Blood Cancers & Disorders Support Group

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Comment

Good question! I have been going over this in my mind for a couple of weeks....

https://connect.mayoclinic.org/comment/788217/

Discussion: New to Pegasys for ET - advice please!

Support Group: Blood Cancers & Disorders

Posted: Dec 23, 2022

Comment

Hello! So I was recently diagnosed with ET as my platelets rose from 300-to 650 in...

https://connect.mayoclinic.org/comment/781132/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2022

Comment

I am 65 JAK2 positive ET. My hematologist has me on low dose aspirin (1 per...

https://connect.mayoclinic.org/comment/778819/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Nov 29, 2022

Comment

Welcome to Connect, @shellep16 As fellow member @eloise999 mentioned, an allogenic SCT (using donor cells) would...

https://connect.mayoclinic.org/comment/1324156/

Discussion: Stem Cell Replacement

Support Group: Blood Cancers & Disorders

Posted: Jun 10 9:17am

Comment

What dosage have you been prescibed? ET patients usually only need very low dosages of hydrea....

https://connect.mayoclinic.org/comment/1172215/

Discussion: How long before side effects from Hydrea start?

Support Group: Blood Cancers & Disorders

Posted: Nov 12, 2024

Comment

I am 72, have ET with JAK2, and been on Droxia for 10 years. My dosage...

https://connect.mayoclinic.org/comment/1119845/

Discussion: Anyone else find the side effects of Hydrea 500MG frightening?

Support Group: Blood Cancers & Disorders

Posted: Aug 8, 2024

Comment

Hello Ana. I was diagnosed with ET a year ago but did not want to take...

https://connect.mayoclinic.org/comment/1376312/

Discussion: Essential thrombocythemia (ET): When to start hydroxyurea (HU)?

Support Group: Blood Cancers & Disorders

Posted: Aug 21 9:19pm

Comment

Hi, I was diagnosed with ET January 2025 after routine physical from high platelets in lab...

https://connect.mayoclinic.org/comment/1347917/

Discussion: What to look for if ET is progressing to something else.

Support Group: Blood Cancers & Disorders

Posted: Jul 14 10:05am

Comment

I’m extremely late to this as I’m sure that by now you’ve been either diagnosed or...

https://connect.mayoclinic.org/comment/1192993/

Discussion: What might this be? polycythemia vera, PCOS, lupus, something else?

Support Group: Blood Cancers & Disorders

Posted: Dec 18, 2024

Comment

I have been prescribed Inegra, which is a combo of Iron and Vitamin C and is...

https://connect.mayoclinic.org/comment/1239853/

Discussion: My mom has Polycythemia Vera: Can PV be managed without phlebotomies?

Support Group: Blood Cancers & Disorders

Posted: Feb 18 11:20am