Blood Cancers & Disorders Support Group

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Comment

@ellie1955 Many of our members have heard my anxiety story so y’all can tune out. 😊...

https://connect.mayoclinic.org/comment/1146952/

Discussion: Free light chain ratio in MGUS

Support Group: Blood Cancers & Disorders

Posted: Sep 25 5:46am

Comment

I have MGUS. My Dr wants me to take Tymlos to strengthen my bones. I have...

https://connect.mayoclinic.org/comment/953718/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Oct 25, 2023

Comment

CRISPR was easier for sickle cell anemia because it was one mutation on one chromosome. There...

https://connect.mayoclinic.org/comment/1164770/

Discussion: Can MGUS be cured by CRISPR?

Support Group: Blood Cancers & Disorders

Posted: Oct 29 3:12pm

Comment

The blood work has been done every six months. My doctor is excellent but does not...

https://connect.mayoclinic.org/comment/771421/

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Nov 10, 2022

Comment

There is so much variability with MGUS between different people. And so much to learn about...

https://connect.mayoclinic.org/comment/865101/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: May 23, 2023

Comment

I found this link to clinical trials open and have yet to open for MGUS: https://www.clinicaltrials.gov/ct2/results?cond=monoclonal+gammopathy+of+undetermined+significance&recrs=b&recrs=a...

https://connect.mayoclinic.org/comment/826485/

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Mar 15, 2023

Comment

Hi got diagnosed with mgus last nov still getting my head around everything loads of things...

https://connect.mayoclinic.org/comment/830470/

Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2023

Comment

I have Mgus....for over 10 years....I have neuropathy for 10 years. I have diabetes and have...

https://connect.mayoclinic.org/comment/838341/

Discussion: Does anyone have neuropathy related to MGUS?

Support Group: Blood Cancers & Disorders

Posted: Apr 5, 2023

Comment

I was diagnosed with MGUS in 2018. I had labs fun every 6 months to monitor...

https://connect.mayoclinic.org/comment/983075/

Discussion: Day +5 autologous transplant. Hoping to feel better soon

Support Group: Blood Cancers & Disorders

Posted: Dec 19, 2023

Comment

SJGray, as I have said before to others, "I have learned far more than I ever...

https://connect.mayoclinic.org/comment/912820/

Discussion: I am newly Diagnosed with MGUS.

Support Group: Blood Cancers & Disorders

Posted: Aug 14, 2023