Blood Cancers & Disorders Support Group

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Comment

Hi DHCarter, I was getting episodes very lightheaded feeling, feeling lousy, heart beating abnormally. About five...

https://connect.mayoclinic.org/comment/813703/

Discussion: PV and atrial fibrillation

Support Group: Blood Cancers & Disorders

Posted: Feb 19, 2023

Comment

It is common for the blood numbers to take awhile to improve. I am Jak2 positive...

https://connect.mayoclinic.org/comment/795618/

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Jan 12, 2023

Comment

Wow, thank you so very much for your response Lori. I have felt like I am...

https://connect.mayoclinic.org/comment/604306/

Discussion: Hypocellular bone marrow: What do I need to know?

Support Group: Blood Cancers & Disorders

Posted: May 24, 2021

Comment

I'm JAK2 positive as well, and have had high platelets since my 30s. I'm now 64....

https://connect.mayoclinic.org/comment/781250/

Discussion: How did you make the final decision to begin HU protocol for ET?

Support Group: Blood Cancers & Disorders

Posted: Dec 5, 2022

Comment

Hi all... I am 69 and was diagnosed with ET and some fibrosis so Early PMF...

https://connect.mayoclinic.org/comment/146324/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Feb 14, 2021

Comment

I have been living with high platelets (500-680 range) since 2016. In 2017 I had a...

https://connect.mayoclinic.org/comment/692090/

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2022

Comment

Thank you for responding, very appreciated. As of now, knock on wood, the only mutation is...

https://connect.mayoclinic.org/comment/328596/

Discussion: JAK2 Mutation, Low Iron and High Platelet count

Support Group: Blood Cancers & Disorders

Posted: Mar 23, 2021

Comment

I have MDS/MPN overlap with Thrombocytosis and MF and I've been on Hydrea to reduce my...

https://connect.mayoclinic.org/comment/146301/

Discussion: How do You Manage Side Effects Of Hydrea or Hydroxyurea for ET?

Support Group: Blood Cancers & Disorders

Posted: Feb 7, 2020

Comment

Was diagnosed with ET and JAK2 positive. Have been taking Hydrea 500mg and 81mg baby aspirin...

https://connect.mayoclinic.org/comment/854019/

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: May 3, 2023

Comment

hello. I was diagnosed with ET over 25 years ago, while young and in the Service...

https://connect.mayoclinic.org/comment/890151/

Discussion: Essential Thrombocythemia (ET): foods, diet, nutrition?

Support Group: Blood Cancers & Disorders

Posted: Jul 4, 2023