect.mayoclinic.org/comment/778663/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2022

Comment

I recently learned pterostilbene from blueberries offers greater quercetin absorption than resveratrol. Going in that direction...

https://connect.mayoclinic.org/comment/132654/

Discussion: Anyone want to talk about Myelofibrosis?

Support Group: Blood Cancers & Disorders

Posted: Aug 5, 2020

Comment

Hi @mlmk0601 Whether you have ET or not, pesticides and products containing Benzene should be avoided...

https://connect.mayoclinic.org/comment/946353/

Discussion: ET and chemical pre-cautions?

Support Group: Blood Cancers & Disorders

Posted: Oct 12, 2023

Comment

@misty45, Thank you for replying and telling me your story. Having a positive JAK2 result, I'm...

https://connect.mayoclinic.org/comment/194261/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Apr 20, 2018

Comment

I get annual labs with my physical so we know it's new for me. PLUS I...

https://connect.mayoclinic.org/comment/843149/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Apr 14, 2023

Comment

Hi @themyth, with Polycythemia Vera, too many red blood cells are produced resulting in the high...

https://connect.mayoclinic.org/comment/821819/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Mar 6, 2023

Comment

Hydrea is an oral chemotherapy medicine that is not likely to cause hair loss with the...

https://connect.mayoclinic.org/comment/1243652/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: Feb 23 10:14am

Comment

Ok, symptoms no worse and they don’t interfere with my life but unfortunately my platelets have...

https://connect.mayoclinic.org/comment/1043121/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Mar 31, 2024

Comment

Hi, I was Jak2 neg and had a hunch I may not have PV and kept...

https://connect.mayoclinic.org/comment/1024191/

Discussion: Polycythemia & Bone marrow Disorders screening

Support Group: Blood Cancers & Disorders

Posted: Feb 28, 2024

Comment

yeah i'm home now recovering. the JAK2 was negative as was the calr and mpl the...

https://connect.mayoclinic.org/comment/298979/

Discussion: High WBC and platelet count

Support Group: Blood Cancers & Disorders

Posted: Apr 5, 2020