Blood Cancers & Disorders Support Group

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Comment

It's my understanding that PV IS a blood cancer, it's a progressive disease with no cure..There...

https://connect.mayoclinic.org/comment/1086347/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Jun 13, 2024

Comment

I've been taking 600mgs of hydroxyurea (Droxia formulation) daily for myelofibrosis for the past 6 yrs....

https://connect.mayoclinic.org/comment/1080798/

Discussion: How fast do you start to feel hydroxyurea symptoms?

Support Group: Blood Cancers & Disorders

Posted: Jun 4, 2024

Comment

I have ET Jak2 and I understand that we all react differently to medications....I have seen...

https://connect.mayoclinic.org/comment/966274/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Nov 17, 2023

Comment

My platelets have increased over the past few months, now seeing a hematologist who just confirmed...

https://connect.mayoclinic.org/comment/833990/

Discussion: I have JAK2 ET and MPN: Anyone else have these symptoms?

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2023

Comment

Hi, welcome to the “scary” club. I’ve had ET for a few months now, but was...

https://connect.mayoclinic.org/comment/834119/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 29, 2023

Comment

I am 79 with ET JAK2+ diagnosed in the fall of 2024 after a serious bout...

https://connect.mayoclinic.org/comment/1245157/

Discussion: Do you Tell Family, Friends & Co Workers about your Cancer?

Support Group: Blood Cancers & Disorders

Posted: Feb 25 9:49am

Comment

Just saying, "You have a JAK2 V617F is not enough! In my opinion and many oncologists'...

https://connect.mayoclinic.org/comment/1313666/

Discussion: New to Hydrea for ET

Support Group: Blood Cancers & Disorders

Posted: May 26 8:33pm

Comment

Regarding bone pain, there are enough of us commenting on it that it seems to me...

https://connect.mayoclinic.org/comment/1309411/

Discussion: Essential Thrombocythemia: Making treatment decisions

Support Group: Blood Cancers & Disorders

Posted: May 21 10:37am

Comment

My platelets were over 600 and approached 1000 before being diagnosed with ET /JAK2. Initial dosing...

https://connect.mayoclinic.org/comment/1221139/

Discussion: Essential Thrombocytosis symptoms

Support Group: Blood Cancers & Disorders

Posted: Jan 25 8:45am

Comment

I understand your fear. I am 78 and was just diagnosed June 2022 through extensive labs...

https://connect.mayoclinic.org/comment/788294/

Discussion: New to Pegasys for ET - advice please!

Support Group: Blood Cancers & Disorders

Posted: Dec 24, 2022